Should I stop the Bactrim?

I was taking Rifampin for over a year (with some short breaks in there) - with mino or biaxin.

My new LLND - in prepping for the LDI, had me take Bactrim and azithromycin.

I never did do the LDI, but continued to take the bactrim...been on it a couple of weeks now.
By Sunday, I was feeling quite lousy - burning body pain, and pressure in my head. It has been happening off and on the past couple weeks..
We were heading out of town for a couple days, so did not take it on Sunday.
Monday (yesterday) - I still didn't feel good...so didn't take it again.
My detoxing was not good on Sunday or yesterday...due to being away from home...and not paying attention. But, it still is not like my usual herxes...so that's why I'm questioning it.

So, today, is Day 3 without the Bactrim or Zith. I concentrated on detoxing...today...do feel somewhat better...but wondering if I should just switch back to the Rifampin.

I'm hoping it's a herx because it's hitting the bugs hard...but I'm not sure.

Bluelyme said Bactrim made his blood boil and I think he said it 'ate his nerves' or something like that.

I just don't know if I should continue with it...it could be a herx...but am concerned it could be doing some damage...

julymorning said...
I am guessing that isn't in a form that could be reduced in it's dosage?

Yes, I'm actually not even taking the full dose most days...it's been a difficult one for me.

So, I should be on 2 pills twice daily (It's not the DS, just the regular Bactrim)...but I have only been taking 2 once daily and 1 once daily on most days.

So, I could do 1 twice daily...but right now, I don't even feel good enough to do that...

Dang 70 second rule....

Are they in tablet form that can be cut in half?

Well, in that case, re-think the reason why your LLMD made the switch, and go ahead and go to the rif, IF you can also take it with the zithro.

I think it may have been the osp from the dead bugs that did the nerve damage ....but without my triquarter i am just guessing ...when researching vasculitis ..it said could be strep ,lyme or the sulfa caused .....

you know your body ..it could be working on babs too or proto..
i had something like toxo/proto and that have bamaged my drain! Unless you have spots its not sjs or tens ...

rikky loved it ...if you have ricketsia ,swiss agent sulfa drugs can make it worse through the paba mechanism...i actually had to be talked out of trying it again by my nurse ...

it made me gunshy ...i have had a little reaction to zith lately (oral not iv ) and was needing to pair riffy with something ..was gunna swith to mino but i just cant handle anh more dizzyness i have totally psyche myself out ...also sun on my face for the 2 mins i see it is the highlight of my day ...it was probablh just secondary porphia or a g6pd deficiency that made me special ..have yoh tested that girlie ?

So - the g6pd deficiency can cause red blood cells to break down?
is that right?

Also more common in males?

Its a genetic hereditary thang like mthfr ....also sulferation pathways may play a part ..do you have the cbs mutation?

bluelyme said...
Its a genetic hereditary thang like mthfr ....also sulferation pathways may play a part ..do you have the cbs mutation?

I don't know if I have the cbs mutation. I've not had any genetic testing done.

Rikky1 said...
I was on Bactrim for 4 months then stopped it and tried to switch to another regimen and my core issue (head inflammation) came back rather quickly so added it to the Rifabutin/Mino 4 consecutive days a week and while the road is up and down its definitely working now that its been a month of this regimen.

If you ask a fellow BLO sufferer for a long time sounds to me like the Bactrim is getting to a deeper layer of infection it also hits Babesia which could also be coming out for you. Oh yeah it also hits Lyme.

I'd get the dosage down to a more manageable level and see how it goes. You know follow your own advice to others LOL.

Maybe I should pulse it instead of daily...and add it to my Rif and biaxin that I take M/W/F. I could take it Th/F

Head pressure sounds like a Babesia herx... which would make sense since Bactrim works against Babs.

Healing98 said...
Hi Girlie, are you allergic or sensitive to sulfa drugs? Bactrim is in that class of antibiotics and it may be that you are experiencing a reaction to sulfonamides.

I tried taking Bactrim once and had the same issues that you had with it. When I discussed it with my doctor he just said to stop taking it and prescribed something else.

I don't know if I'm allergic to them. I've not taken very many abx in my life - prior to Lyme.
I don't have any known allergies.