THIS is what we fight against!!

Three of the biggest Lyme deniers has put out yet another false article about his own ideas surrounding Lyme.
Gary P. Wormser, Raymond J. Dattwyler, Paul G. Auwaerter - remember these names, as you will see that they are always trying to put out false information about these infections. And, bonus! They have two new recruits!

And, as usual, they have the complete article on 'lock down' so we can't read it. Here's the abstract though:

"A Critical Appraisal of the Mild Axonal Peripheral Neuropathy of Late Neurologic Lyme Disease
Gary P. Wormser, Franc Strle, Eugene D. Shapiro, Raymond J. Dattwyler, Paul G. Auwaerter

In older studies, a chronic distal symmetric sensory neuropathy was reported as a relatively common manifestation of late Lyme disease in the United States. However, the original papers describing this entity had notable inconsistencies and certain inexplicable findings, such as reports that this condition developed in patients despite prior antibiotic treatment known to be highly effective for other manifestations of Lyme disease. More recent literature suggests that this entity is seen rarely, if at all. A chronic distal symmetric sensory neuropathy as a manifestation of late Lyme disease in North America should be regarded as controversial and in need of rigorous validation studies before acceptance as a documented clinical entity."

"antibiotic treatment known to be highly effective for other manifestations of Lyme disease"

Science is coming around to dispute this. In the scientific community it is greatly accepted that bacteria are being coming resistant due to evolution.

So hopefully that will help our cause. you can't just have a round of abx and abraca dapra! it's gone. So therefore for many, lyme is a more chronic problem.

Wishful thinking perhaps.

Btw, this is a recent interview of Paul G. Auwaerter by outbreaknewstoday.com

/www.youtube.com/watch?v=1qh7EbgEBQU

Although some of the people here will find some things said preposterous, if you carefully listen to THE ENTIRE interview, and if you know who this guy is, you will notice he is unsure now of many things, he is not denying things, he says people are suffering, that they know it's a problem and more research is needed.

This is a huge change in tone compared to what u could hear them say 10 years ago. So i'd take this guy Auwaerter as a "good guy", trying to help, just very skeptical of our current treatments.

So i'm positive... things are changing. slowly.

I had to quit listening to Auwaerter on the above link about the time he got into abx recommendations. We could ourselves parrot off his responses, we've all heard them so often.

I hate that these interviews and such are out there confusing possible Lyme 'victims', or others that have interest in it.

mpost said...
Btw, this is a recent interview of Paul G. Auwaerter by outbreaknewstoday.com

/www.youtube.com/watch?v=1qh7EbgEBQU

What cave did this guy crawl out of?

How do these guys explain the fact that chronic lyme patients have herx reactions during treatment, what the heck is dying off then?

Kirky98 said...
How do these guys explain the fact that chronic lyme patients have herx reactions during treatment, what the heck is dying off then?

herxes do not exist. You are making it up so that your loved ones show you more affection. Your heart skips beats because u have a congenital aneurysm. :))

go find a shrink!

Oh... They say it's bad lab doctor and the spirochetes are harmless collagen tissue.

Not sure about intracellular bart. I.had a wonderful movie with a red cell hosting 6 bart small cells. Theyll say is sort of lens error maybe or the lab dr has fabricated the evidence. Does not matter if u tell them u were in the room when they checked "they added serum and it was contaminated intentionally...." ;)

Keep doing the microscope work ,if 100000 u tubes and blood stains are there 3 dickwads wont be believed anymore !?

hw wont let me say w t f but it let that on go..ha thanks

Yeah, I'd like to be able to combat this sort of stuff, but I don't have the time or mind for it. I usually just tell people that the illness and those affected will ultimately speak for themselves. The fact that this stuff is continuing to worsen will say all that needs to be said, collectively.

Though, I do wish they couldn't get away with this stuff in the meantime. Lots of smart dumb people, as I like to call them. They sell convincing stories to people who aren't in the know with the intellectual speak.

I had some guy on reddit trying to convincing me that I didn't know what was going on in my own body, that I didn't have Lyme, etc. "How do you know you have Lyme?" Talking about how studies have been done that showed long-term antibiotic use did nothing to improve patients complaining of 'chronic Lyme disease.' Then, after I'd told him that I wasn't in support of that anyway, and that we can't just throw antibiotics at it and expect things to get better, he switched his game up. Whole time, acting like he's my friend and crap, while he's so obviously trying to tear the idea of Lyme disease being chronic down, etc. "I actually very much want to help sick people."

It's why I do not talk about it in public. People are stupid about it, even the somewhat intelligent ones, and I just don't have it in me to respond in a fitting manner. The conversations always leave me feeling like I've lost.

dacarte3 said...
Insurance companies are not going to pay 1, 3, 10 years of treatment (with 1 to 3 being the most common duration). That's money lost for them (and doctors).

Money rules and money wins.

Other illnesses where people actually die (and in great numbers sadly) are the ones that the pharma and medical industry are not allowed to ignore because it's tragic and in the public's faces.

With lyme we suffer to varying degrees but people aren't dying left and right.

Just thinking logically and this is not a political statement of any kind, but maybe if universal healthcare ever becomes a thing (moving the insurance companies out and profit driven pharma out) it may bring some positive change?

I dunno about that. Do any insurance companies cover immune support cocktails for HIV infected people?

What about anti-rejection drugs for transplants? I don't know about this kind of coverage, never knew anyone that used them. Just a couple of many life long medications.

Then there are the meds needed for Diabetes, which doesn't necessarily end in the short term. Does insurance cover them? IDK. I could think of afflictions all night.

I said not long ago on here, that if the insurance companies would find it in their pocketbooks to be less stringent on Lyme sufferers, it would cost them less in the long run helping us get healed, whatever route we take, than paying for useless medications prescribed for us for whatever the MD's. think is wrong with us that isn't related to Lyme.

When I think of all the money that medicaid paid on out me to have all the high dollar fancy tests run over the years trying to prove or disprove what I had, instead of accepting the pos. Lyme test, it's criminal.

But, I guess these hospitals and clinics have to have some way to pay for their new high tech diagnostic equipment they buy.

I would think.

“Lyme disease is the growing epidemic and health crisis of the 21st century. In the fullness of time the mainstream handling of chronic lyme disease will be viewed as one of the most shameful episodes in the history of medicine.”

My son has wanted to be a surgeon since he was three. Now that he has Lyme maybe he will help cure it. If his brain can heal well enough to make it to med school. At this point I just want him to get through high school :(

I have to agree with mpost, as someone who thought they had chronic lyme. I had developed candida from excessive antibiotic use. They wanted to put me on IV antibiotics, thank god I didn't. All I had to do was change my diet and I got better, no herbs, nothing, just ate healthier and improved my immune system.

I was going to the clinic that is associated with igenex, massive conflict of interest? Yes.

One wouldn't put themselves through chemotherapy if there wasn't a diagnosis with certainty. Long term antibiotics are a similar risk, they'll break you down overtime.