First off I have found a petition that already has some 40,000 signatures asking for changes in the CDC to focus more on lyme. Here it is.
/www.change.org/p/president-trump-and-congress-drain-the-cdc-swamp-and-legalize-lyme-disease?recruiter=247604291&utm_source=share_petition&utm_medium=facebook&utm_campaign=autopublish&utm_term=mob-xs-share_petition-reason_msgAlso I have found a few lyme disease groups and pages on facebook that I have joined and followed. These groups are bringing the disease public with the hope of drawing more attention to those suffering. Please look into joining these groups and sharing posts. It can only help us.
Also there is alot of "news" type updates/posts you can find on social media and also reddit has a small community for lyme disease. Lets get some momentum behind this movement! We need better treatments! And more answers!