Lyme recovery

I know Lyme can't be "cured," but I would like to hear about those or those you know who are in remission. When you are in the thick of it is is so hard to conceive getting better and going back to life before Lyme...so does anyone have any positive stories? And if so, how long was treatment?

I can't answer exactly the way you're asking. But hear me out.

I was first infected in 1985, and it first made it's appearance with Shingles and Pleurisy, for which no doubt I was given some sort of abx for the Pleurisy, but of course no more than 10 days to 2 weeks.

Shortly later chest pains diagnosed as deteriorating chest cartilage. No Lyme was thought of or tested for. I had various debilitating symptoms for the majority of 5 years or so, which became less bothersome under normal activities until around early '92. So I feel that my own immune system had managed to get strong enough during that time that I was even able to run a small retail business.

In '92 I was re-infected, ran very high fevers, and completely 'broke' down. I was under considerable personal stress at the time which I believe knocked the heck out of my immune system. I did get tested at that time, but was told my pos. bands were false positives, that we didn't have Lyme in Mo. However, my family m.d. put me on a couple weeks of antibiotics because with my 1033-104F. fevers he thought I clearly had some kind of infection goign ont. I was down like a zombie again (we moved in the middle of that), but once again, slowly over months and years, I was going into remission once more.

I remained in remission, for the most part, running a new retail business of mine, and working every day, all day. Gall Bladder surgery knocked me back down again. Not my worst relapse, but enough I had to leave the store behind and 'retire'. I finally got my disability.

Anyway, 2014 I had upper arm/shoulder reconstruction and it totally set me back worse than ever in my life, because not only was I contending with pain, but with neuro issues, severe breathing issues, and congestive heart failure. By 2015 I tested cdc positive, twice, for RMSF.

That's where I'm at today. My mono abx therapy didn't get rid of my symptoms, so I chose to try herbs, which I am building up very slowly..and as long as I remember to get back on them when I have to take a break, I am very pleased with my symptom abatement.

I don't expect feeling like a 34 year old again, I'm shooting for as many good days as I can get, which means feeling well enough and having the stamina to go shopping without having to quit early and come home before collapsing, or go fishing, or clean my house by myself.


For anyone that has had a few 'good' days, it isn't inconceivable to have more. But Sometimes you end up in the middle of some really bad herxes or even just suffering from the affects of the disease, that it does feel impossible you will live through it to better days. If we just hang on though, eventually we do.

This time last year I was convinced I was dying. I didn't want to live in my body anymore - I was soooooo sick. I am, in this moment, feeling 85% better. I know that I will never eradicate every single last spirochete and may have flare ups and such... but... I have my life, my energy is back, my mind is back, my mood is stable, just a few wonky things left..