Hi Tistum!
Welcome to our community! I'm so glad you found us.
You have already been given some good advice - don't ignore this. I was infected at the age of 7, and it was misdiagnosed as all kinds of other things most of my life - I was 37 before I finally dug deep enough to find out it was really Lyme and other infections the whole time. These infections suck the life out of a person's life, so I encourage you as well to not ignore this - no matter what the doctor has to say.
For information on finding an ILADS (International Lyme and Associated Diseases Society) trained Lyme Literate Medical Doctor(LLMD) in your area, you will need to enable your email option in your profile in order to receive any recommendations, as we don't allow doctor's names and contact info to be posted on the forum for several reasons. You can enable your email option in your profile, under 'edit profile'. Be sure to click the submit button to actually save your preference.
You can send me an email by clicking on my screen name or the small blue envelope under my screen name. I may have contact information for some LLMD's in your area as well. Please include your state (or province) and area that you would like to find a LLMD in and I will be happy to share the names I have.
You can email the Tick-Borne Disease Alliance at
[email protected] for LLMD referrals.
You can go to The Lyme Disease Association and search for LLMD's 3 times in a month. You have to register first. Here is the link:
www.lymediseaseassociation.org/index.php?option=com_content&view=article&id=277&Itemid=74ILADS has their own referral system as well:
ilads.org/ilads_media/physician-referral/And
www.LymeDoc.org You will want to find a well trained doctor, not one that has self proclaimed themselves as a LLMD or an ID Doc (Infectious Disease Doctor), as ID docs believe Lyme is hard to catch and easy to treat, and don't believe in the reality of chronic Lyme. Go to the ILADS site to read the new (2014) Treatment guidelines to get you started on your healing journey:
www.lymenet.org/BurrGuide200810.pdf