Sharing update from first LLMD appointment

I am a big old ball of anxiety sitting in the airport right now. Have had a stupid anxiety attack for a good solid hour. My heart rate is finally starting to slow to a nice and easy 120bpm. Lol! I was just praying I wouldn't burst into tears.
Anyway, I went to Dr Hs clinic in the Bay Area. I saw his PA. Let me just say there is a world of difference in seeing someone who's been doing it for a long time. She went way into my symptoms and strongly suspects Lyme, babesia and bartonella. She said it may be why I didn't respond positively to the doxy. Anyway she is having me redo the igenex to see if I have more of a response after having been on the doxy and herbs. She also ordered the co infections test through them for antibodies and FISH testing. She is also testing me for the common viral infections as well as immunodeficiency. For good measure I got a magnesium IV while there for my headaches. I am so nervous. Just for once in my freaking life I want a clear lab result. Lol! She said if it's negative then there is more to do including a stronger trial of treatment.
But I don't want to have to do a trial. She had me get two things from jernigans blue sage and sephiritis or something like that. And cordyceps for babesia treatment trial. I'm supposed to work up to 60 drops twice a day but how do I do that? Does babs treatment cause a herx?
I felt like I was in good hands but it is still scary having already spent so much to fly there and see her. Does this sound like a good approach? I will have a phone appointment in 4 weeks for my labs. And she will work with my local ND as far as labs and perscriptions in the future too.
I'm just so tired and emotional. My brain is not working right now.

It wasn't cordyceps! It was crypto something! I can't think!

I'm guessing Crytolepis? A core herb in Buhner's Babesia protocol. Hope this is the start of better days to come for you. Hang in there...

ChickNorris said...
It wasn't cordyceps! It was crypto something! I can't think!

Now that makes sense! And yes, babs treatment can cause herxing!

Just wanted to say that I am thinking of you. Pat yourself on the back for making it through the trip and much luck on your treatment.

Congratulations on your first visit!! And, I'm so so very sorry about the anxiety!! It never strikes at anything but the worst times, I swear!

Something you may wish to consider is that Dr. K (in Seattle) is doing is having his patients either do exercise or get a deep tissue massage just before testing. He says that he is seeing a lot more patients of his test positive because these things force the bacteria out of the tissues:
www.prohealth.com/library/showarticle.cfm?libid=29281

I hope the magnesium helps those headaches!!!

Hugs Chick!

Chick, you have bands 31 and 39 IND and your LLMD does not think this enough of a positive? Does she want you to be CDC positive?

I would think that a LLMD would see those bands as reactive and not ask you to spend more money on testing.

Just curious......

Also, Cryptolepis was pretty powerful for me. Make sure you detox regularly and go slow with the addition of drops.

I hate anxiety! I always felt like a child that was over-stimulated. An airport is super busy and I am sure I would have had an anxiety attack there.

Good luck!!

ChickNorris said...
Thanks. Yeah she explained all the different bands to me and what they mean. She is just retesting the IgG I think. Because that's the one that is supposed to show a more acute or recent infection right? That's the one that had those bands. I think she wanted to just go ahead and test again because she wanted to test for the coinfections as well. I don't know.
I am hoping for a stronger response this go around. She said that if 31 or 39 was positive, then I'd be considered CDC positive. I thought that was interesting. Maybe it will help with getting meds and stuff covered by insurance. Most of my labwork was billed through insurance thankfully!
I took half the dose of blue sage and silphirton (spelling?) last night with my magnesium and other herbs and I slept without sleep meds for the first time in ages?! That's kind of a miracle! And best of all, those tinctures have zero taste! I was so scared they'd be another foul concoction I'd have to choke down! lol!
Thanks everyone. I'd go crazy(er) without all you folks here!

IgM is generally considered the acute/recent infection (not IgG)...but with lyme it can stay for weeks/months/years and not seroconvert to the IgG. (like other diseases)
So, we consider IgM an 'active' infection.

You need more than 31 or 39 to be CDC positive.

From their website: IgM - CDC positive if 2 of following bands are present: 23-25, 39, and 41kDa


For IgG: if 5 of the following 10 bands are present: 18, 23-25, 28, 30, 39, and 41, 45, 58, 66 and 83-93kDa.

Awesome you got good sleep on the herbs, they do work miracles sometimes!

ChickNorris said...

Girlie said...

ChickNorris said...
Thanks. Yeah she explained all the different bands to me and what they mean. She is just retesting the IgG I think. Because that's the one that is supposed to show a more acute or recent infection right? That's the one that had those bands. I think she wanted to just go ahead and test again because she wanted to test for the coinfections as well. I don't know.
I am hoping for a stronger response this go around. She said that if 31 or 39 was positive, then I'd be considered CDC positive. I thought that was interesting. Maybe it will help with getting meds and stuff covered by insurance. Most of my labwork was billed through insurance thankfully!
I took half the dose of blue sage and silphirton (spelling?) last night with my magnesium and other herbs and I slept without sleep meds for the first time in ages?! That's kind of a miracle! And best of all, those tinctures have zero taste! I was so scared they'd be another foul concoction I'd have to choke down! lol!
Thanks everyone. I'd go crazy(er) without all you folks here!

IgM is generally considered the acute/recent infection (not IgG)...but with lyme it can stay for weeks/months/years and not seroconvert to the IgG. (like other diseases)
So, we consider IgM an 'active' infection.

You need more than 31 or 39 to be CDC positive.

From their website: IgM - CDC positive if 2 of following bands are present: 23-25, 39, and 41kDa


For IgG: if 5 of the following 10 bands are present: 18, 23-25, 28, 30, 39, and 41, 45, 58, 66 and 83-93kDa.

I may have gotten it backwards then. I already had 41 positive so she must have been talking about IgM, if my 39 had been positive. I don't know, I have notes from the appointment but I didn't get all the details and you all know the brain fog issues. lol! I can't remember which one she is retesting.

Yes, that makes sense.

Well it sounds like a great appointment. And it sounds like you are confident in the Dr's ability. Here's to healing!!!!!