When the herxing never seems to stop...

I'm very confused. I keep going back and forth changing my mind.

I feel like crap again. I took a week off cowdens microbials. I felt OK, not great. But at least I was getting off the couch. I continued the detoxers and got in my gallon of water a day.

I have not been tested for MTHFR, but was tested for B issues. My doctor didn't seem concerned but out me on methylBs. My latest blood work looks good.

10 days ago, i started back on cowdens at half dosage. I'm close to completion of the 2nd month now.

I'm pretty much feeling as bad as I did initially, I feel like I'm in an eternal flu state.

My last visit, my llmd suggested I talk a full month off until my next visit.

I'm so darn stubborn. I'm so petrified of the speedy rebounding of Bart and Babs. So, I didn't listen. And here I am. Again.

Sooo. That means I'd have to start completely over at month one.

I want to ask..If you were me, what would you do? I know...But just entertain me here 🙃

And

If I do take a month off, how much leadway do I give bacteria to take strong hold causing me to loose ground?

I am truly not being impatient here, just trying not to screw up progress.

What is EBV? I'm having the same thing??? How do you test for it?

Traveler said...
Unfortunately, sometimes there's no way to avoid having to just take the set backs to progress and only detox for a while. If the body is that full of toxins, then it simply can't process them fast enough.

If it was me, I'd be trying to evaluate what else may be causing these issues.

You could have more serious detoxing issues, and the MTHFR testing *may* reveal them. I would encourage you to have that testing done.

The other thing is that the flu feeling might be from a virus, and not the bacterial infections you are dealing with. EBV is one that is common with us, and will definitely cause a flu feeling and fatigue. Have you been tested for EBV and other viruses yet? Sorry - I don't remember!

And the last thing that is kind of common that I can think of right now, is simply that you are more sensitive to the herbs being used and so must move quite slowly through the protocol.

I tested neg for ebv on my initial blood work testing in July 2015. Is this a test that is highly innacurate?
Ebv early antigen D
AB (IgG)

Also..Tested herpes virus 6 IgG high

My llmd felt good about cowdens because it's also antiviral.

Traveler said...
No, the testing for EBV is pretty good - and you are in the minority with not having it! So congrats on that.

The HHV6 is what may be causing your issues though.
/www.envita.com/lyme-disease/how-is-human-herpes-virus-6-hhv-6-related-to-chronic-lyme-disease-complex

Just a thought.

Ok thanks Dr. Traveler 😊

As immune system strengthens, does that help with viruses also?

Purrrsiankitty said...

Traveler said...
No, the testing for EBV is pretty good - and you are in the minority with not having it! So congrats on that.

The HHV6 is what may be causing your issues though.
/www.envita.com/lyme-disease/how-is-human-herpes-virus-6-hhv-6-related-to-chronic-lyme-disease-complex

Just a thought.

Ok thanks Dr. Traveler 😊

As immune system strengthens, does that help with viruses also?

Bwahahahaha!!! Okay, thanks for the giggle this afternoon!!

Yes, as the immune system strengthens, it will help you heal from all of these infections, but sometimes it needs some help getting the viral load under control first. For me, Lysine *seems to be* keeping the herpes viruses under control, but I don't have a doctor and can only go on symptoms.

I may have missed something, and I might have this backwards, but if you had tested negative in 2015, isn't there a possibility that with your depressed immune function you could have EBV break through now?

Maybe you should get retested for it.

julymorning said...
I may have missed something, and I might have this backwards, but if you had tested negative in 2015, isn't there a possibility that with your depressed immune function you could have EBV break through now?

Maybe you should get retested for it.

I'll bring that up.

Yes tested neg in July 2015.

My cd57nk (yes that wacky test that no one knows if it means any thing), increased from 38 then to 138 a month ago, so with strengthened immune system, wouldn't that be deactivating the virus?

Purrrsiankitty said...

julymorning said...
I may have missed something, and I might have this backwards, but if you had tested negative in 2015, isn't there a possibility that with your depressed immune function you could have EBV break through now?

Maybe you should get retested for it.

I'll bring that up.

Yes tested neg in July 2015.

My cd57nk (yes that wacky test that no one knows if it means any thing), increased from 38 then to 138 a month ago, so with strengthened immune system, wouldn't that be deactivating the virus?

How were you feeling at that time of the test?

PK, HHV6 can also make you pretty miserable as well.

Did you test for mycoplasma and CPN? I don't recall.

Krimpet 🍔 said...
PK, HHV6 can also make you pretty miserable as well.

Did you test for mycoplasma and CPN? I don't recall.

. I've been sitting here sorting a mountain of tests and I don't believe I've been tested for either

Try Cholestyramine. And a plus is that it lowers your cholesterol but really it binds to the toxins that attach to metals in your system and will bypass your genetic methylation defect if you have it.

And the inordinate life crushing fatigue from doing everyday normal stuff...I know!

And I have CMV and HSV1 likely activated by Borrelia and Co and that just adds to the achey misery.

You may also Try Claritin with your spring cleaning also because it may block Bart and Babesia too (via Manganese channel) or someone can correct me if I'm wrong if Manganese trace metal transport is specific to Borrelia Burgdorferi only.

Girlie said...

borrelioburgdorferii said...
Try Cholestyramine. And a plus is that it lowers your cholesterol but really it binds to the toxins that attach to metals in your system and will bypass your genetic methylation defect if you have it.

And the inordinate life crushing fatigue from doing everyday normal stuff...I know!

And I have CMV and HSV1 likely activated by Borrelia and Co and that just adds to the achey misery.

You may also Try Claritin with your spring cleaning also because it may block Bart and Babesia too (via Manganese channel) or someone can correct me if I'm wrong if Manganese trace metal transport is specific to Borrelia Burgdorferi only.

So if you don't have high cholesterol is it safe to take the cholestyramine?

. I've been taking diametreous earth food grade 2x daily. That also binds. Is cholestyramine a better choice?

From what I've read it is one of the more powerful of the binding toxin chelation removers, like Activated Charcoal and Chlorella blue Green Algae for instance. I believe they use it to clean out the GI tract before medical regimens and it potentiates medicines (u have to wait 2 hours before taking meds).

I don't know if it's safe to take if you don't have high cholesterol, I assume most Americans do and could use this.

I wait 2 hours after eating or medicines, good to take right before bed. It clears up my system in a different way than anything else I've taken.

There is an ionic bond happening somewhere there in the metals and it is drawing something out of the lower intestine that normally accumulates or recirculates there (something about methylation, glutathione, water or lipid absorption in the liver and that mutation MTFHR.)

It's good stuff, they call it a "bile sequestrant" and they use(d) it in the Army as a (bio?) toxin remover.

It puts my treatments on another level entirely especially if I have a superclean diet that day like a kale, arugula, cabbage salad with lean fish. I actually have energy to do things, well today anyway.

I don't know if it's better than diatomaceous earth, but I'll bet there are scientific articles comparing their qualities to say activated charcoal, chlorella blue algae (similar?).