Tincture Ratio Question

Sorry, yes, Girlie is correct. That's what I was trying to say. I was really pooped and needed to get off the forum.

I feel like I was kind of hard on you, and for that I do apologize, but not only have I been down the road of serious/dangerous herxing, I've talked to a handful of other Lyme patients as they have found themselves in the same situation, and you have me greatly concerned about your health. A situation like this can get very serious very quickly if not addressed quickly.

We care, and just want to see you heal.

CD3764 said...
So sorry to hear of your issues, Mike!

I totally agree with Trav that you are herxing (I, too, never felt "sick" when herxing. Instead, my symptoms would ramp up - either in intensity or number or both)

And, I agree with her recommendations to significantly cut back on your herbs until the herx settles down.

However, once you're able to slowly re-start the herbs, please know that both Buhner (and the Buhner-recommended herbalist I see) recommend taking both forms of Cat's Claw for those with neuroborreliosis.

Many of the symptoms you've shared are neuro in nature and you would therefore benefit from Chinese Cat's Claw (Gou Teng) in addition to "regular" Cat's Claw.

In fact, I share with you my regret that I didn't contact a Buhner-recommended herbalist much, much sooner in my journey.

My treatment protocol has been streamlined for my needs and is much better targeted than what I put together for myself.

The 2 herbalists I called have very reasonable rates and do phone consults. I've only had 2 consults thus far totalling 2 hrs. worth of consult and the total cost was less than one regular LLMD appointment that lasted 15 minutes.

Here's a list of Buhner-recommended herbalists:

buhnerhealinglyme.com/resources/herbalists/

Good luck and hope you feel better soon!

Thanks and I had on my own, come to self diagnose I should add the other form of cats claw but now need adivice. Since I would be taking BOTH, should I perhaps cut the individual dose by 1/2 so the total COMBINED dose of the TWO now equal the 1 teaspoon suggested dose in the protocol?
In other words, maybe take 1/2 teaspoon of each in stead of the suggested 1 FULL of each?

And I have stopped 100% of ALL herbs including Japanese Knotweed, was I supposed to continute that while stopping all the others? When I heard stop, I STOPPED. ALL Herbs period so Traveler wouldn't beat me! (I heal-I obey cuz I have been married a long, LONG time!)

Since Japanese Knotweed has antimicrobial properties and you are herxing badly, I'd be inclined to stop all herbs until increased detoxing brings you back to baseline.

Then, slowly re-start each herb and Japanese Knotweed would be a good start.

I hope you also plan on taking Red Root because it works really well to clear the RBC rouleaux that is created when Bartonella die. It's also great for clearing lymph - one of the body's main detoxers.

I got a piece of great advice during my last consultation with Tim Scott: add 3/4 tsp Dan Shen (Salvia Miltiorrhiza) to my 4x daily doses.

In addition, Tim told me I could take that same amount as frequently as every hour to calm down acute neuro symptoms.

Dan Shen also has antimicrobial properties and should be titrated slowly.

I'd been taking 1/2 tsp Dan Shen 3x daily for over a year and find that the increased dose and dosing frequency + dosing during acute times has made a significant difference in my neuro symptoms after only one week of the new dosing regimen.

Please understand that the doses listed in Buhner's books are recommendations - we each need to find what dose works best for us.

I happen to be one of "those" people who need larger doses but am finding success with a smaller number of herbs. This is all per Tim Scott after following Buhner's full Lyme, Babesia and Bartonella protocols at the published doses for a year on my own.

As you might imagine, I spent a LOT of money on herbs (even after I decided to make my own tinctures).

I really think a consultation with one of Buhner's recommended herbalists is money very well spent.

Well here is my 2 1/2 day update I promised.

Tomorrow I resume my protocol and will return using all drugs just as before at FULL dosing that I was on before as well.

Reason is, NOTHING changed in ANY sort of way, period. I feel the same, EXACTLY the same. NO feeling, no physical changes, nothing. ANYWHERE. I still think it very likely the massive tumor that was surgically removed from my spine 2 times now, has returned since it did this similar paralysis before but not quite THIS severe in it's totality. But like then, NOBODY will "open me up" to SEE. Because they say if not visible in their MRI tests, they simply can not do that. I pointed out several problems with that philosophy.
1-How did they do thing and find things BEFORE the MRI testing existed?
2- This tumor has NEVER shown up before either even when given just hours before the surgeries that lead to the past discoveries! So, what good IS any MRI test anyway?

So whatever is doing this to me, I give up. It could also be the Lyme or who knows anymore....I am to the point of not caring , truth be told. I was going to flat quit today but the wife gives me her big sad eyes and I cave in. AGAIN.

Since nothing got any better, I am returning to all herbs in a couple hours when I get up and at full dose. If I ever feel I am having this Herx thing happening, I will dial it back. But Since I feel 100% EXACTLY as I did 2 1/2 days ago, no point is resuming at any lesser dose. I think the reason my legs failed SO signifcantly in just days, again, in my opinion, is just the progressionof the Lyme, the tumor returning or whatever else may be happening. Doctors will do NOTHING no matter how hard I have plead my case. Drugs do NOTHING no matter how MUCH or little I take. So I will use the last of my 1 pound powdered herbs and capsules I make till done, then the last of my Sage Herb Tinctures and my all new 16 ounces of Cats Clat (T) Tinctures and Japanese Knotweed Tinctures arriving from Hawaiin Pharmicy Monday. Then I suspect I walk away. OK, so wheel myself away in one of my new wheelchairs as I see NO chance of my continuing all this expense. I will have had 4-5 months and a few thousand dollars invested by that point and if not one LITTLE bit has improved but worsned at this horrific rate as it has for ME in the past 2 1/2 months since I began this protocol (plus other assorted herbs and endless supplements etc). I know this is for the "long haul". But I am old. I am broken. VERY broken. Unlike many here, I jst spent 2 years 8 months in a Hell most could never imagine and very few could possibly ever survive. I have no honest idea how even I survived. It seems I simply refuse to die? I am tired. Too tired to care much, I have FINALLY been worn down. I don't need any pep talk or cheering up, I am simply T I R E D beyone ability to explain. My pain is far more than from Lyme but have Pain Management every 30 days as the government requires for me to get Opioid medications costing over $6K per year from MY pocket after what my insurance pays.

Anyway, headed to bed, getting up tomorrow to brush myself up, start again at FULL blast and take it all from there. I sure do thank all who have done so much to help guide me and I have ALWAYS done the prudent think and done ALL suggested to heed warnings. But now, I do this my way as I see best and hope for the best cuz my clock be a tickin!

Well, I can say that I understand. I was close to death after my pharma abx trial of treatment my first year after 40 years with these infections - and it's scary and difficult to hang on - but I'm glad I scratched and clawed my way out of that hole.

I sympathize with you greatly, and while I do understand, it won't stop me from worrying over you!! Lol!

So do please let us know how you are doing, and please do be careful. Let me put it this way - IF it was a herx, you could set yourself up for a dangerously strong herx, so watch your symptoms and please don't ignore them.

I think it's fairly safe to say we are all routing for you, Mike. Let us know how you are doing, please.

PS
Now awake enough to download my nightly sleep data I also see I had the first night in 16 days with more than 2.16 hours of deep sleep and more than doubled that. So maybe I feel better just from this alone? Whatever is going on, NO idea why I woke up with the bed literally soaking wet and with sweat, NOT incontinence

Deep Sleep
5:18 AM10:29 PM●●●●●●8:02 AM NOV 11-NOV 12
11:29 PM
7:02 AM
Deep
4:45 hrs
Light
2:30 hrs
Awake
0:18 hrs
Today

Oh joy, another epidemic ) Yeah I think I will still wait till tomorrow to resume my herbs? Unless of course playing herb hookie is fatal? The thought of resuming choking down over 100 pills a day again sets of my PTSD more than watching the "Story Of Viet Nam War in FULL HD" yesterday.... What on EARTH makes a network think showing something like that is paying respects to Veterans on Veterans day? I bet there was the biggest escalations of domestic abuse cases in history yesterday. SO glad I am no longer having to work in Law Enforcement. That was almost more stress on me than the past 18 months of the election madness.

On a brighter not. ALL this pain, misery, nervs & sweating with insomnia and such could all just be INSANITY? Boy now THAT would be nice. FINALLY, just one nice little disease all alone and by itself for once. Per chance to dream...

Traveler said...
I have to take nearly 100 pills a day myself - but a lot of that is due to a serious soy allergy, so I can't take a lot of 'combo' items, plus I use a lot of herbs. It is hard to swallow that many pills a day and still eat! But, my body needs the nutrition as well, so I keep plugging away at it.

LOL! It is one nice little disease - it's called tick-borne diseases.

Well I sure wish I could get some nice little and SIMPLE illness like the Plague, AIDS or Ebola. I am TIRED! I feel like a Hamster with just one too many revolutions on that old wheel.

Oh! I bought a new toy. SO excited. Talking about things that go round & round made me just think of it, and Amazon just delivered it a couple minutes ago:

/www.youtube.com/watch?v=btW0BrglwQk

Syphilis on steroids ..nightmare stuff

What's happening, Mike?

OH! LOL!

Syphilis is related to Borrelia (Lyme) because they are both spirochetal infections. Like Lyme, syphilis can cross over into the brain and require a very extended treatment. But unlike syphilis, Lyme is denied and treatments are very controversial.

At least that's what my 'take away' is.

Mike, I just want to add in my own wishes for your beating this blasted mess that has you down. I know that isn't what you're wanting out of your update.

It all puzzles me too, your legs' not working.

Somewhere and sometimes in the past 20 years of my advanced and untreated Lyme infections I would have incredible leg pain trying to stand up (not from too much weight at that time). It made me have bad dreams that I couldn't stand or walk at all, with or without pain - like what you are going through in real life!

And I hope it's not a tumor, like you fear, again.

I think we here get to the point we want to blame everything on the Lyme and co-infections, or herxing, as if all this isn't enough to knock us down, having unrelated issues is just to unthinkable.

We place a heck of a lot of hope and determination in being ourselves again, or as close as we can come to it.