Duodenitis, stomach and Bartonella

I have made previous forum posts before about this but with my progression of sida acuta alongside basic lyme protocol aimed at my prominent bartonella infection/symptoms (and trying to knock out possibility of Babasia) I have regained the esophageal gargles and chest discomfort I clearly gain from gastro-stomach inflammation. I had been ignoring them as they have been pretty minor (compared to "major" symptoms) but alongside occasional breaks in my recent past two weeks eating catalog (the occasional fish taco and burger) and alongside recurring headaches and this esophageal gargles which have recurred since beginning of symptoms today I have regained blood in the stool.

This time it was much more than normal still bright bright red but spread out over my toilet paper and a little bit in the water which I never had before. Last time it lead to really severe symptom pains and a colonoscopy and endoscopy I've posted about for which it's prep seemed to wipe all of the symptoms away over a few days.

The colonoscopy's and other's results were all clear except for minor duodenitis which after researching caused me to realize the reported link between Bartonella and the duodenum/stomach inflammation. Since my H Pylori test was negative and I am gonna be doing everything I can to host a herbal attack on that particular thing just in case but it seems to not be since I was fine this entire time over 4 months or so up until this sida and food combination.

It seem's to be more the bartonella//lyme and stomach combination due to duodenitis being caused by an infection of some sort usually and making sensitive to food irritation which is ALMOST EVERYTHING IN THE WORLD.

So here are my questions "Has anyone suffered or heard of any duodenom irritation//problems to do with bartonella or other infection and how they dealt wit it?

Anyone dealt with blood in stool with Lyme/coinfection what did they do? Does this situation sound dangerous?

How to mitigate stomach inflammation with food and any foods to really avoid?

Maybe any fixes to an inflamed stomach/gastrosys with herbs or anything?

Does anyone know if this seems possible likely or any causes?

How do I continue treatments if this could pop back up as a future problem?

P.S There is no constipation, intense pushing or diarrhea involved

Post Edited (commandersorebod) : 10/14/2016 11:48:25 AM (GMT-6)

I have duodenitis! I just got diagnosed with lyme so I'm not much help. But I got diagnosed with duodenitis about 7 years ago but had it for about 10. I don't do anything naturally but I take tecta when it flares up.

commandersorebod -

I'm so sorry you are struggling like this.

I have similar tales from the period before my dx and the first stages of treatment.

For years I had trouble digesting food - everything hurt. I was left with eating soups and liquid meals. I saw a naturopath specialist who suggested a breakdown of several systems - digest is inextricably linked with hormones, thyroid, immune system, neurotransmitters, to name a few. We had to start working one everything simultaneously.

I made some progress but $20k and two years later, we never got to the underlying cause of lyme & co so my progress was limited.

Then I suffered 13 months of chronic sinusitis and bronchitis and was pumped with 8-9 courses of various antibiotics over that time period. Some of these abx are used to treat lyme & bart and stirred up the infections like a banshee... next thing you know, I started developing these severe gastric episodes were I would wake up in the middle of the night with cramping and spasms all throughout my torso. The pain was so severe I would pass out. Only when I projectile vomited, hours later, did relief come. These episodes stopped and then started again when I started A-Bart for bartonella. I finally linked them to the A-bart and when I stopped taking it, the attacks stopped.

We finally dx it as "palsy of the gut" caused by bart. Once I started vancomycin (I was already on Rocephin) so many of my GI issues improved. I had even more improvement when I started taking pure cholestyramine - a powerful binder.

I did not start ANY treatment for TBD until I could restore my gut a little - this initial stage took 4 mos.

The damage bart can do to the gut is hard to quantify - and it can manifest in different ways. You should definitely be on an antimicrobial and start at very very low doses and titrate as you can tolerate. bluelyme also had some great suggestions for remedies.

Most of all - as Peteza suggested, your diet has to change - not forever but until you can recover your gut. Bleeding can be serious but it is also common - the blood vessels sit very close to the lining of the anal area and intestines so it's not uncommon for something abrasive to rupture the membrane or for inflammation or swelling to cause bleeding. But a serious amount of bleeding is serious and you should get to an ER if it's uncontrollable and you have other sx.

GI problems are also pretty serious because nearly ALL of our treatment is taken orally. If you have damage that is preventing proper absorption (which most of us do), then few much-needed nutrients of what you eat/drink are getting into your body, nor is the expensive treatment you're on. Your immune system is also necessary for successful treatment - no magic antibiotic or herb can heal you without the support of your own immune system.

IMO - step one for this treatment is to first, heal the gut. This involves whole foods, preferably in liquid form (of course, you can puree just about any veggie but there are also good, low sodium soups sold now - many are organic). There are food powders out there - I drank it for a couple of years. They helped keep me alive but they are best used in conjunction with real foods. Bone broth, chicken stock - these are critical to help healing. I also made progress with aloe vera juice (organic, filleted).

Now is the time to invest in your foods - organic, non-GMO, good whole foods, no processing, no chemicals, no sugar or simple carbs. Give it 4 weeks of diligence in your diet and you'll see progress... and the healthier your gut, the better your treatment will work. You'll then be able to try some of the herbs bluelyme suggests and other healing support.

If this doesn't work, you need to be under the care of a progressive gastroenterologist. There are very few of them - I can give you a recommendation for one in San Diego but he doesn't take insurance. Aside from any other issue (cancer, genetic disease) he'll tell you the same thing we all just did.

Hope this is helpful!

-p

No - I didn't try rifampin... LLMD discussed it with me but I don't remember why we went straight to the vanco. She mentioned in my appt a couple days ago that vanco also hits babesia (I'd never heard of this so can't really explain it) and that might have been the reason. Also, vanco is prescribed for c diff and she might have been strategizing to avoid that whole mess. Good question.

I have to check labs WEEKLY, so this is costing me another $200/month. I wasn't aware of this requirement - neither was she. Apparently, the pharmacy and/or the home health care business requires this frequency to ensure that optimal levels are maintained (vanco has a 12-hr half l life, so I take doses 2 b.i.d.)

-p

Thank you all for the answers. Does anybody know if tinctures or capsules are easier on the stomach because I have both and feel very cautious about choosing one or the other.

Because the blood is bright red, it's at the end of the gastro tract - the very end of it. LOL! Otherwise it would be more black in color and likely 'granular', like coffee grounds. My hubby had a massive stomach bleed (lost 45% of his blood, according to the doctors), so I know more than I want to about this part.

This might be helpful, it's Buhner's suggestions for Bismuth:
buhnerhealinglyme.com/herbs/bells-palsy-of-the-gut/

And this one is similar and I thought you may need to read it as well, as he has different suggestions for this person:
buhnerhealinglyme.com/symptoms/stomach-pain/

I hope you find something helpful in these!