Heading into November, my 11th month of beginning to look at this as if it is lyme + co-infections: my monthly body update.
Of late: headache, ear pressure, GERD and nausea, sweats, not managing stress very well, depression/shame, high liver enzymes, a bit of bursitis in my shoulders flaring up, dry skin (had this my whole life), short term memory wonky, hair loss, pain flares.
Other pains related to other things: neck (4 slipped discs), right hip (from a dance issue), bottoms of feet are sore after dancing this weekend.
IMPROVEMENT
January - I stopped dancing
February - after brain aneurysm repair, walking very slowly, 10 yards
This past weekend: I managed energy to drive to Los Angeles to rehearse for 3 hours and also to rehearse for 4 hours yesterday and have a week ahead of me of working during the day, dancing at night, with a performance weekend in LA, then SB. I am not eating optimally, of course! My tribe is here and we are in celebration mode.
Current protocol: My GP Dr. wanted me off all herbs and supplements, but last week I decided to re-integrate my cats claw/Japanese knotweed and hottouynia tinctures and felt kinda herxy indicating the body is not in balance ( a new word!)
My action plan:
* have the one last treatment to see that the aneurysm has held
* after the brain aneurysm follow-up procedure begin to re-integrate my other supplements.
*Get a protocol adjustment with Julie McIntyre in February, integrate some coffee enemas.
*Consider that the hair loss is related to the thyroid. Two Dr.'s said that given my blood work, it isn't thyroid, but I think CD here looked at the bloodwork and thought I did have an issue with thyroid function. In that this isn't clearing with treatment, figure out how I can treat myself for this as a test without a Dr. Is there a place where I can get desiccated thyroid?
My symptom list in February
BODY ISSUES
I prepared this before going in last week Tuesday for an aneurysm repair. I don’t have energy to track symptoms so I am letting go of this for now. I am focusing on rest, good nutrition, and my goal is to be able to dance again. I’ve grown so weak, fatigued, and other crap, my creative life has become all about
stillness/mindfulness/gratitude, no active flow.
So frustrated with body - thought to begin keeping a journal of what I eat and what is going on.
Have been in good health my whole life, with the exception of some accidents, and a really gnarly case of shingles when I was 29 (I think, maybe 28). I have 4 bulging discs in my cervical spine. The past few years, in the fall, I’ve gotten a nasty cold. Last season it was with a fever, body aches, bronchitis - 3 1/2 months and also had a headache that lasted 3 1/2 months. I have really driven my body hard in life pursuing my passions and holding down a job to pay the bills.
ACTIVITY: I have cut back on activity and simplified my life: day job, eat well, rest. I am taking a ceramics class and do this one night per week.
2/15/2015 Cut out Cats Claw and Chlorella to prep for procedure. Not experiencing any “herxing”,which is what I think was happening 24 hrs. after I used it, and also, MOSTLY OUT OF PAIN from the pain meds, but all plugged up. Taking it easy until procedure. Can walk around 20 yards, then head hurts, so stop walking. Having the aneurysm treated may clear other stuff up.
Chest pain/heart
was out for dinner with friend, started getting passionate about
something, heart/chest pain. Eased up when I chilled out. Lasted around 45 minutes.
Headache
Last season I had a headache that lasted 3 1/2 months. In 2015 I had a headache at least once a week, it became a daily headache in September. 5 months into the headache - although it is there - it hasn’t been as debilitating (have made some nutritional/supplement changes). It feels sometimes like something is shifting/moving in my head. I have detailed notes of the headache.
Weight Loss
I was running around 105-106, one month, down to 97 lbs. This hasn’t been intentional. Have made nutritional changes no sugar, no caffiene, mostly no alcohol (had a glass of beer last night), local organic produce, low sugar fruits, eggs/shrimp/tilapia nuts and seeds for protein, been working on cutting out gluten next.
No Appetite/Nausea
The nausea has improved, but I don’t have much of an appetite, I force myself to eat when I am not hungry.
Digestion
Constipated. It feels like it hurts for things passing through my bowels, right side of body. Use a product from TJ’s when things really seem plugged up, and adding popcorn seems to help.
Tremor
mild shaking in my left hand, sometimes my right
Fatigue
Slight improvement. I run out of energy around 5:30 pm. In bed by 8:00 - try and stay up until 9:00.
Sleep difficulties
Sometimes trouble falling asleep, staying asleep, pain has been so bad at times it keeps me awake.
Extreme thirst
I have never been one to drink much H20, extremely thirsty, can’t seem to get enough liquid. Dry lips, dry inside of my lips.
No Libido
My spouse has this too.
Cough
That seems to come and go, and isn’t attached to any sort of cold or anything. My spouse has this too.
Losing strength
Trying my best to keep up exercises, losing strength and stamina. Not able to dance.
Winded easily
I began to notice this a year or two ago actually. Difficult to walk up hills/stairs, get winded really easily. Sometimes it feels like I am not able to take as full of a breath as I used to be able to.
Difficulty regulating temperature
Get really cold, can’t seem to get warm, get in bed to warm up. My temperature has been running 96.8-97.4 when I take it. Also get hot and itchy and sweaty that feels really different than the hot flashes I would get while going through menopause. I looked in the mirror the other day to see if my face is flushed when I am hot, and noted it is hot.
Skin
itchy on and off, different parts of body
dry, scaly skin
Dry inside of my mouth
Growth: question about
a growth that was white and has turned brown, now black - just because literature says you should ask your Dr. about
this. Saw Dr. today, he said it was benign.
Have noticed these tiny red dots that appear on my chest, belly. Stephen has these two.
Body Reconditioning
Part of this is process, and what I was interested in exploring, but part of this is just a loss of strength, getting weaker and weaker, first feeling winded walking up hills.
Hair
Hair loss: head, under arm pits, legs, pubic hair (almost bald - ha ha ha!) - I want to know if this amount of hair loss is normal for post-menopausal women. Stopped monthly flow - I think 7 years ago.
Very dry hair
Muscle
muscle spasms and tightness that goes around different parts of the body.
right thigh underneath, left thigh on top and side, right calf muscle, left forearm, right forearm.
Joints
Comes and goes - bilateral shoulder pain, pain in elbows, knees, fingers.
Puffy knees, wrist pain - both wrists.
Spine
Pain and cricks in mid-back, neck area, low back no pain
Flank pain
For a number of years actually, pain in my upper right abdomen that wraps around the back, and under the ribs.
Feet
Soles of feet began to ache on and off now and then. I haven’t observed this in the last month.
Balance
Vertigo, dizziness, lightheaded, woozy - comes and goes.
Fell flat on my face 2x this fall. When I was getting up from getting something from the fridge last week I had to hang on to the counter because I thought I was going to black out.
Cognitive Issues
I had four episodes of suddenly not being able to find words, when I spoke, I noticed my speech was slurred, my neck was tight, and the headache intensified. The slurring of the speech seemed to last for a day, then would clear up. I have difficulty with aphasia. Although I feel like there is some improvement, I have noticed difficulty processing information, and not being able to comprehend things as well. My short term memory is really poor. I also have thought I was writing one thing and when proving, see I substituted a different word - both typing and long hand.
Swallowing
I experience difficulty swallowing on and off
Jaw/Teeth pain
On and off - seems to be improving - gets more intense when headache is intense
Ear pain/pressure
On and off. More intense with right ear
Eyes
Increased floaters (had this checked out already) With some headaches, pain behind eyes, more strongly behind right eye.
Itching
Itchy around joints. I observed an uptick when I added Cat’s Claw - especially my knees - hot and itchy. The itching around the knees has cleared. Then it moved to my elbows.
Crawling sensation
Feels like something is crawling on my scalp, itchy.
Managing Stress
I can’t manage the type of activity I used to - I get irritated really easily, frustrated easily, and don’t have much patience, also tend to get a little weepy (which is REALLY unlike me). Both my Psychiatrist and therapist say I am not depressed.
Brain Power
Don’t have the ability to process information like I used to. Can only do so much admin work. Seems like mental exercise at times increases the headache.
Mild Bells Palsy
I noticed this when reviewing videotapes from rehearsal and I was demonstrating a new dance technique I have been developing and in a really relaxed state, my right side droops. My husband also has this! His is more pronounced.
Right Breast Pain
Comes and goes. Last week it felt as bad as the shingles pain I had when I had shingles. The pain seems to wrap into the ribs. Also felt some in left breast.
Tinea Versicolor
I have had this on and off over the years. When they shaved my pubic hair for Thursdays procedure, I noticed I had a rash under the pubic hair! Oh no!
Partner
My partner has some similar symptoms. I have observed things cognitively about
him, and he can’t get comfortable to sleep, and wakes up in the night, disrupted sleep. So this makes me wonder if it is something sexually transmitted, or something in the environment, or maybe just a freak coincidence.
Frustration
There have been times when I think to myself, I can’t live in a body that is this miserable, and have seriously questioned if my physical body is crashing, and have wondered if I need to get my affairs together, or if I might not be alive for too much longer. Over the weekend, I felt a shift as if life was starting to flow back in me. I have never experienced anything like this in my life, and I’ve been through some pretty gnarly things.
Eyes
Sensitive to light
Ears
Sensitive to sound - ask my spouse to stop playing piano because can't stand the loudness
Auditory Hallucinations
hear blips and beeps
Post Edited (multifacetedme) : 10/31/2016 10:58:02 AM (GMT-6)