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Posted 11/21/2016 5:23 AM (GMT 0)
I'm really at a loss right now. I feel like I was making progress and all of a sudden I've lost a lot of weight I don't have, the skin on my hands looks thin and veins look unhealthy. Plus, my hands get cold and sweaty randomly. My eyes are sunken in and the outside is red and puffy and my eyes are red quite often. And it seems my nails don't want to grow and the thrush seems to be improving but the lymph node on my neck is still hard. Any ideas.

I used Desbio EBV for the month of September and on the desbio series for Bart.

Can anyone relate? Or have any experience.

Logan.
Posted 11/21/2016 5:30 AM (GMT 0)
Logan,
When I come to an impasse with something, I switch my protocol up and consider what else it might be. It is a good idea to track calories with weight loss. Track what you are eating, what your caloric needs are, and make sure you are getting enough. Also, always going back to your healer with questions. Adding supplements to repair damage done by the bacteria is always recommended. For nails, I'd recommend adding gelatin - I used Great lakes, expensive but goes a long way, I'd add them to my morning green drinks. Are you working with an LLMD?
Posted 11/21/2016 5:54 AM (GMT 0)

LG13 said...
I'm really at a loss right now. I feel like I was making progress and all of a sudden I've lost a lot of weight I don't have, the skin on my hands looks thin and veins look unhealthy. Plus, my hands get cold and sweaty randomly. My eyes are sunken in and the outside is red and puffy and my eyes are red quite often. And it seems my nails don't want to grow and the thrush seems to be improving but the lymph node on my neck is still hard. Any ideas.

I used Desbio EBV for the month of September and on the desbio series for Bart.

Can anyone relate? Or have any experience.

Logan.

The only parts I can relate to is getting thin skin, bulging hand veins, cold hands and bad nails I am not sure about the Lymph node, I have to do daily massage draining for other issues.

I don't have the weight loss problem, I have the opposite.
Thyroid can mess with your metabolism when you have Lyme, I've read that Lyme actually keep you from absorbing the nutrients in your food, that might make you lose weight.

Different kinds of parasites that sometimes come with Lyme can make you lose weight.

Borrelia destroys collagen, and is probably responsible for the sunken look around your eyes.

Collagen and connective tissue damage is something I want to get repaired, and am looking into some of the suggested collagen supplements suggested in this group.

You can often get answers you're looking for by typing key words into our search bar above, and looking over previous threads about it. Some are older, but at least you will see what others have said about the same concerns you have.
Posted 11/21/2016 1:18 PM (GMT 0)
The others have given very good information. I've swung both ways on the weight.

Have you treated for Lyme though? Some of those issues sound Lyme related.

Lymph massages would likely help that hard kph node, and you can use warm (not hot!) compresses on it also.

When was the last time you had your thyroid tested for T3 and T4 levels? That might explain some things as well.
Posted 11/21/2016 1:55 PM (GMT 0)
LG,

Sorry you are going through this. I agree with Trav, have your T3/T4 and cortisol checked. For skin/nails/hair: good things for collagen are oganic bone broth with hydrolized collagen added to it, Biotin, Selenium, Vitamin C. Feel like I am forgetting something but that's a good start.

Feel better :)
Posted 11/22/2016 1:31 AM (GMT 0)
I have the collagen in the green can I think. I went over bloodwork with my primary today. He said my T3/T4 were in range but on the lower end. I was seeing a naturopath up until a month ago but plateaued with treatment. I am literally broke so until I can get back to work and pay for an LLMD. Now looking at possible coinfections. Even though I have yet to test positive for them in the past year of testing but I know the tests aren't great.
Posted 11/22/2016 2:25 AM (GMT 0)
LG,

I'm sorry you are having so many symptoms. Stephania and Eluethero have been a Godsend for me for both brain fog, fatigue and sort of feeling blue. I know everyone is different but maybe give them a shot. For anxiety passionflower or valerian tincture help a lot as does meditation. Feel better.
Posted 11/22/2016 3:43 AM (GMT 0)
LG,

I went through everything you described at some point.

I've gained weight back, and physical therapy is bringing back muscle that was lost.

I still have the darn puffy eyes and dark circles. But at least now I'm not a skeleton zombie and just a normal zombie.

So yes I can relate.

As others have said, I up'ed my food intake and huge increase in protein. I too take the collagen in the green can.

Are you able bodied enough to work out? I don't mean some crazy work out but just muscle strengthening exercises where you use your own weight?

I'm building muscle back and I'm learning that with lyme muscles are "use it or lose it".

The good news is weight and muscle does come back if you fuel the body right. It's not lost forever.
Posted 11/22/2016 5:02 AM (GMT 0)
For me ..the muscle wasting has been site specific ..then general ..my legs are looking old man thin ..and hands are as you say hollow ...
i believe its the nerves being effected ..it is like what happens to hiv patients i their wasting syndrom ...they thought that was cmv disseminatied ..

i have met a few people online with this ..a few had it reaolve and some it did not ...i believe its bartonella and mycoplasma taking down immune sx ...and a lower motor neuron dysfuntion occurs ...there is a thread on it i post many links ...one lady had it resolve after pulsing doses of mino flagyle cipro and bactrim ...mine began after bactrim ...

holding at bay with iv zith rocephin ,oral rifampin ,bvt rife and herbs ...if i could just figure this our ...

i will try to link other thread ...there is a guy on lyme net who did all of it and lost all of his muscle ...another guy said his stopped after 3 yrs of tetracyclines and floroquinalones .....one guy on lymenet euro did mino riffy and had it come back
Posted 11/22/2016 12:45 PM (GMT 0)

bluelyme said...
For me ..the muscle wasting has been site specific ..then general ..my legs are looking old man thin ..and hands are as you say hollow ...
i believe its the nerves being effected ..it is like what happens to hiv patients i their wasting syndrom ...they thought that was cmv disseminatied ..

i have met a few people online with this ..a few had it reaolve and some it did not ...i believe its bartonella and mycoplasma taking down immune sx ...and a lower motor neuron dysfuntion occurs ...there is a thread on it i post many links ...one lady had it resolve after pulsing doses of mino flagyle cipro and bactrim ...mine began after bactrim ...

holding at bay with iv zith rocephin ,oral rifampin ,bvt rife and herbs ...if i could just figure this our ...

i will try to link other thread ...there is a guy on lyme net who did all of it and lost all of his muscle ...another guy said his stopped after 3 yrs of tetracyclines and floroquinalones .....one guy on lymenet euro did mino riffy and had it come back

Mine is also "site specific". It was general weight loss at first with lyme but then became site specific. My upper body now looks "normal" maybe even a little doughy but legs started looking as you call it "old man" thin.

I said screw this and started muscle strengthening. Squats, stair steppers, heel raisers. Quickly I learn the muscle does strengthen, grow, and come back.

With lyme it's use it or lose it. Other "healthy" people can keep a level of muscle tone without working out. With lyme it's different, you have to work it everyday.
Posted 11/22/2016 12:46 PM (GMT 0)
Decarte,

How long after lyme were you able to work out? I feel like I have done anything since July. Losing all my muscle (I was pretty fit before lyme). Everyday I say "tomorrow I'll try and do a few hand weights." Then I don't. I don't know why that is. Interested to hear what you do and how much.

Bluelyme,

Are you suggesting that the abx. make muscle wasting worse? I want to nip this in the bud. For now I'm trying to do herbs only. Not sure if I'm on a fools errand.

I have been taking bone broth with hydrolized collagen, selenium, vitamin C, biotin. Not sure it's doing anything. I feel my eyes less puffy and dark hollows are much better but not sure which supplement/herb is helping.

What are your view on the zapper? My brother sent me a zapper which I havent' tried yet (I'm super sensitive). It's the smaller one based on Hudda Clark. You wear it on your wrist. Forget the exact name right now. Thanks.
Posted 11/22/2016 12:57 PM (GMT 0)

Huddie said...
Decarte,

How long after lyme were you able to work out? I feel like I have done anything since July. Losing all my muscle (I was pretty fit before lyme). Everyday I say "tomorrow I'll try and do a few hand weights." Then I don't. I don't know why that is. Interested to hear what you do and how much.

Bluelyme,

Are you suggesting that the abx. make muscle wasting worse? I want to nip this in the bud. For now I'm trying to do herbs only. Not sure if I'm on a fools errand.

I have been taking bone broth with hydrolized collagen, selenium, vitamin C, biotin. Not sure it's doing anything. I feel my eyes less puffy and dark hollows are much better but not sure which supplement/herb is helping.

What are your view on the zapper? My brother sent me a zapper which I havent' tried yet (I'm super sensitive). It's the smaller one based on Hudda Clark. You wear it on your wrist. Forget the exact name right now. Thanks.

Probably 3 months, I had the strength, but there was other issues. I would say 5 months where I was in a place, mind and body, where I felt well enough to do a legit work out. However I didn't. And then by month 9 I notice muscle wasting from a lack of activity (my fault).

Now I'm in month 11 of lyme and been working out 5 days a week for almost the past month and see measurable improvements. I'm going to stick with it.

Huddie, were you the one that told me Stephania helped with the eyes?
Posted 11/22/2016 1:07 PM (GMT 0)
Decarte,

Wow that is great. You have inspired me. Are you worse for wear afterwards? That is what was happening to me. I would try to work out and then feel much worse. Not sure where that sweet spot is.

Yes, Stephania has helped me. I take it because I can't tolerate JK. I noticed a few positive changes in my eyes and then read that it helps lyme eye issues. I never had floaters or any of that stuff. Also started all the collagen around the same time so it may be that as well.
Posted 11/22/2016 2:47 PM (GMT 0)
I wishes for some chubbies to find their way to you.


With love,

a fellow skeleton
Posted 11/23/2016 7:49 AM (GMT 0)
@huddie
do the zapper ..9 or 12 v can help paralyze parasite (heminith) do a sppon full of castor and some magnesium and see what you see.

so david martz would treat als patients ...and he said we need to treat hard enough to not let bugs do any more nerve damage and and not so hard that the dieoff and endotoxins create more cell damage ...i am thinking i was so infested that i killed so much so quik ...my llmd has been fighting lyme for 20 yrs ,has used iv abx hbot silver ozone h202 and herbs ...she said throw everything in the book at it ...and a h202 followed by a silver iv seems to be the only thing that they cant become resistant to...i am having gains with bvt ...ellie lobel had babesia ...my friend had erlichia they are back to work
Posted 11/23/2016 12:40 PM (GMT 0)
Bluelyme,

Thank you. I usually need a translator for your posts. I don't know what so many things are (yet). I have a zapper. I small one that goes on the wrist - it's like the Hudda Clark. Are you suggesting swallowing the castor oil? Not sure about that one for me. I did have a terrible herx last week that may be from castor oil/eos (still not sure - or it can be a cold virus).

Article in November's Bazaar about apitherapy (Bee venom) so naturally thought of you. They even talk about Eva Sapi. It works for many, not for others.

What H202? Is that oxygen therapy - the chamber? What is Hbot?

I do need to get more aggressive but don't think I'm there yet.
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