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Posted 11/10/2016 9:37 PM (GMT 0)
Currently on Rifabutin/Minocycline and some of my symptoms have come back and are staying back. Not sure if this is herx or less effective abx so going to add back in Bactrim (which I did well on) and go to a 4 days on/3 days off pulsing schedule (since my symptoms seems to really bust out around day 5-6 off abx). Also starting up Pekana and Red Root since my lymph nodes behind my knees have been quite swollen of late.

I did an Ozone IV today first time. Don't feel anything yet. Was going to add in UVB but decided not to. I know others have tried this and results were mixed. I'm waiting for the UVLrX treatments to open back up apparently the company is updating their protocols so no the practice I go to isn't starting up any new patients until they complete (4-6 weeks I hear).
Posted 11/10/2016 9:44 PM (GMT 0)
Don't know what your de-tox schedule is like, but maybe you need to ramp it up a bit? That would definitely separate out the herxes and minimize them.
Posted 11/10/2016 9:46 PM (GMT 0)
hey july. detoxing does very little for me this is coming from 2 years of experience. wish i knew more why but i don't. i'm heterozygous on mthfr so maybe that's impacting it.
Posted 11/10/2016 9:53 PM (GMT 0)
Rikky how much ozone did you do?
Posted 11/10/2016 9:57 PM (GMT 0)
Rikky - even though you're not feeling like the detox is working - you are still doing it, right?


Have you tried Pinella and Burbur? That one plus epsom salt baths are two that do help me right away...or soon after.

I didn't get relief from Alka Seltzer gold...and also didn't notice anything with Charcoal.
I continue to take them though.

I have found that my flares/herxes are generally 'shorter lived' now...this took a long time - to happen. At least one year of treatment before I found the herxes would alleviate sooner.
I think it may have just taken that long to get my toxins to a low enough level.
Posted 11/11/2016 1:33 AM (GMT 0)
Krimpet I'm not sure how much O3 they put in the bag. I believe they injected 2 large needles worth. The needle and apparatus looked like a turkey baster lol.

Girlie yes I'm doing some detoxing mostly baking soda, ACV and lemon water. I've tried the epsom salt baths but every time (no matter the temp and/or the amount of salt) I get a flare in my head symptoms about 30 minutes after completion.

I have Pinella and burbur and tried it a few times didn't do anything.

My increase in symptoms comes and goes its never on a schedule which is weird.
Posted 11/11/2016 1:46 AM (GMT 0)
Mine aren't on a schedule like they used to be, either.

Prior to treatment, I would get a flare - late afternoon/early evening.

Since treatment...my flares can happen anytime...but generally more often and intense in the late aft/evening.

Sometimes I feel crappy all day.
Posted 11/11/2016 1:40 PM (GMT 0)
Rikky

How about dry brushing before your shower and a cold rinse afterwards?

These methods really help mobilize lymph.

And, while you might not think detoxing helps, it could very well be due to the fact that your body is overloaded with toxins. It takes awhile to get the toxin load down and often requires multiple methods of detoxing daily.

If you take a peek at the following thread, you'll see that many of us do a LOT of things to detox:

www.healingwell.com/community/default.aspx?f=30&m=3602759

Good luck!
Posted 11/11/2016 2:10 PM (GMT 0)
thanks CD. i do dry skin brush before a shower as well. i also try to get some jogging in a few times a week timing it a bit after abx to get maximum absorption as well as detoxing.
Posted 11/11/2016 2:17 PM (GMT 0)
Jogging that's great. How are you doing day after ozone? I would ask how much ozone because we all have different levels that we can handle. I did better at lower levels. I went beyond 70 one time and felt horrible. So 70 was about the highest that I could go. I think for MAH it's 200 or 220 as the highest. Can't remember the max for the UVBI.
Posted 11/11/2016 3:59 PM (GMT 0)
"I'm doing some detoxing mostly baking soda, ACV and lemon water. I've tried the epsom salt baths but every time (no matter the temp and/or the amount of salt) I get a flare in my head symptoms about 30 minutes after completion."

This is similar to what happens to me - only mine is not limited to my head. Try using the foot soak instead. This detox method "releases" toxins from soft tissues, and if you have quite a bit of toxins stored in the soft tissues, it quickly becomes overwhelming to the body. I have tried only staying in barely warm water for only 5 minutes, and I still herxed too much and had to rely on binders to keep from being bed ridden again at that point. So I stick to the foot soaks, and while they are not quite as effective at moving toxins into the bloodstream so they can be processed out, it still helps as it's a much slower way of doing this.
Posted 11/11/2016 4:00 PM (GMT 0)
Speaking of detoxing, do we need to do the detox teas 2 hours away as well from supplements, food, etc?
Posted 11/11/2016 4:30 PM (GMT 0)
Krimpet, I've noticed nothing from my ozone treatment except my head feels a bit hot this morning. I also restarted Bactrim this morning and that's happened to me before (pretty sure its the babesia) so don't think the ozone treatment did anything but lack of any discernible pattern in my symptoms its hard to tell anything.

Oh also started Pekana and Red root up again since my lymph nodes are swelling again after switching to rifabutin/minocycline.

Traveler I remember you telling me you had similar issues with the salt baths. I have a foot soak but its a pain given all the other stuff so haven't done it much.
Posted 11/11/2016 4:50 PM (GMT 0)

Rikky1 said...
Oh also started Pekana and Red root up again since my lymph nodes are swelling again after switching to rifabutin/minocycline.

For whatever it's worth, I continued with all my detoxing methods even after my lymph nodes returned to normal. I figured a clear lymph system would help me handle treatment better since the dead bug debris could move through my body more quickly.

It wasn't until I was no longer herxing that I dialed back on the number of detoxing methods I use. I've been working on my last 1% of healing for awhile now and I am still doing all that's on the list I shared in that March 2016 thread.

The Buhner herbalist I consulted confirmed what I've learned through research and what we say on here: it's the inflammation ala toxins (including dead bug parts) that drive our symptoms.

Think about the fact that there are people walking around with asymptomatic infections. Their immune system is keeping things in check. Well, that means their immune system is killing bugs. We all know killing bugs creates toxins.

These asymptomatic infected people are able to clear the toxins of the dead bug parts

Dealing with symptoms means we are overloaded with dead bug parts. Those toxins can get reabsorbed and exacerbate things.

If someone is backed up with dead bug debris, it's going to take a lot more detoxing....for a longer period of time to minimize symptoms - especially if there is ongoing killing.

Yes, symptom relief can be expected when bug load goes down but it can happen sooner and to a greater degree if the dead bug debris gets moved out more quickly.
Posted 11/11/2016 10:18 PM (GMT 0)
cd3764 i'm not sure all symptoms come from inflammation. for example my wife recently had her C3a and C4a tested and they were within normal range yet she's got a myriad of symptoms. isn't this a case where inflammation isn't the culprit but the live bugs doing their work on her?
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