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Looking for LLMD in Madison, WI

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Lyme Disease
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Posted 11/11/2016 7:20 PM (GMT 0)
Hello,
My 4 year old was just diagnosed with Lymes. He had two bloodtests ordered by his Pediatrician after 5 weeks of symptoms originally though to be a virus. Then, possible Lupus.

He has been placed on a 21 day course of Ceftin (he's allergic to penicillins). After reading a bit of the many threads on this site I am worried that will not be enough to rid his body of this bacteria. I'm also worried that it is been too long before we started treatment (5 weeks since he had his first symptom - high fever). We never saw a tick on him, or a bullseye rash but our backyard is full of ticks).

I'm terrified that he will have issues for the rest of his life if we don't treat this correctly now.

Please help me find a competent LLMD(s) in the Madison, WI area.

Thank you to anyone who reads this and replys.

Sara - anxious Mom
Posted 11/11/2016 9:17 PM (GMT 0)
Hi Sara - welcome to our community!

I'm sorry your little boy has lyme disease....but i'm glad you have reached out to us here.

Treatment should continue until he is symptom free...and then treat for several more weeks.

We encourage all new members to take a look through the thread at the top of the page titled: "New to Lyme?..Start Here!" It's packed full of useful information - symptom lists, info on probiotics, and detoxing ideas.

What you can do now...while you're waiting to see a LLMD - is make sure your son is detoxing - regularly .

Start with a few detox methods...and every few days add in another one.

Here is a link to a website with a lot of good ideas for detoxing:

www.tiredoflyme.com/detox-methods.html


To start - make sure he is drinking lots of water daily.
Squeeze some fresh organic lemon juice into some of the glasses. (Have him drink with a straw...so the lemon doesn't damage his tooth enamel)

He will need to be on a good probiotic, and also something for liver support.

The above need to be taken/done daily. Then you can slowly add in more detoxing...warm epsom salt baths, dry brushing before the baths. Taking a binder such as activated charcoal will help flush out the toxins.
Posted 11/11/2016 9:19 PM (GMT 0)
I also wanted to say - 5 weeks of symptoms - is still early in the 'game'.

Don't worry...you've acted very quickly, Mama.
Very wise of you to seek out a LLMD.
Posted 11/11/2016 9:31 PM (GMT 0)
This community is wonderful, and I'm so thankful you are all here!
I will look into the probiotics and start detoxing. THANK YOU as well for letting me know 5 weeks is early in the 'game'. I had a hard time finding time frames online. That made me feel a lot better.

Where do I go to find an LLMD?
Posted 11/11/2016 9:59 PM (GMT 0)
Hopefully this thread will get you some recommendations from members.

Not all LLMD's will treat children...so you may have to travel a bit...is that doable?

Not all members are on every day...so keep checking back on this thread...
Posted 11/11/2016 10:12 PM (GMT 0)
Makes sense! I will wait patiently. :)

I will certainly travel if necessary.
Posted 11/11/2016 10:20 PM (GMT 0)
You can also contact the ILADS Physician Referral:

ilads.org/ilads_media/physician-referral/

I don't know if you're able to specify a Pediatric LLMD in the search.

But, you can call the names you're given and ask if they know anyone in the area who treats children.
Posted 11/12/2016 12:06 AM (GMT 0)
Fox Valley Wellness Center in FDL
Posted 11/12/2016 2:00 AM (GMT 0)
I'm in Madison, Wi and there are no LLMDs here. There is one in Fondy, there is one in the Dells and the one I go to is in Waukesha.
Posted 11/12/2016 7:29 AM (GMT 0)
I know a good one with a location in pewaukee and minong. Has experience with children cause she also treats Lyme autism.
Posted 11/14/2016 5:19 AM (GMT 0)
Thank you all so much for the info. I would be interested in checking out the Dells. Fondy and Pewaukee LLMDs. How can I get the info?

Update- after being on the Ceftin my son's symptoms are improving. Have started detoxing with lemon water and epsom salt baths. Still want to make sure I am doing all that I can for him.
Posted 11/15/2016 4:00 AM (GMT 0)

sdemien said...
Thank you all so much for the info. I would be interested in checking out the Dells. Fondy and Pewaukee LLMDs. How can I get the info?

Update- after being on the Ceftin my son's symptoms are improving. Have started detoxing with lemon water and epsom salt baths. Still want to make sure I am doing all that I can for him.

I sent you an email with all the information.
Posted 11/15/2016 9:58 AM (GMT 0)
Hi Sara,
Yes be encouraged there are many of us from southern WI specifically Madison area that are in treatment for Lyme's so there are a few goo ones but as stated may have to travel a little ways. Actually all four of my children and myself have Lyme's and how I wish I would have noticed sooner. We were always picking off ticks but never had a bullseye rash so never thought of it until much later. Anyway doing better now so I am very glad he has you already on top of it. You are correct the short course will not be enough to rid the bacteria so glad you are seeking LLMD. Also with our kids the probiotics made a huge difference.

And please feel free to ask questions.
Nick
Posted 11/15/2016 4:33 PM (GMT 0)
Since being on the antiobiotic my Son is feeling better and back to himself. So good to have him back again!

Thank you so much everyone for sharing your information and encouragement. Madisongirl, thank you for your email! I have picked up some probiotics and will be seeking out an LLMD in WI to treat beyond the one course of antibiotics. I wish the whole medical community was up to date on Lymes diagnosis and treatment. It just seems wrong that it isn't tested for more often especially in areas where Lymes is prevalent. Thank goodness for you folks!
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