lyme/bartonella symptoms come and go randomly

Hi saozemko - welcome to our community!

It is not uncommon for symptoms to get worse...or new symptoms to appear after starting treatment, unfortunately.

I can't say that I feel better after eating, though...but we're all different in our response to things.

How long have you had symptoms?

If it's a long-standing bartonella infection, minocycline and biaxin may not be enough.

We encourage all new members to take a look through the thread at the top of the page titled: "New to Lyme?..Start Here!" It's packed full of useful information.

Did you LLMD discuss detoxing while you're treating? It's very important - to help with the symptoms.

Here is a link to a website with a lot of great detox ideas:

www.tiredoflyme.com/detox-methods.html

You could start right away with the following:

- Drink at least 8 glasses of water daily'
- squeeze the juice of fresh lemons (organic preferred) into some of the glasses. (Drink with a straw - or you could damage the tooth enamel and/or rinse your mouth with clear water water after)

Make sure you're taking a good probiotic daily..and also something to support your liver (eg. Milk Thistle extract)

Then add in one new detoxing regimen every few days...

Hi Saozemco!
Welcome to our community! I'm so glad you found us.

As Girlie said, if you haven't yet, please do take a look through the "New to Lyme?" thread that sits at the top of the forum, as it's packed with helpful information.

I also would ask about detoxing. It's a very important part of us being able to tolerate treatments often.

Do let us know if you have any questions and how we can help!

Thank you all for your warm welcome and advice :) The Lyme was diagnosed in July early july I had the rash on the back of my leg so painful and my body was painful to the touch. I was put on amoxy for 6 weeks by a regular doctor and honestly didnt feel worse i felt better. Then off it for a month and symptoms started "returning" tingling in my shoulders, feet falling asleep, joint pain, but not really headaches. She gave me another 2 weeks of amoxy but i also set up an appt with an LLMD in Lexington, Va.

I met with her and she was saying the symptoms i had meant that I probably had a co-infection so she tested my vitamin D, my inflammation (which apparently is pretty high), and for bartonella and babesia. She started me on just biaxin first until those results. Well the Bartonella came back positive, oddly enough it came back as Trench Fever.. I am a clean person, I have NO idea if it is related to the tick or not. (my kitty cat has been sick since May and bloodwork testing and 4,000 later guess what he has bartonella, but it can;t be the same kind so I am so totally confused). So she started me on minocyclin as well. The bloodwork showed it as coming up as a recent infection so not like I got it a long time ago. She was also having me take 30 drops twice a day of stevia exract in alcohol to help with the lyme.

I would say that the symptoms started getting "worse" soon after adding the other antibiotic. For example this morning It took so much energy to get out of bed and walking up stairs is hard work, but once up i felt better. Though my legs are still sore, and my shoulders are sore and tingling on and off. It is so weird. Last weekend I went to meet a friend and chatted that is it for 4 hours. After that my throat hurt, and I felt horrible absolutely horrible, and I did nothing! i had had periods of just crying randomly for no reason at all, starting arguments with my boyfriend for no reason, and he unfortunately is not that understanding because he thinks I can control it...

She didnt talk to me about detox honestly. Nothing about taking a probiotic. I do make a shakology shake daily and I know it has a lot of good stuff in it but besides that I have not changed diet.... I did just get some of the Dr Teal's Epsom salt for detox today so was planning on doing that later today. I just wonder obviously since I came up positive for both of these but I dont seem to have "severe" symptoms like others what might be different about me. I also lost a good amt of weight, but that co-insides with why i was started on adderall for my ADHD (which btw taking it does NOTHING for me anymore since all this).

Yes Bartonella Quintana is different from Bartonella helselae (sp?) which is cat scratch fever, that is where I get extremely confused. I know she had wanted to see me sooner than my next appt next week but being as she is only open during work hours and is 1.5 hours away i cant come more than once a month....what type of pribiotics are good but not going to make me go even more broke? lol

Cats can carry Bartonella quintana as well as other strains of Bartonella.

Also be sure you are detoxing well - we have some good detoxing suggestions in our "New to Lyme?" thread that sits at the top of the forum, and this is another good resource:
www.tiredoflyme.com/detox-methods.html

Thanks, Traveler - I wasn't sure about that.

Huh, so he started showing the Bartonella symptoms in May, or well the weird and random things going on with him including weight loss, swollen paws at night, throwing up, itchy, licking etc. I didnt have my rash show up until mid June... My cats don't go out, are on flea control, etc. So either I got bit by a tick and it took over a month to show the rash, and then I gave him bartonella or they are both unrelated. That is something I am trying to figure out....

What treats cats and what treats humans are not always the same.

Bartonella Quintana is carried by a louse (singular for lice), so your flea and tick meds may not cover this.

Stiff neck, tight shoulders, eyes tired and hurting are all common symptoms, yes. Many of us don't have to be on a computer to feel this way and much worse.

If you haven't yet, you can get started with detoxing and eating a healthier diet right away and that will help. You can find detoxing suggestions in the "New to Lyme?" thread and here:
www.tiredoflyme.com/detox-methods.html

For me, I go through periods now where - even though I drink a lot of water - I seem dehydrated.
My mouth will be dry, and I get the cracks on the corners of my mouth.

I take B12, too...and my levels are good.

Even though I'm dehydrated...I'm not thirsty...it's strange.