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Posted 11/22/2016 8:06 PM (GMT 0)
Huddie some of us are just very sensitive patients. We have to go slower. And here is what I'm learning, we do have to have the body working properly. I'm consulting with a new doctor (skype) to determine why things aren't working properly and to find out what I need to do to support my body. I'm thus far pretty impressed with him.
Posted 11/22/2016 10:25 PM (GMT 0)

Huddie said...
Decarte,

Thank you so much. I so appreciate you taking the time to offer kind words. I was doing well and thought I had fully embraced this with optimism, and with grit. This is month five for me. The first two I was mostly in bed. Then I was starting to get better. I think I'm feeling defeated because I now seem back to where I was. I have a few glimpses of good days (I have no way to know when they will be) and then I'm bad again.

You are a year in now? What herbs do you take and what are you able to do? I know you can exercise so you must have strength. That is great. Have you been able to go on vacation? I don't even know how to plan life. My son is also healing lyme too so guess I'm extra stressed this month.

Thanks for the pep talk. I know you are right. I'm snapping out of it.

The thinking I'm losing my mind and I feel like I'm dying days ended after the first few months.

So It sounds like you are right on schedule. First couple months you were bed bound. Now you are mobile. You will continue to progress.

Gut health (where the immune system resides) is so key. Focus on that as much as the actual lyme treatment. It is vital.

My current protocol is Crytoplepsis, JK, Cats Claw, Hawthorn, Stephania (no this is not redundant because of the JK, I'm taking it for the anti-allergic properties), and Andiographis. protein/collagen drinks. Glucosamine for further joint health. And a sinus, lymph node drainage homepathic tincture.

It's a lyme + extra antibacterial + certain symptoms protocol.

I'm fully functional and can do everything pre-lyme. I feel mostly full strength. HOWEVER lyme has left damage. Joint and collagen damage, muscle damage, and nerve damage.

So I don't really think I'm battling lyme so much anymore, but I'm repairing the damage it left behind.

Like the Marshall Plan after WW2.
Posted 11/22/2016 10:43 PM (GMT 0)
Krimpet,

I'm very excited you are talking to someone via Skype. Please let us know how it goes. Eager to hear. I have always been extra sensitive even before lyme. There is definitely a good side to it. Thanks for the kind words.

Dacrarte,

Thanks for the protocol. I printed out and will add some things in. I do lots of gut and anti-bacterial, anti-microbial too. Glad I'm on schedule, but not feeling that way.

Did you catch your bite right away or were you undiagnosed for a while? It seems like those that caught it immediately heal faster. I was reinfected and din't know I had had it (was misdiagnosed with fibro.) I will be thrilled to be where you are now. That is such great news I'm happy for you. Cracked up at Marshall Plan - LOL! Love that.
Posted 11/22/2016 10:49 PM (GMT 0)
Huddie - Generally, if you catch it early on, you will heal faster.

I know a few people who started treatment within months (6-8 months) of symptoms starting...and healed in less than a year.
I don't think I know anyone who has had symptoms for a year or more that healed lyme and co's in less than a year.

I say generally because I'm sure there are exceptions.

AND, catching it early...doesn't necessarily mean you will heal quickly...but those that do heal in months time...usually haven't had it over a year.
Posted 11/22/2016 10:51 PM (GMT 0)
mad cry shakehead

So a few years it is... That is what I figured.
Posted 11/22/2016 10:57 PM (GMT 0)

Huddie said...
Krimpet,

I'm very excited you are talking to someone via Skype. Please let us know how it goes. Eager to hear. I have always been extra sensitive even before lyme. There is definitely a good side to it. Thanks for the kind words.

Dacrarte,

Thanks for the protocol. I printed out and will add some things in. I do lots of gut and anti-bacterial, anti-microbial too. Glad I'm on schedule, but not feeling that way.

Did you catch your bite right away or were you undiagnosed for a while? It seems like those that caught it immediately heal faster. I was reinfected and din't know I had had it (was misdiagnosed with fibro.) I will be thrilled to be where you are now. That is such great news I'm happy for you. Cracked up at Marshall Plan - LOL! Love that.

I started legitimately treating about 2 months after the onset of symptoms.

I'm a stubborn and analytical person. That creates a healthy skepticism to things and in this case doctors. So the whole "everything checks out we don't know what's wrong with you" non-sense doctors were trying to give me wasn't going to fly. So I researched like a mad man, came across lyme and my 15+ symptoms matched lyme. Found LLMD. Then tested through Igenex. And of course positive.
Posted 11/22/2016 10:59 PM (GMT 0)
Huddie - Not necessarily.

It also depends on how many other issues you have...how many co-infections you need to treat.

It could be less than a few years....it could be a year...or 18 months...no one knows. I'm talking symptom resolution and remission.


BUT - remember you are healing along the way...so you are improving and losing symptoms as you go.

I'm at 2 years now...I have lost a ton of symptoms...and people are telling me I look so much better..I don't look sick anymore...
I just have a really stubborn one that is sometimes debilitating. If I didn't have that one..I'd be feeling pretty good.

My joint pain, muscle pain are almost non-existent...except for the odd herx...and one comes back for a bit.
my twitches - pretty much gone...my weakness - gone....my muscle atrophy - gone...
My anxiety - gone - except for the odd time waking at night.

You will be improving on your journey to wellness....it's just hard to see that now..
Posted 11/22/2016 11:01 PM (GMT 0)

Girlie said...

BUT - remember you are healing along the way...so you are improving and losing symptoms as you go.

Exactly. And remember to celebrate every time this happens. It's about how much progress you make along the way, not how much further you have to go.
Posted 11/22/2016 11:04 PM (GMT 0)

PeteZa said...
I was bit in April and healed in July the next year - so it was over a year.

By the 7 month time line I was taking the following 3 times a day and then a handful of supplements (about 20 pills) and I did 3 times a day gelatin, collagen, and biosil. Also did MC-BB1 1 dropper, 3 times a day and Tox Ease GL 1 dropper, 3 times a day

Japanese Knotweed - 2 droppers full
Hawthorn - 1 dropper full
Motherwort - 1 dropper full
Astragalus - 1 dropper full
Red Root - 2 droppers full
Red Sage - 1 dropper full
Skullcap - 1 dropper full
Gou Teng - 1 dropper full
Houttuynia -1 dropper full
Cryptolepis - 1 dropper full
Andrographis - 1 dropper full

It took me a lot of concentration to get all those herbs in me and working syngeristicly (is that a word?). I had every step written down on when I would up each herb, provided I was okay.

I looked at it as my JOB as the doctor. And as the patient, I had to listen to the doctor. LOL!!

I missed this comment earlier.

That is a BEAST protocol. No wonder you healed in a year.
Posted 11/23/2016 12:08 AM (GMT 0)
decarte that is just the list of herbs. I did not mess around.

And, when I got well, they made me puke. I was puking for a day and I quit the Andrographis and gou Teng. I was well for a couple of weeks and got super sick again throwing up everything.

Hubby said, "stop everything and see where you stand." I had already been symptom free for over 3 months so I stopped everything.

I only put this out there in case someone gets super sick like I did. If you don't have symptoms and are throwing up, maybe it is time to quit the herbs.

However.... I highly recommend a maintenance dosage of herbs that you may need. For me, my maintenance is Japanese Knotweed, Red Root, Astragalus, Cat's Claw (pill form and that is why it is not on my list above) And I have now added in cordyceps. Just thought I needed that because of the lung disease that runs in our family. Not necessarily because of lyme, but it won't hurt staving off lyme also.
Posted 11/23/2016 2:36 AM (GMT 0)
Thanks everyone. I have tried to be on top of this like you all have it's just frustrating to get so sick from each new herb that I introduce.

Peteza, you were quite fortunate to never herx. To take that much how did you start out at one drop and work your way up? So did you only do the 1 drop and increase to full dosage (dropper full) before adding second herb? When do you know to add a second dropper full? Since that is literally doubling your dosage.

After this long weekend I need to get very serious with the herbs.

Girlie, thanks for the reminder. I'm so happy that you have all gotten rid of so many symptoms - that is so hopeful.

Decarte, that is so great that you solved your health mystery so quickly. I had several health things hit at once so I never once thought lyme (the first time) and I was still really healthy. Only when I was reinfected and got super sick can I now look back and think "I think that was lyme." Wish I knew about this board then. I was like a crazy person searching for answers and went to so many doctors. Oh well. Adopting Buzz's philosophy - onward and upward.
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