Benign fasciculation syndrome (BFS)

My left arm, hand , and fingers began twitching a month ago. I went to an orthopedist, he referred me to a neurologist. The neuro said I have Benign fasciculation syndrome (BFS).
I've heard this can mimic lymes. Anyone have a similar situation?

I've been treated for lymes twice in the past 10 years or so. I live in the woods and a real lymes hot spot.

True bfs only lasts a few days. After that would imply something is up. Many things can cause this and since you have had lyme before it may be something you wanna re-look at. Like many folks here i have stupid twitching happening daily.

bluelyme - your's calmed down with magnesium?

Mine did not...I was gulping them back..this was pre diagnosis...you know those months of thinking you're going crazy because all these strange symptoms? talk about PTSD - just thinking about those days/weeks/months.
waking up every couple hours in a panic, gasping for air...sweating...everything twitching.....

Mine did get better with treatment and time, though...

Ther orthopedic said my problem was possibly Parkinson, so he referred me to a neurologist. The neuro gave me an emg test, said it was not ALS, or Parkinson's (thank God). He said he was sure it's BFS.
He said anxiety, stress, depression, and coffee are the culprits. He prescribed Xanax, for the anxiety.
My two bouts with lymes were years ago. I had the bite, the bullseye, and the month long doxy.
I'm thinking of going to my family dr., explaining all the above, and asking if he'd test me for lymes.

Hi Chuck
Welcome to our community! I'm glad you found us.

I had muscle fasciculations so severe while infected the first time that I would literally "bounce" off of anything I was sitting or laying on at the time. It scared both me and the doctors that saw it. Yet, treatment for Lyme and co-infections cleared it completely, and even though I got reinfected I still have not had that happen again.

It's rare for just 4 weeks of Doxy to clear a Lyme infection, so I would say that it's most likely you never healed to begin with since these symptoms have continued, and you have a confirmed Lyme infection. Without effective treatments, the infection just goes into hiding.

I would greatly encourage you to skip the GP and find a Lyme Literate M.D. and get started with appropriate treatments. If you need help in finding one, we can likely be of help.


If you haven't ​yet​, it would be helpful for you to start with reading through the thread at the top of the forum titled,"New to Lyme?...Start here!!", as it is packed full of important information, symptom lists, helpful links and pdf's, how to detox when one has these infections, information on probiotics and much more. And this is another good list of possible detoxing routines: www.tiredoflyme.com/detox-methods.html

Chuck - Do you have tremors now?

That is different than the fasciculation's (twitches)


Are you getting the Igenex WB done?

Let us know what the testing shows....okay?