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New Lyme Disease Findings: Dr. Paul H. Duray Research

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Posted 9/25/2016 12:56 AM (GMT 0)
/durayresearch.files.wordpress.com/2016/07/7-discoveries-pdf-final-july16-sansmkup.pdf
Posted 9/25/2016 2:14 AM (GMT 0)
Some awesome research going on!
Posted 9/25/2016 3:44 AM (GMT 0)
The first reaction I had is HOORAY for the results of the research. The second reaction is: Is this what I have to look forward to?
Posted 9/25/2016 2:43 PM (GMT 0)
Hi OldSalty!
Welcome to our community! I'm so glad you found us.

If you haven't ​yet​, it would be helpful for you to start with reading through the thread at the top of the forum titled,"New to Lyme?...Start here!!", as it is packed full of important information, symptom lists, helpful links and pdf's, how to detox when one has these infections, information on probiotics and much more. And this is another good list of possible detoxing routines: www.tiredoflyme.com/detox-methods.html

To answer your question above, no one knows yet. It depends on a lot of different factors, like how long you were infected before treatments, how severe your infection got before treatments and your immune function. At least we have researchers working on it though!
Posted 9/25/2016 6:28 PM (GMT 0)
I'd like to point out where the credit is due in this work: Microbiologist Alan MacDonald and Tom Grier.

These two have made amazing discoveries in MS and Alshiemers brains having BB (Lyme) inside.

Tom continues to have presentations in the Great Lakes region as well as other areas to raise awareness.

They both work with independent funding and when possible collaborate with others who are able to get funding more easily, in this case Dr. Paul Duray Research. They both are on the go fund me site for lyme research projects.

The fact that they found nematode worms in brains with BB in the worms guts shows how complicated this can be. The worms eat the brain matter and this can be seen on imaging.

".............nematodes he found also contained Borrelia burgdorferi inside their gut."

Its a shame that so many conventional Drs dont believe these guys. There are you tube videos of their presentations to the medical community and Drs literally get up and leave in the presentation.

Tom, a science microbiologist and native of Northern Minnesota (timber/tick country), was Dxed with MS in the early 90's. He later found it was lyme and dedicated to researching this ever since.
Posted 9/25/2016 9:12 PM (GMT 0)
Thanks for posting article. Will most lyme patients get this? Have you guys heard that Robin Williams had lyme disease? I was watching some show, it will sound crazy but it draws you in, Tyler Perry Hollywood medium (I don't watch these types of shows but he is the real deal). He was reading someone and spoke about how Robin Williams was ill and it will come out that he knew he was ill. Wondering if he thought he had dementia or they knew he had lyme. I should add that you can have Alzheimer's/Dementia and have it not be from lyme.
Posted 9/25/2016 9:13 PM (GMT 0)
What herbs would be effective against brain nematodes and spirochetes?
Posted 9/25/2016 9:22 PM (GMT 0)
Honestly, not enough research has been aimed at this to know just how significant it may be in the Lyme patient population. I would think that for those that don't have serious brain issues, the risks would be smaller, but no one knows yet.

Also, no one knows exactly what it would take to kill both the nematodes and the spirochetes in the brain, or if it's even possible. These are brand new research projects, and although they have been duplicated, the research is still in it's infancy.
Posted 9/25/2016 9:37 PM (GMT 0)
Another day, another thing to learn about lyme. What is a nematode? Haven't learned that one yet? How can people with foggy brains be forced to learn so much? A conundrum.
Posted 9/25/2016 9:48 PM (GMT 0)
A nematode is a microscopic "worm" or parasite.

nematode.unl.edu/Wormgen.htm
Posted 9/25/2016 10:41 PM (GMT 0)
Gross! Zappers for all of us they kill parasites/worms.
Posted 9/26/2016 12:26 AM (GMT 0)
I was at one of his presentations. He mentioned the the physical differences in deformations (dead areas) between a MS brain and a Alzheimer's brain, however both can have the same cause. I would imagine out of all the different "bugs" our bodies are exposed to (all humans, lyme or not), some can get into the brain - and cause this.

There are also "MS genes" that many MS sufferers have. Its a conventional test. Just makes it more possible. 23/me tests as few genes for the likelihood of Alzheimers.

This research is opening a can of worms so to speak, as many would be shocked to learn this. Animals get many ill symptoms from similar bugs in the brain- the crazy "circling" moose illness is one of parasitic infection. Chronic wasting disease in deer is another.
Posted 9/27/2016 12:48 AM (GMT 0)
This research is huge! They found parasites harboring and protecting the borrelia spirochetes in the brain, spinal fluid, and testicle! In how many other parts of the body might parasites be holding onto borrelia and keeping antibiotics from killing them?

This seems like a good reason for anyone with Lyme to get on some sort of anti-parasitic. This definitely demands more research!
Posted 9/27/2016 1:45 AM (GMT 0)
I don't think I'm having a deja vu moment, but the whole article is familiar to me. Must have been from my French friend on fb.

The thing that scared me then, and scares me now, is the warning not to try to self medicate with the anthecide....whatever. The parasite wormer. Because of the huge death risk. Getting shot full of steroids to avoid dying is the last thing we need.

The French friend had treated himself with wormer and had good luck with it. I have ready access to it because I give it to my horses.

Just too scary.

Totally grosses me out knowing it's possible I have microscopic worms wriggling around in my brain/body. The spirokeets and the RMSF bacteria are bad enough.

So yeah, what was said about having this to look forward to. It's already started with me. There is no way on earth I'd be able to convince the Neurologist that told me she "wouldn't write off Alzheimer D." to treat me with wormer and more antibiotics. I feel pretty much sunk.
Posted 9/27/2016 2:27 AM (GMT 0)
I wonder if this is what dies off with bart herxes that Buhner and Cowden speak of.
Posted 9/27/2016 3:06 AM (GMT 0)
I went to a lecture on detox and wheatgrass and the lady spoke about candida and Alzemeirs saying the same thing we hear about lyme disease. The whole lecture was about detoxing your colon and doing coffee enemas, and dry brushing and drinking wheatgrass.

I liked the lecture, but I found it curious that both Candida and Spirochetes were in brains.
Posted 9/27/2016 7:40 PM (GMT 0)
Thanks for the welcome. I am fast getting up to speed. This research, if peer reviewed and duplicated, could generate a firestorm of reactions from researchers in the MS and Alzheimers fields. The idea that something as "simple" as nematodes and bb being a cause will infuriate patients and families since the potential cure can be both simple and relatively inexpensive. The reversal of Kris Kristopherson from Alzheimers to treated Lyme was eye opening enough. The ramifications of the medical politics aspect of the IDS community might finally be revealed to the public.
Posted 9/27/2016 7:47 PM (GMT 0)

OldSalty said...
This research, if peer reviewed and duplicated, could generate a firestorm of reactions from researchers in the MS and Alzheimers fields. The idea that something as "simple" as nematodes and bb being a cause will infuriate patients and families since the potential cure can be both simple and relatively inexpensive. The reversal of Kris Kristopherson from Alzheimers to treated Lyme was eye opening enough. The ramifications of the medical politics aspect of the IDS community might finally be revealed to the public.

Oh, believe me, there's a firestorm out there because of this!! And it is being duplicated!!
Posted 9/27/2016 7:51 PM (GMT 0)
So a person who is sick with Alzheimers could just attempt one of these treatment? It is said that Alzeimers in rats has been cured but not in people.
How you get rid of nematodes again? Sorry I am spaced out today.
Posted 9/27/2016 8:04 PM (GMT 0)
It's believed that Alzheimer's can be a result of several different issues, and I don't believe that they even know if they have found all of the possible causes at this point - but I would certainly have someone try something like Lyme treatment and a anti-parasite treatment rather than just use the drugs for Alzheimer's.

My FIL passed from Alzheimers, and I'm convince that it was from some bacteria infection or viral infection (he had St. Louis encephalitis many years previously) - I just couldn't get anyone else in the family to listen to me.

I'm not sure how treatment for this would play out for sure - and I'm not sure that's been figured out yet. This is a fairly new discovery.
Posted 9/27/2016 8:28 PM (GMT 0)
Well most patients they only listen to the white coat lab person....so it is a waste of energy to even tell people. Someone in my family has Parkinson and I suggested my SIL one of the supplement I take is used for Parkinson successfully......I got ZERO feedback.....people do not care unless it is them and even in that case they do not believe anything a person without a medical degree could say. This is why they have all the marketing ads with some stupid product accompanied by a model dressed like a doctor. People are so stupid.

There was that experiment done decades ago on the control group being tortured and abused by people in white lab coat (drs)....they were fake of course. But the different control groups responded negatively to all other individuals ....except for those with white lab coat....LOL

the Milgram Experiment....I found it. I did not study psychology in college.....but a friend told me about this....so funny.

www.simplypsychology.org/milgram.html

Post Edited (artermix) : 9/27/2016 2:33:13 PM (GMT-6)

Posted 9/27/2016 10:02 PM (GMT 0)
"Well most patients they only listen to the white coat lab person....so it is a waste of energy to even tell people."

- yes, and that just blows my mind. How is it that so many people, refuse to learn things on their own and assume the "professionals" know it all?

I met a well educated individual who didnt know what magnessium was. How does one forget simple 7th grade school science / chemistry class.?

Most of us by now have experiences with the "health cluless" rolling their eyes.

I know an old man possibly dying from lyme, now in the nursing home. Had the symptoms, a lifelong northwoods outdoors person to. His brain is now exiting. His family thought I was nuts. Sorry to say, but Mr Grier would love this mans brain speciman someday.
Posted 9/27/2016 10:57 PM (GMT 0)
I have lost any respect I used to have for highly educated people in the area of science and technology. I am sure all changed when I went to graduate school, but experience has taught me much more. I studied applied arts and humanities, which is always looked down in our society as "wasted" study time, "what are you going to do with that?". However, it actually helped me to see things from a complete different angle compared to most "science erudite" people. Just see the many ways we can represent the human figure in relationship to the surronding space....2D, 3D, classic perspective, abstract and surrealistic. It is about the same thinking that has blocked the evolution of science in some areas....along, of course, with economics.
Why not look at medicine the same way?

I know it is another topic.
Posted 9/28/2016 12:45 AM (GMT 0)

astroman said...
"Well most patients they only listen to the white coat lab person....so it is a waste of energy to even tell people."

- yes, and that just blows my mind. How is it that so many people, refuse to learn things on their own and assume the "professionals" know it all?

I met a well educated individual who didnt know what magnessium was. How does one forget simple 7th grade school science / chemistry class.?

Most of us by now have experiences with the "health cluless" rolling their eyes.

I know an old man possibly dying from lyme, now in the nursing home. Had the symptoms, a lifelong northwoods outdoors person to. His brain is now exiting. His family thought I was nuts. Sorry to say, but Mr Grier would love this mans brain speciman someday.

I don't think the general public understands what medical students are being taught. Since Lyme is not one of the big money makers in the health field, they probably get about 2 pages on both sides, of outdated material.

Really, no matter what health problem(s) a person is dealing with, it behooves them to educate themselves so that they can be pro-active. I can hear some people retort "That's what the Dr. spent (and gets) big money for, to be the Dr., not me." And that is certainly parroted by many Drs. themselves.

And there are many people would be scared to be knowledgeable about their health, even if they had the capacity to learn about it.

It's like, for most things I'd rather pay a mechanic for my car problems, and like me don't want to listen if someone contradicts my trusted mechanic. Everyone probably has at least one area they don't want/can't handle. In the case of our health, sadly.
Posted 10/22/2016 8:48 PM (GMT 0)
I'd like to correct an error someone made earlier.

The Duray foundation is not an entity separate from Dr Alan MacDonald and Tom Grier. Dr. MacDonald is its founder and Tom Grier the current CEO.

The Foundation is not "able to get funding easily". It receives no funding from any government, corporate or other major source. It is reliant for funding on the international Lyme patient community and the generosity of individual patients.

Elena Cook
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