Relapse

Hi everyone. I was diagnosed with Lyme in 2012 after 6 months of weird things I couldn't explain happening to me.

I finally asked for a Lyme test (not igenex because I didn't know. But here's my story.

Age 19 in may 2010 woke up one day with the worst unrelenting migraine imaginable. It passed and never happened again.

October 2010 went to the dr with a small and I mean barely noticeable ache in my right lower belly. Resulting in an emergency appendectomy. Inflamed but not ruptured ( I now blame Lyme)


Felt great. From 2010-


November 2011 wisdom teeth removed

December 2011
I suddenly before bed thought I was having a heart attack.
Went to ER and there wasn't anything wrong. From then on I had weird yellow poop massive panic attacks, moving pain, restless legs, brain fog, face twitches, all put off in stress by my Dr and put on zolof 😳

January 2012

Multiple ER trips and Dr appoint mental for weird things happening. NEVER ONcE and still to this day have I had a Fever or a swollen lyphnode.

April 2012

Finally talked my Dr into a basic Lyme test. Results a few hours later with a call telling me I was MAJORLY infected with Lyme.

Put on Doxy for a month. Got better ish. Lived my life for the next two years With acid reflux, yellow poop(I now know was candida), muscle pains and poor sleep.

October 2013
I go into a divorce and go into deep depression.

February 2014
Found and saved by Jesus Christ!
Started a fast for 7 days with just water. Joined a gym and shed 72lbs in 6 months! I wasn't fat but I was big I'm 6'5" tall. I felt absolutely amazing and Lyme free from February 2014 till.....

November 2015
I ate a bag of prunes. BIG mistake. You might be laughing but I was 100% great till this. After I ate the whole bag of prunes that night I could feel my intestines exploding. I'm pretty sure any good bacteria I had in my stomach went down the John. The next day the yellow poop started back up, over the next few days I stopped my strict diet (no carb,gluten,sugar) stupidly.

Over the next month the constipation returned with the yellow poop. But I could still work out (that was declining quick). This continued till.....

May 2016
My shoulder started hurting like I tore my rotator cuff. I had a jolting pain in my upper 2 ribs that continued into my right nipple.

July 2016
Anxiety returns, shoulder is killing me, digestion sux, pain everywhere but no swelling and my normal temperature at idle not working or moving around is friggin 96.4. I knew right then my Lyme was back.

Sept 2016
Deep pain in muscles, brain fog, left leg and upper right shoulder into my back hurts consistently unless I lay down, ( I feel great laying down haha)

Current
Pain down both legs (mainly left), right shoulder, NECK, ribs. I have weird sensations in my groin left arm, left ankle, weird pains in my wiener.


Tests currently done since may 2016
Negative chest X ray
Great EKG
Great blood pressure
All blood work is wonderful
No STD's
Dr says nothing is wrong with me. Haha Lyme it is

Hi Gpzib7 - welcome to our community!

I'm sorry you have lyme, but am glad you found us here.

You were undertreated - one month of doxy is not sufficient to treat a long-standing lyme infection.

You also most likely have at least one , or more coinfections which weren't addressed.

My advice is you seek out a LLMD (Lyme Literate Dr.) - as they are the 'specialists' when it comes to Lyme disease.

You can ask the forum members for help: just start a new thread titled: "Looking for LLMD in/near______ "and fill in the blank.

You can also contact ILADS Physician referral system:

ilads.org/ilads_media/physician-referral/

We encourage all new members to take a look through the thread at the top of the page titled:"New to Lyme?..Start Here!" It's packed full of useful information.