Lyme relapse, LLMD, holistic practitioner update

My son is very sick with Lyme/Bartonella.
Misdiagnoised for 15 years. He has missed his entire high school/college experience. Was told he had absence seizures dispite 2 know tick bites. Healthy before all that. 11 seizure meds later. None worked, most make him very ill. We finally have positive Galaxy test and Armin test.
But every time we try to treat, his seizures go crazy and now they cause him to dislocate both shoulders.
We are living in hell.
His neuro. states that Lyme isn't real.
Ugh

Hi Laurie,

I am so very sorry to hear about your son.

Girlie is right, Dr. J has decades of experience dealing with the most challenging and fragile children.

Where do you live?

She is in northern California.

BVT = Bee Venom Therapy.


Oh, he's not a pediatric case now.

Well, there's also Dr. Jemsek - he handles a lot of difficult cases.

But, again, that's a long way to travel.

Yes, isn't that the foundation that Avril Lavigne is now involved in?


lymelight.blueskysweet.com

Huddie so sorry for that things aren't going well, but I'm glad that your son seems to be improving.

As far as the abx vs. herbs, yes you will have to make that decision, but also remember you really haven't been taking any herbs specific for the Lyme/co's so you really don't know what your improvement may or may not be.

I'm wondering whether you would be a good candidate for the beyond balance herbs. I know you've purchased a number of Buhner recommended herbs and you can definitely use them as well. I guess the bottom line is that you are going to at least have to do something.

Another thought is perhaps working on the fungal issues will help as well.

I know you will figure it out....I've got a feeling that my doctor is going to offer me abx as well if this latest test comes back positive which is why I'm really trying to find a beyond balance knowledgeable practitioner.

cr3ativegirl said...
Hi, Huddy. Bummers for us. I have relapsed too. Doctor thinks biofilms are probably being disturbed, things are hatching. Could last years. Very depressing. Have to plug on. I have severe head pressure, stiff neck last two days plus just random sweating, and this weird thing where if I walk somewhere, then stop, I start to vibrate. Gingko is has worked for me before.

I agree with Bluelyme that Doxy will just create more cysts and it will go dormant. I agree with Girlie that Minocycline pulsing is a better choice. It will get to the brain. Gonna ask to go back on that as well.

Oh no......so you obviously feel less than 95%. So these symptoms just started without any provocation?

Krimpet - Oh no is right. This is the worst since Nov. Neuropathy very bad also.

Julymorning - I have Mediherb (a division of Standard Process) Ginkgo tincture 2:1 but I also have the Pure Encaspulations pills 160 mg. I prefer the tincture.