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ANXIETY AND DEPRESSION HELP!!!

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Posted 10/7/2016 11:35 PM (GMT 0)
Hi guys I need help. Since starting treatment I just seem to be getting worse and worse and worse as time goes on. My twin thinks I need stronger meds. My main symptoms are severe anxiety, panic attacks, despair, depression, suicidal thoughts, hopelessness, constant hunger, nausea, stomach churning, dry heaving. So its mostly psych and GI issues. We first tried rifampin and were going to do tinidazole, rifampin, and zithromax but i herxed too much on the rifampin i got these same symptoms but to an extreme where I was screaming and crying. So we switched to cowden. Im on biocidin, houttuynia on that. And for buhner just started japanese knotweed and pasque flower. I feel horrible like giving up and dying. Please help. My twin says that she thinks I need stronger meds. She was extremely suicidal and rageful but the past three months has improved substantially on rifampin, tinidazole, and zithromax. I also dont know if with winter coming its making it worse or how to fix this mold thing in my house cause I dont have money. I also have horrid panic attacks when I go to the doctor. I dont want to go i dont want to have one. Please help. My twin says she thinks i need to go on iv because the rifampin made my stomach so sick. But im scared of the herxing itll cause.
Posted 10/7/2016 11:49 PM (GMT 0)
I'm so sorry that you are feeling so unwell. Some of this sounds like psych herxing. Have you considered taking herbs to help with mood? Ashwagandha is a great herb for anxiety, depression, etc. It is very calming. Holy Basil is another one that is great for anxiety. I would also encourage you to get your adrenals tested. So many things can add to these symptoms, beyond the illness itself.

What are you doing for detox? Recirculating toxins can also add to your symptoms. Try to do more detoxing. You may want to add in Pinella by Nutramedix for brain detoxing. Tumeric for inflammation.

If your gut is really bad, IVs may not be a bad idea. While doing this, you can work on gut healing. Do you take probiotics? Colostrum, DGL, collagen, ghee, and for some L-glutamine is an option. Personally I can't use it. There are many products that can help with gut healing.

Do you know which co-infections you have?

How much of the houtt are you taking?
Posted 10/7/2016 11:58 PM (GMT 0)
Jenny - did you do one of the three first (rifampin, tinidazole, azithromycin) and give it some time before adding in the next one?


I didn't start on full dose of Rifampin. My LLND had me start on half dose...and I decided to half the half dose..for several days before taking the half dose...then a few weeks later..did the full dose.

Did you take the Rifampin with food? Although, it says empty stomach, I now have to take food soon after - because it has started to bother my throat.

If you can't tolerate the Rifampin, there are other treatments for Bartonella.
Posted 10/8/2016 12:07 AM (GMT 0)
I agree with Krimpet that it sounds more like a psych herx rather than a need for stronger meds. During my first year of treatment, all I did was get worse, until I was left bed bound and having some seizures.

Have you been tested for the gene mutations that often cause difficulties with detoxing?

And, if you have tested positive for mold, most find they must treat mold first before much process can be had with Lyme and company.

Do you detox much? If you can, it would help us if you would list what detoxing methods you use. We may have suggestions.

Are you currently using things like binders? They are a lifesaver for me when I get too much herxing going on. Although, you do want to be careful of constipation, as that would keep those toxins inside of you to recirculating in your body.

And although she's your twin, she's not you. Your body will likely have its own path to healing.
Posted 10/8/2016 2:18 AM (GMT 0)
Krimpet I dont have money to buy these herbs. I also dont have money to check my adrenals. I applied for lymelight! I am praying and crossing my fingers and toes and tongue that I please get it.

My llmd takes insurance which covers the appt and basic testing only. I can only afford a few buhner things slowly and my cowden things.

I have pinella. How many drops do I take and how often? I would love to do IV but Im scared of managing it. Do i have to hire a nurse? Would it make the psych herxing worse? I want to kill these little demons as fast as possible.

Ive already spent three months on three drops of houtt. 😭😭😭😭 why cant my body handle three drops?

Girlie, I took rifampin with food same reason i was constantly eating and i was supposed to start only with rifampin and then add the other two. I started with only 150mgs but i couldnt handle even that dose. 😭😭😭😭😭😭😭

Traveler how can you tell the difference between a herx and bart worsening?

Oh no Traveler then what did you do after being bedbound with seizures?? Im so sorry. I wish i could give you a zillion hugs.

How can I treat mold if I dont have any money?

For detox I use: burbur ten drops a day, lemon water, and alka seltzer gold.

I have a binder my llmd gave me. But he told me to use it once we have the mold out of the house cause it can stop working if u use it with mold and then try to use it with the mold gone.

Okay guys. But I want to be making improvements like my twin. 😭😭😭😭😭😭😭 thanks so much guys i love u all
Posted 10/8/2016 3:23 AM (GMT 0)
I dont know if i should take my stuff tonight or not. Ima call my llmd first thing tomorrow
Posted 10/8/2016 6:59 AM (GMT 0)
I dont know if i should stop taking everything completely
Posted 10/8/2016 5:01 PM (GMT 0)
Like my houtt?
Posted 10/8/2016 5:09 PM (GMT 0)
Take the Pinella 2-3x a day, 10 drops each time. Most people do 3x a day or more if needed. This is one that most don't have to ramp
up on but to be on the safe side, just start with a few drops as see how it goes.

You may be able to take more houtt once you start the Pinella. Houtt is strong, I agree.

I don't know about the binder not working if you take before mold is removed. First time I have ever heard that. Perhaps it's the type of binder. What binder is it?
Posted 10/8/2016 5:41 PM (GMT 0)
There is a specific binder used when the person has mold (cholestyramine) as it works specifically for mold. Activated charcoal and detoxing clays that you can take internally will not work as well (or maybe at all?? Not sure) for mold, but still will work well for the other toxins that you are dealing with. I would encourage you to use them.

"Oh no Traveler then what did you do after being bedbound with seizures?? Im so sorry. I wish i could give you a zillion hugs."

Lol!! I would have taken those hugs!!! I'll accept your virtual hugs any time! :-) I slowly started detoxing with the help of Deejavu. She walked me through each and every step because I was so overrun with toxins that there wasn't one single detox thing I could "just do", I had to work up slowly to be able to do each of them so I wouldn't have horrible reactions, putting me back in bed with the seizures again.

"Traveler how can you tell the difference between a herx and bart worsening?"

A lot of this is in the timing of symptoms getting worse, and how it progresses. For me, once I started abx treatments, the herxing never let up - not even for a few minutes and I was on abx for 12 months. That was quite a learning experience!!

You had a really difficult time with abx, and so you switched to herbs - that was good. But you do need to work on your detoxing. You don't need to spend a lot of money to detox lots. I'm sure that we can all work to help you find some of the less expensive things to do.

And, please - send me an email? I may be able to help you out with a few things.

I would also encourage you to at least go down to, say, one drop of Houttuynia right now, since you too find this to be a heavy hitter for you. No need to compound the issue by continuing to pile on the toxins that you are having trouble getting out of your body.

No matter what's going on with your twin, you are a very unique and special lady just of your own. You will have your own journey with this and it may be completely different than what your twin experiences.
Posted 10/8/2016 10:08 PM (GMT 0)
But why do you guys think im doing so poorly detoxing? It frustrates me i want to get better so badly. I want these bugs dead already.

Krimpet so how many drops should i start off taking? The pinella wont make me sick right?

Ok traveler i will email you thank you
Posted 10/8/2016 10:14 PM (GMT 0)
In your situation, I would recommend you starting with 2 drops. Then if no reaction (which I really don't think you will have), then go to 3 and so on until you get to 10.
Posted 10/8/2016 10:24 PM (GMT 0)
The Pinella should not make you sick, it should help calm the herxing. Many here find relief with it during herxes.

Have you been tested for the gene mutations that can keep the body from detoxing well (MTHFR)?

Have you been tested for mold issues?

Have you been tested for strep and staph infections?

It also may be just due to how many infections you really have. Remember the testing is pretty poor for these infections.

Let me know if you don't get my email in return!
Posted 10/8/2016 10:43 PM (GMT 0)
Thanks krimpet!
No i have not been tested for mthfr which test is that?
My llmd and i are pretty certain i have mold. Since my house for sure has mold. But ill still be living in it for a few more weeks at least.
How do i test for strep and staph infections? My throat feels fine.
So far i just have bart and lyme.
Posted 10/9/2016 6:26 AM (GMT 0)
I do iv abx on the road at home etc ...i got a port put in by insurance .but hey dont cover meds ..if he can get you 30 days doit ..picc line is differnt but it may put things on pause if you can ..it gave me a reprive from joint pain .
its a steep learning curve but you can do it ..

also in justin and christie movie she had bad nausea and i think it was proto that finally helped her ...

bvt is cheap ..and slather thieves to avoid the mold if you can amazon has some for not that much ...essential oils can be powerful...oil of oregano in carrier has herxed me ...

but bvt is real deal ..how is your pain threshold?...
Also consider alinia ..my gut felt better when i cleared giardia and ascaris ...the went rampant when i took abx as if they had run of my innards

If you insist on herbs consider some neem and andrographis to your hootie ..and bvt and little abx has made me some gains . .
Posted 10/9/2016 6:27 AM (GMT 0)
Get some mucuna and some holy basil for depression and axiety or ask for xanax insurance will give those out like candy
Posted 10/9/2016 5:34 PM (GMT 0)
Holy basil should not be used if there is a possibility of low cortisol issues with the adrenals, as it lowers cortisol further.
Posted 10/9/2016 11:53 PM (GMT 0)
Thank you bluelyme i wrote these things down. By the way i like how u call rifampin riffy and houtruynia hootie it makes me laugh :)
Posted 10/10/2016 10:25 AM (GMT 0)
The fact that you both have similar issues would indicate to me that there may be genetic deficiencies in the methylation pathway that are contributing to your issues. Increasing folate levels may be beneficial so eating green leafy foods like spinach, kale, etc may help. Eating colorful fruits and vegetables daily in greater amounts than you are currently eating could help with the anxiety. It has been surmised that eating 9 cups of leafy greens per day is what it takes to alter physiological function. I have done that in the past and it did change things for me. My recommendation to you would be to completely change what you are eating.
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