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Posted 11/26/2016 6:52 PM (GMT 0)
One of these days I swear I'm going to contribute instead of always just asking questions :(

I'm about to move back home to MI. after moving to VA. for 16 months to be treated by a well known LLMD. She unfortunately left the practice in June due to having triplets and her replacement is an Endocrinologist who was supposed to be mentored by her. The lead LLMD does mentor her but for the most part I think she has been thrown in the deep end before she was ready. I must say she is so nice and spends much of her off hours stydying up on lyme. I've been on several protocols that helped and a few RX or herbs that I had to stop because I couldn't handle the herx. I told my doctor 7 weeks ago that I couldn't afford to be debilitated because I had just started a new job and was preparing for the move. So I've been on Biaxin and Samento (currently 12 drops 2X/day , working up to 20). Once I reach full dose of Samento I'm supposed to start Mora. I actually felt a bit better on just the Biaxin but the Samento is hitting something for sure. I can handle the herx though.

OK, my question: A few days ago she put me on: 100mg Mino 2x/day; 500mg Biaxon twice daily(what I'm doing now) but only Mon, Wed, Fri; one tsp. Mepron 2X day on Tues, Thurs, Sat; Samento and Mora. I need to drive alone to MI. on Dec. 6 for a Dec. 9 closing on my house. Supposed to resume the same job once I get there but I have control over that schedule and it's part time.

Do you guys think that's too much? With just the Biaxin and Sameno I'm already having achy, flu-like symptoms and sore neck....and the ever present insomnia.

What do you think I should take? I can't see starting them all at once. I know I'm under treated now but this protocol scares me. I can see building up to it but not starting them all at once. (I will say I was on Mino for quite a while and handled it ok.)

I know I've been rambling but if anyone could take the time to weigh in, I'd SOOOO appreciate it.

As always, thanks so much
Joanie
Posted 11/26/2016 6:56 PM (GMT 0)
Don't start the mino and mepron in the same week....


The fact that it will be pulsed is good...better tolerated...

I would start the mino and not start the mepron for a few weeks...if I were you.

Remember - if it's too much, you can back off until you feel better.


....and you are detoxing?
Posted 11/26/2016 7:01 PM (GMT 0)
Girlie, thx for your help. I detox a lot - 2-3 40 minute saunas and 2 40 minute hot epsom baths per week, burbur and pinella, whole lemon each day in my smoothie.

Yeah, that's what I was kind of thinking and I will do that. But do you think I'm being a wuss thinking that is an overly tough protocol even if ease into it?

Joanie
Posted 11/26/2016 7:04 PM (GMT 0)
First of all, please don't worry about whether you are asking questions or helping - you're in need of help and suggestions and that's what we are here for!

Next, I would encourage you to do more detoxing besides the great suggestions that Girlie gave you. You can take a look at this great list of suggestions for more ideas: www.tiredoflyme.com/detox-methods.html

Best of luck with the move! And remember, you will need some extra rest after/during your move - moving is stressful!
Posted 11/26/2016 7:12 PM (GMT 0)

JoanJet said...
Girlie, thx for your help. I detox a lot - 2-3 40 minute saunas and 2 40 minute hot epsom baths per week, burbur and pinella, whole lemon each day in my smoothie.

Yeah, that's what I was kind of thinking and I will do that. But do you think I'm being a wuss thinking that is an overly tough protocol even if ease into it?

Joanie

No, I don't think you're being a wuss....you're being cautious...that's not a bad thing.

I don't think it's an overly tough protocol...though..
Posted 11/26/2016 8:03 PM (GMT 0)
JJ,

You aren't being a wuss. You have a lot on your plate. I get it because I am under treating right now too. I MUST function to take care of my son who also has Lyme (and to do all other life stuff).

That would be way too much for me but I'm sensitive. Since you are driving alone and already experiencing symptoms I would take Girlie and Trav's advice and just do the Mino. You can detox and eat well (and sleep well), get to your new dwelling, then hit it harder. Be careful driving.

Keep us posted.
Posted Yesterday 12:41 AM (GMT 0)
Thanks to all of you. Do you think I should continue with Biaxin? I'm thinking YES
Posted Yesterday 1:12 AM (GMT 0)
Yes, I think so.
Posted Yesterday 1:37 AM (GMT 0)
You guys are all life-savers! That's what I'll do, Girlie
Posted Yesterday 1:48 AM (GMT 0)
If things start ramping up - i.e. herx...you don't want to keep pushing it...

When I started mino at 100 mg once daily...my LLND actually told me to do that before going to 100 mg twice daily.

I think it was a week...or maybe two weeks before I went to the full dose.

It made me dizzy at first...

I wouldn't add in the Mepron before your trip - it's too close.
Posted Yesterday 2:55 PM (GMT 0)
Girlie, I was on Mino before and did ok with it but intend to just do 1 per day for several days at least. MY ETS - estimated time of starting :) - scary Mepron is at least after I move in.

Have a peaceful weekend, Girlie...

Joanie
Posted Yesterday 7:38 PM (GMT 0)
Good idea to wait with the Mepron.

...and I was glad I did the once a day mino - I did get dizziness from it....until my 'head' adjusted.


Thank you Joanie...


(((hugs)))
Posted Today 12:34 AM (GMT 0)
Insomnia could be bart ...good luck with the move joan
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