How your remission started?

Bowdren,

I'm fairly new to lyme so don't have your answer but I'm happy for you and really glad you asked this question. I want to know the same thing.

Did you go on abx the moment you saw tick? What part of the body were you bitten? Do you know what made your LLMD say that? Not trying to take the wind out of your sails but I thought that we can be doing 'ok' and then cos and/or other symptoms show up down the line. I hope to goodness I am wrong on that. I also hope that you are just a fast healer.

Keep us posted.

Bowdren,

How did you know you had it? Do you remember being bitten? What were your symptoms? I have heard that bites on legs and lower heal the fastest, the higher up on your body the bite was, the worse the healing. I'm guessing it is also dependent on our already toxic load, all other ailments and the state of our immune systems.

Brain fog is tough. I hope you continue to get better and to stay lucky.

Bowdren - I think it is a good sign that you are having good days already...but i'm not sure about the 'quick case' comment.
Quick - meaning a few months...or?

From what I have seen/read...people who heal in less than a year...usually have been sick for less than a year.
I personally don't know anyone who was sick for over a year and was well in several months of treatment.
But, I do know people who have healed with several months of treatment that were sick for less than a year.

That's just what i have known.

I am still recovering. Most of my bad days aren't as bad as they were. (I've been in treatment for two years...minus a couple of breaks totaling about 3 months)
i can't say I'm having more good days..yet.

remission? what's that? LOL. while everyone is different it seems many have the sine wave pattern. for those that don't know its a wave that has peaks then valleys then repeats. i'm close to year 2 of the sine wave.

note i started treatment 5 months after initial symptoms (and i'm almost 100% sure i didn't have any diseases prior to my symptoms) and i'm 18 months later and still 50% healthy. goes to show there's no single formula for what your timeline will look like.

to answer the question above that co-infection symptoms can come out later on, that's exactly what happened to me. lab results confirmed Lyme and Babesia duncani so my LLMD hit both of those hard right away and was relentless with different abx and antimalarials for almost a year. when i just couldn't get past a certain place we decided to hit a potential bartonella infection with rifampin/cipro and that's when my co-worst symptom came out in my chest thumping which i still struggle mightily with to this day.

so my worse symptom right now 18 months after starting treatment didn't show up until 12 months into treatment. yes it can happen but everyone is different on how these manifest themselves (if at all).

Daisies,

I am not sure how you do it. Having three sick kids and managing that is extremely stressful. I cannot even imagine. I hope you have some help with it all and take time for yourself, although I know a mom doesn't care about that - we will go to the mat if it will help our kids. Lots of hugs/prayers to you all!

That sounds like adrenal/cortisol imbalance. If you have it you are often very fatigued/foggy in morning. Get tired again early evening but then if you keep yourself up, or have what you think is a second wind, it is really adrenaline coming to lend a hand in keeping the body awake. Then you can't sleep until late. Best to go to bed by 10:00pm and wakeup the same time every day even on weekends. I go to bed at 10:00pm and wake up at 6:30am. I am up a few times through the night but that probably isn't changing.