I got my diagnosis!

I had so much anxiety about my appointment today, I had worked myself up.
But I got my diagnosis, Lyme.
So that crazy cd57 test that had all sorts of numbers on it was demystified by my doctor. He said my cd57 was at 28 and it should be at least over 60. He also did a full exam and told me I have one of the few physical showings of Lyme disease and that it indicates it is in my neurological system. Specifically the vagus nerve. When he had me open my mouth and go Ahhhhh my uvula shifted off center which showed compression of the vagus nerve. Interesting!
I start 100mg doxy/2x a day, slowly up my samento and banderol to 10 drops/2x a day. Add in probiotics and meditation. Keep taking the LDN. And gave me a list of what to do in case of Herx (whole lemon in cup of water, turmeric, charcoal). He gave me a b12 shot too because my b12 levels were borderline low.
I see him in 3 weeks to go over adrenal testing results.
Best part is he gives a 35% discount on supplements to his Lyme patients because he knows personally how much it costs to have Lyme. I am so incredibly thankful for this doctor.

Yes, he is just starting me on doxy but he said there are all sorts of combinations out there and we will do others as we go along. Report back on your uvula! I'm curious!!

ChickNorris said...
Yes, he is just starting me on doxy but he said there are all sorts of combinations out there and we will do others as we go along. Report back on your uvula! I'm curious!!

Well, I can't see it well enough because of my big fat tongue.
I will need to have hubby press down on my tongue...

dbwilco - do you have more symptoms on your left or right side? or is it pretty much balanced?

So my issues are left sided - it would be interesting to see if my uvula goes to the left.

For those who have the wonky uvula, he told me some exercises to help it relearn how to relax and reset. He initially wanted me to gargle for 30 seconds twice a day but that makes me gag so he said I can also sing vigorously. Ha! I am always subjecting my poor kids to me singing but now they can't complain because it's doctor's orders. ;)

My uvula does not shift at all so I guess that's good news for my vagus nerve (-:

Sounds like a pretty good doc. Happy for you and hopefully you will be on the path to wellness!

ChickNorris said...
For those who have the wonky uvula, he told me some exercises to help it relearn how to relax and reset. He initially wanted me to gargle for 30 seconds twice a day but that makes me gag so he said I can also sing vigorously. Ha! I am always subjecting my poor kids to me singing but now they can't complain because it's doctor's orders. ;)

This made me giggle and want this prescription! What awesome medicine. It is very hard to cry and be super sad, when you are singing.

Huddie said...
Chick,

Congratulations! You hit the motherlode of LLMD's: discount, B12 shot and prescription to sing. Love it.

My symptoms are all on the left side - better go check my uvula and start singing :)

Is the CD57 done in the CBC? I read that a lot on here but don't know what CD57 is. You guys have an entire language and I still feel like a beginner.

Great news Chick - happy for you.

It's the CD57+ NK cell. NK means natural killer cell. CD57+ (which is different than simply CD57) are immune cells that the lyme bacteria is known to successfully attack. NK cells are the big guns and there isn't much that can destroy them in great numbers, except of course for lyme.

Scientist admit that there could be something else that can destroy them in great numbers, but as of now they are only certain about lyme being able to do it.

It's a marker. Similar to T-cells being the marker for HIV. The marker for us lymies is CD57+ NK cells.

My score was 70. Not terrible, but not great.

Whatd a uvula?
Btw chuck dr klinghardts says very low cd 57 means mycoplasma discuss this with your llmd not sure if any other llmd support this i dunno

Girlie said...

jennydancingfish said...
Whatd a uvula?
Btw chuck dr klinghardts says very low cd 57 means mycoplasma discuss this with your llmd not sure if any other llmd support this i dunno

It's the thingamajig in the back of your throat hanging down.

I think the technical term is hangy down doodle.

Singing is good, but humming is better. Especially if you tilt your head front to back, and turn side to side. I got that from my almost worthless GP I fired awhile back. I had(have?) a lot of vagus issues, mainly digestive, but for a bit pvcs. I went to a chiro who cracked my neck, which darn near resulted in him needing an ambulance. It hurt! BAD! And well, I wasnt so nice about it. Next day my neck was stiff and all my issues ramped up 10 fold. My GP at the time told me to hum light for 5 minutes and then do it for 3 with warm water in my mouth, which was harder than I thought it would be. 2 days later I was fine. Just make sure you isolate the throat muscles, nothing nasal.

Congratulations Chick!!! Great news! I'm very happy to know you have such an understanding doctor!! He sounds like he's got a pretty good understanding of these things, although I would encourage you to still do more detoxing than he mentioned, especially to prevent herxing.