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Posted 11/23/2016 3:35 PM (GMT 0)
I want to apologize for my pity party yesterday and thank you all for your unconditional support. It is greatly appreciated.

As synchronicity would have it I picked up a November Oprah mag. that someone gave me, yet I never read, and read an article on self pity! We're all allowed to do it three times on the same subject and then let it go. I think since getting Lyme, I have used up my credits.

Thank you all - with gratitude,
Huddie
Posted 11/23/2016 3:48 PM (GMT 0)
Wow, if that's the case, I'm in trouble!! I've had a lot more than 3 pity parties for myself! And, I don't usually ask for forgiveness - although I do always thank people for their kind words when I'm down and tired of fighting.

I think that's a really good idea to follow - when someone isn't dealing with a chronic illness, but to limit a person who is going through so many unknowns and trials as can be present with particularly Lyme, is unrealistic.

Huddie, You can have a pity party with me!! Obviously, at some point in time, we can all wear out the pity party, but for anyone that has seriously herxed, had situations where there is far from a clear answer as to what to do next, or has plateaued - or is dealing with really tough situations at home - saying that it's not okay to feel bad about it is not being realistic in my view.

I'm about to have a pity party myself today!! Yesterday's shenanigans at the hospital for the pre-surgery lab work was either out of a really twisted comic book, or it was from a horror show - and I'm paying for it pretty seriously. I surely couldn't tell anyone in this position that it's not okay to have a bit of a pity party knowing very personally how it all feels.

But, no matter what, know that you can come here and express your sorrow for your situation, and know that there are kind hearts here that understand.
Posted 11/23/2016 4:01 PM (GMT 0)
Didn't you know Huddie?

You get a pass (or two) with Lyme. It's unique. (lol)


Huddie you have also provided so much support here for others.


Traveler - Sorry about your experience...you go right ahead....have your pity party!!!
Posted 11/23/2016 4:01 PM (GMT 0)
Trav,

Hi. I'm sorry. Last night at about 9:00pm NY time I got the strongest feeling about you. I was wondering if you were becoming stressed over Thanksgiving but now I get it.

I'm so sorry. If you need to vent we're here. I can't think of a better medical advocate for your husband to have by his side, than you. That said, I'm sorry if went less than swimmingly. Better yesterday than the day before the actual procedure.

Everyone ok now? Really, vent to us!

The article was by Martha Beck, who I love. She is very smart and very funny. I have read all her books. I ask my neighbor for her old Oprahs so I can read Martha's column. She actually has fibro. and I have since wondered if it's lyme. Anyway, she says it sort of tongue and cheek. I'm guessing there is no real number.

What I love about the article, and I have read this in many a neuroscience piece, is what we focus on, and constantly repeat, wires together in our brain. Dr. Joe Dispenza talks about this a lot. So I try to be thoughtful with words - and stay on the sunny side of the street.

I hope to day is a better and gentler day for you and your husband.
xo
Posted 11/23/2016 4:07 PM (GMT 0)
Girlie,

Thank you. Lyme is unique.

How are YOU feeling today? I hope you slept better and are feeling good today.

Don't worry you guys aren't rid of me yet - I will transfer my own pity part to that of worrying about my son!

I hope I get a double dose of allowance and not a two-for-one! yeah
Posted 11/23/2016 4:14 PM (GMT 0)
That would have made it about 8 o'clock my time - and I was FINALLY home, dinner done, critters fed and walked and I was realizing just how much pain I was in!! YIKES!! smhair It took me until nearly midnight to get my pain levels down far enough to allow my exhausted body to sleep.

So, my pity party: WAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAA!!!!! I don't wanna go there again!!! cry But, I have a 4 day stay with them (whether they realize it or not), as the ONE thing the did do was strengthen my resolve that I MUST stay there in order to protect my hubby!!!

Okay, so now that that's done - Huddie, as Girlie said, you have provided much support for others, so it's just us giving it back to you in your time of need - and yes!! You get a double pass for worries about your son!!! :-)
Posted 11/23/2016 4:22 PM (GMT 0)
Trav,

I'm so sorry about last night. You are sensitive so between all the stress, and having to stand up for your husband, your probably took on a lot of outside energy. That can keep me up for hours - even without the worry of loved ones. I'm glad you are staying there. I truly believe we heal faster with our loved ones right there. I would not leave their sides.

I hope you are able to rest today so you can enjoy tomorrow. Be gentle, detox, stop talking to us - we can be alone for a few hours Mom! Hee hee!

REST!

Hugs to you my friend.
Posted 11/23/2016 4:25 PM (GMT 0)
Traveler, so sorry about the "event" with the hospital. It doesn't sound like fun. And, from personal experience I adamantly believe that everyone that is in a hospital needs an advocate!!! Someone to yell for the patient and someone to watch what is going on.

Hospitals can be very busy places and stuff gets missed, sloppy and not done.

Huddie, I am so glad you found us. You add a lot to this forum. You should never apologize when you are sharing your inner self with us. It is a privilege to us that you felt comfortable enough to share. We are blessed with your friendship in so many ways.
Posted 11/23/2016 4:30 PM (GMT 0)
It is an essential part of the process to have a forum to express the appropriate emotions and feelings one is feeling in response to this gnarly journey. Rather than view it as pity parties - I'd just call it - acting naturally and getting support when we need it. This is tough stuff! Thanks for reaching out!
Posted 11/23/2016 4:31 PM (GMT 0)
Huddie, it may be very well that I shouldn't be left alone for a few hours! LOL! turn

Don't worry, I have a schedule to keep me on track this year with all the cooking, and it does start today, along with making beds for everyone. But, I'm not up to moving around like that yet, so I want to come visit with my friends that understand these things!!


PeteZa, thank you. This hospital nearly killed my last husband (Doctor's orders were completely ignored and I was lied to about it), and while they have been there to save my current hubby's life when he has his massive embolism event, I still don't trust them. Yesterday proved to me that they still operate the same way. shakehead
Posted 11/23/2016 4:34 PM (GMT 0)
Trav,

Yes, exactly what Peteza said. When my mom was in ICU I slept there. You are NEVER allowed to sleep in the ICU. There was a male nurse who happened to be from NY (my mom was in Oregon at the time). I pulled him aside and just said "I'm not leaving her and I believe if I stay and pray all night she will heal (no I'm not a crazy religious fanatic - just believe in the power of prayer and the universe) anyway, he was a sweetheart. He said "Well I may lose my job but I'll get a bed made up." She had a massive stroke and was alone for two days before my brother found her. I got the call that she had less than 24 hours. When I arrived she was unconscious in the ICU. We were also told if she ever woke up she wouldn't walk or talk again, nor live alone. I stayed up for over 24 hours and put brain power essential oils in my hands and would hold them under her nose, then I would rub her hands and feet with different oils. I then got in her bed and just held her. The next day she was sitting up in bed and talking. Within a week she was walking. She went back to her own home and lived healthy and happily. Sadly, she suffered another stroke years later and is now in a nursing home.

Anyway love heals and never believe doctors that's my recap.

Peteza, Thank you. More tears of gratitude. I feel the same way about you guys, truly I do. Thanks doesn't seem to be enough. I so appreciate the unconditional support, the authenticity and the compassion. xo
Posted 11/23/2016 4:38 PM (GMT 0)
Trav,

If you need a distraction we get it. I meant that you don't have to worry about US when you have so much going on - that we will be ok.

I bet your daughter would LOVE to make up the beds. I think you need to delegate today. I know it's hard but maybe start with the beds. OR put bedding at the foot of each bed - each person makes their own bed.

Will be sending many prayers on Monday.
xo
Posted 11/23/2016 4:47 PM (GMT 0)
See, Huddie? We need you too!! Thank you! We need each and every member here, to create such a wonderful community committed to helping each other, to listening to each other and to offer any suggestions on what we can do to help ourselves.
Posted 11/23/2016 4:59 PM (GMT 0)
yeah

Right back at ya Trav. Thank you.
Posted 11/23/2016 5:05 PM (GMT 0)
It takes a village to heal a Lyme patient!! smilewinkgrin
Posted 11/23/2016 5:13 PM (GMT 0)
I laughed so hard I spit out my lemon-water!

More like the Island of misfit toys!
Posted 11/23/2016 5:34 PM (GMT 0)
Ha ha ha!! I ALWAYS identified with those toys sooo well though!!! A bit more seriously, I really did always feel like that was where I belonged instead of out in the world with all the other people that had no clue what I lived with all those years - so maybe your comparison is spot on!!
Posted 11/23/2016 5:41 PM (GMT 0)
Me too. Always felt like an outsider - actually felt other-worldy for most of my young life. I always felt 'different' - I see that now in my son too. Maybe he will go on to heal Lyme. The compassionate healers, like yourself, have often felt different. It's a good thing.
Posted 11/23/2016 5:53 PM (GMT 0)
I have so much sympathy for everyone here.

My way of "coping" with this disease may be different than the next person,however,there are days I just want to "flip the f*^& out"...the only reason I don't is my immune system will not thank me later.

Huddie........keep doing what your doing,we will figure this out)

Happy Turkey Day to all,

r
Posted 11/23/2016 5:59 PM (GMT 0)
This made me laugh so hard! A restraining order on your immune system - love it.

Happy T day to you too.
Posted 11/23/2016 7:42 PM (GMT 0)
I gave my bugs a actual eviction notice ...they havent taken the hint ...i am grateful for all yall...id be in a lot worse shape without info and friends here ...
Posted 11/23/2016 7:57 PM (GMT 0)
I've always felt like such an outsider I still feel like an outsider here.



I just try to help where I can. I'm not always as fast as the others, my computer is in as bad of shape as I am, sometimes worse, but my heart's in the right place.
Posted 11/23/2016 8:38 PM (GMT 0)

julymorning said...
I've always felt like such an outsider I still feel like an outsider here.



I just try to help where I can. I'm not always as fast as the others, my computer is in as bad of shape as I am, sometimes worse, but my heart's in the right place.

Aww! Julymorning!! We LOVE having you here!! And I love having you close enough to me physically that we may be able to meet one day! I really look forward to that! I talk to a lot of people, but rarely get to meet them in person.

And, you have been a BIG help here! Don't ever discount the value of a few kind words!! And I think you know more than you realize. wink Besides, we are all here to learn and share.
Posted 11/23/2016 9:40 PM (GMT 0)
Thank you my southern sister! lol. Makes me feel good.

I'm an only child, I think that might explain a lot.
Posted 11/23/2016 11:21 PM (GMT 0)
July,

You help me so much and so many others. You are so kind and knowledgeable. Don't discount yourself - and you make me laugh. Love "my computer is in as bad shape as I am." LOL!

I find all 'my new friends' such compassionate and giving souls' - seriously.
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