Don't know where to start after Lymes diagnosis

I just got diagnosed with Lyme's from my naturopath. Was going in for Prolotherapy and platelet rich plasma and this Dr. finally took me seriously and ordered a IgeneX lyme disease test. I had a western blot test in 2009 and the first one came out positive and he took the second step lyme test and said it did not meet the criteria that would confirm my diagnosis. By currently recognized standards, you do not have lyme disease. So at that time I dropped it although I had a tick in my head when I was like 6 and still have the scab that bothers me on the top of my head. I have told every Dr. about it for years, with no diagnosis even though my whole body has fallen apart. as far as joints cartilage, ligaments in all extremities.. I was also bit last year by what looked like a horse fly, it was a big huge black fly and am wondering if I got infected again? I have not done well at all this last year, it seems to be effecting me worse...
So my question is that I have my prolotherapy Dr. in Portland Oregon that is in a office with like 30 different Dr's and I was diagnosed their by him. He wants to treat it with a couple of other Dr's their, one an MD, she is an MD, ABIHM . but I am not sure if it is a Iliad's Dr. or an IDSA type of Dr. I know he is saying that the CDC says it is not contagious or it cant be passed on from mother to child. But I have read so many people say it can be and is contagious. also he only wants to do 6 weeks of doxycycline 100 mg 2 x a day. and then he wants to do ozone therapy intravenously, although he says it will ruin my veins. I did email ILiad's and got a name of a Dr. in Corvallis that sounded promising.... when I told prolotherapy Dr. when he called to check on me he said beings he was doing prolotherapy and they knew my case that it would be bennificial to me to be seen their where they could all coordinate my care... Dr in Corvallis is a Dc, Nd, DABCI Dr. when I looked up DABCI it said they are the cream of the crop. she has 5 out of 5 stars of 7 reviews. and says she treats Lyme. nowhere on the other MD. websight does it mention Lymes Disease. I just don't know what way would be best as far as treatment, any suggestions? I do need Prolotherapy because all of my joints go out. shoulder, hips ribs... shoulder blade from front to back of ribs. He has somewhat stabilized them after like 5 months of double back to back appointments that costs me like 1700.00 a month plus hotel room and food and travel expenses. Plus 600.00 a month for his herbs that he wants me to take.
I don't know if it is the doxy or if the spiroketes are going into my brain but I really cant hardly concentrate enough to write this, so I am sorry if it is so long and drawn out... But I need help, the MD is supposed to call me today for a phone appt. and I need to know what I'm talking about ...The MD can't see me until the end of December and prolotherapy Dr. said to not take Japanese knotwood or other bruhners protocol until after the appointment. but it would be nice to keep this stuff out of my brain and heart! Plus prolotherapy works off imflamation and so I don't know if I can even do the protocol that knocks down the imflamation. I need to though because I cant breath because of all of the inflammation. and ice is the only thing that really works for my breathing but prolo dr. says no ice... so I'm pretty miserable. expecially with the herxing from the antibiotics.... IM A MESS!!!! PLEASE any advice is so welcome!!!

Hi Lindylou1967 - welcome to our community!

I'm so sorry your symptoms have been overlooked for all these years!

Treating with 6 weeks of doxy 100mgX2 is not enough...since this is not a new infection more than one antibiotic at a time should be used. That makes me wary of that Dr. Unless they have another plan that they haven't shared with you - maybe adding in herbals?

I would consider going to the Dr. that ILADS gave you. You can also contact ILADS and give them the other Dr,'s name and see if he is an ILADS member.

Also, you can ask members on the forum for help finding one in your area. Just start a new thread titled: 'Looking for LLMD in/near Portland, Oregon.

I don't know why they would say not to take JK until after the appointment...did they give you a reason?

Also - I'm wondering why iv ozone would ruin your veins? Then why do it?

Hopefully others will be on to post about the IV ozone and their experiences.
You could start a new thread asking about it...

Lindylou, in order for other members to help you with LLMD names or other practitioners following ILADS,
you need to activate your email address in your profile so that they can email you, rather than print names on our public forum which is against our rules.

Your profile is only visible to the members here, not the public.

There is an option where your email address is to check the box "Make my email visible..."