HELP, Undiagnosed Neurological Symptoms suspect Lymes

" I guess it can be hard sometimes not to impose our own symptoms as "normal" " VERY! LOL!

It's one of the biggest hurdles I face as I try to help others. What's normal for my body is not going to be normal for another person's body, even if we have both been infected for over 40 years, have the same infections and same issues with detoxing.

Simply put, somewhere along the line, we are all different.

Hi Oddity,

No, he's had 4 MRIs and thus far those turned up absolutely nothing. It was the 2 spinal taps which had multiple bands. We've seen so many different doctors.

I'm not a hypochondriac at all, but there have been some random things that I've had, but mine don't last. Could be nothing but I do have issues w memory that I can't explain. I attribute most of these minor things to stress.

Today, my husband had a tooth pulled that he'd had 2 root canals done on. LOL, there's another random one some claim may cause neurological issues, but I'm hoping that with that infection gone perhaps his body will be in a better place to tackle this nightmare whatever it is.

I'm having difficulty getting him to do the igenix testing since 2 Lymes tests came bag negative. It was weird on the lab report though as there was a lengthy explanation which all but said the test was not accurate.

I hope you are finding some treatment and on a road to recovery.

Excellent information and a lot to absorb Psil... and all the others.

While most of the Nero issues on his left side, a new one popped up a couple weeks ago. We have videos. It's a bilateral facial spasm and twitching. This totally threw me off and was terrifying. I immediately started looking into it and the hemifacial spasms and twitching were rare enough but I couldn't even find a bilateral example.

I wish I could share videos here. It was almost like a seizure with his head jerking while both sides of his face were doing the same thing.

I'm not convinced it's Lymes, but I think it's possible and these other coinfections and organisms could all be possibilities. Either way I feel many of you are the closest I've gotten to unraveling this mystery. Obviously, I feel time is of the essence.

He read Terry Wahls book and there was no way we could do that diet. I don't buy the organ meat advice. Herbs, spices, vegetables for sure.

Unfortunately, with the inability to do the things he used to and that's a lot. He's depressed and wants to eat pizza all the time.😜 This has to change. No question.

He also got some weird labs back in relation to long chain fatty acids. His were elevated so that started him looking at ADL which is what the kid had in Lorenzo's oil. Ultimately, lab or interpretation did not find he had elevated levels suggesting this.

It's weird how's every time he gets bloodwork done there's always something out of range but not significant enough to tell us anything.
And it's usually normal the next time and something else is off.

Paraneoplastic was checked, and a chest X-ray by my recommendations. Negative! I'm no genius and I'm struggling with some terminology here. But I feel like I have common sense and a better set of problem solving skills than any of the doctors we've seen to date. Of course none of them are personally vested. Some are morons.😜

In a past life I worked 10 years for a horrible health insurance company like Blue Cross. What I learned was the name of the game was to deny and delay EVERYTHING. It was obvious, they had something like 160 codes to deny virtually any claim, but very few to approve. I turned them in to various agencies and the insurance commission, but all that ever happened was a slap on the wrist and perhaps a fine which was ridiculously affordable as they profited $3 billion annually.

So, I totally got sidetracked, but I can believe this documentary even though it looks like a massive conspiracy. The part I find less believable was insurance co not wanting to pay for antibiotics, unless they are priced like our HIV drugs? All these MRIs and tests are outrexpensive. I've lost track of the dollar amt, but likely over 100k already. He hit his Out of pocket max last year and already this year so my position is go for broke and test everything.

I have a lot to look into from all of these posts and super smart people. I feel we are all in the same boat and I'm learning from each of you. I appreciate such immense detail and personal insights.

Thank you to all.

Wesley

Can you get the old Western Blot results and post them on here? We've learned how to read those tests.

You can share pictures and videos on here by using a 3rd party site like tinypic or photobucket or a number of others, get a 'shareable" link and post it here.

Here's a video of someone with bilateral facial palsy caused by Lyme (one reason anyway):
/www.youtube.com/watch?v=8HJ1j1Qff5s

Congratulations on the improvements! I hope that it only continues!

Oh man i got a bad tooth ache shortly before getting sick. Could never figure out what to do with it. Almost wondering if i should just pull it now... I'm afraid i pull it it'll get infected, i get a root canal it'll get infected, i get a prosthetic it'll get infected.. ????