I Don't Know if I Can Do This

I react to everything. I was OK on Ceftin (1st abx I started) but herxed like crazy the first time I took the full dose. Dialed way back, and was doing pretty well. Gradually got up to 750 mg and was doing well. LLMD told me to stay there for now and add Tinidazole - just 250 mg/day for now. Thought it was going to kill me after just one pill. Doc told me to stop taking it and wants me to replace with Grapefruit Seed Extract. Haven't started that yet and I'm terrified to try it. He also wanted me to add Colloidal Silver. Since I was feeling well, I did. Half dose/day. Now I'm herxing like crazy again and as sick as I've ever been. Almost went to the ER last night.

Thing is, I started feeling really bad shortly after taking my last dose of Ceftin last night. So I don't know if it's the Ceftin I'm reacting to or the Silver (took the silver in the morning). Started an extra 250 mg of Ceftin on Monday.

Seriously, I can't do this. I can't take any of the things I need to get better. Herbals make me sick too. I'm detoxing like crazy, and I don't think my diet could be any cleaner. But it seriously felt like it was killing me last night. I went from sweating like crazy to freezing. And not anxiety, but just crazy restless, if that makes sense. I spent hours in bed just rocking and crying hysterically. I can't live like this.

I just feel so hopeless, and I don't know what to do. Nothing's going to work if I can't take them.

Back off of everything until you get calmed down.

I am so sorry you are hurting so terribly. I wish I had all the answers.

The full moon is out and making a lot of people more sick.

I declare this weekend the time to baby yourself and be super nice to you. Cuddle that blanket and sip that warm bone broth and watch a gentle movie.

I haven't had MTHFR testing, but I know my LLMD does it, so I'll ask.

And in case I'm not depressed enough, my daughter's first volleyball game is today, and I'm going to miss it. They are on Spring break next week and will probably be spending most of it with my mom because I don't even want them to see me like this.

I'm so very sorry that you will miss your daughter's game, but remember to put this into perspective - you are going through this so that you can be there for her later, instead of still being sick and unable to do things.

There are other things you can add in to your detoxing routines - we can offer suggestions if you wish.

It's a good thing for you to take a bit of a break and just concentrate on detoxing the next couple of days - it may be just what you need.

Hang in there. I do understand just how hard this can be, but we are working towards a better future for us and our families.

I am just chiming in to send you hugs of encouragement, love, and understanding 😙

Oh, and I'm taking Alka Seltzer Gold and Liposomal Glutathione.

Suppliments are Sunflower Lecithin, multi-vitamin, probiotics (2 different ones), Restore4Life, and potato starch

My body reacts the same way to anything new I introduce. I have to start out with very small doses. I understand completely how frustrating it can be. It's hard to remember when you're in the middle of a healing crisis to remember that treating Lyme is a marathon, not a sprint. I have been right where you are and it's not fun. Missing out on family things makes it even harder. But I know you can do it.

I'm not sure if you follow the group called Tired of Lyme. They have some good easy articles which have been helpful to me.

www.tiredoflyme.com/11-reasons-why-youre-not-yet-better-from-chronic-lyme-disease.html

http://www.tiredoflyme.com/detox-methods.html - I find this one works the best for me. Alka-Seltzer Gold combined with the antioxidant glutathione. I make my own glutathione because it is very pricey. Here is the link on how to make it: https://www.youtube.com/watch?v=NMHN3IQjtTY

Here is another one that I find helpful:
http://www.prohealth.com/library/showarticle.cfm?libid=21317

When I get really bad Lyme Headaches two Benedryl really kicks it out. I'm not sure why it works but it does.

This was a meme that I found and I have it taped to my mirror: "On particularly rough days when I'm sure I can't possibly endure, I like to remind myself that my track record for getting through bad days so far us 100% and that's pretty good."

Sending lots of hugs

I just read your post. I can relate with everything. Having Lyme is awful. And being super sensitive to medications makes is all SO much worse because you go to a mentally scary place wondering "how in the world am I ever going to get better?!?!"

I am extremely sensitive to everything too.... including totally random things like glutathione, low dose naltrexone, detox teas, etc. Plus all the medications! My best advice is tiny tiny doses. And slowly slowly slowly increase over time. This will require big time patience. If you are anything like me, I want to swallow all my pills at once and nuke the crap out of these suckers inside me. But... NOT the answer for people like us

I just wanted to let you know that you are not alone and your fears and frustrations are totally normal. And that you WILL get better. There will be lots of bumps in the road. But you will persist and come out standing strong on the other side. Believe that. And... get the MTHFR testing like the others have suggested. If you test positive, then you have your answer and can move forward creating solutions.

This is what we are here for!! Please do let us know if we can be of more help to you!! We definitely understand the struggle on a very personal level!

We call gene testing "MTHFR" testing sometimes...........BUT thats only one gene.

There is a list of liver phase II possible detoxing related genes, they are different from MTHFR genes. I have double copies of some of these and detoxing doesn't work to hot for me. For this, I did constant liver panel testing on abx.

Its enough difference that high alcohol loads could kill me faster than the average person without these genes. This IS why some alcoholics live and some die. Luckily I never craved alcohol/hard drinking, I'd be dead by now.

If one uses the "Sterling App" of Mthfr Support website ($50) for decoding 23andme raw data you will get this info, two pages for it out of the 37 in the report.. The free ones dont have this.

astroman said...
We call gene testing "MTHFR" testing sometimes...........BUT thats only one gene.

There is a list of liver phase II possible detoxing related genes, they are different from MTHFR genes. I have double copies of some of these and detoxing doesn't work to hot for me. For this, I did constant liver panel testing on abx.

Its enough difference that high alcohol loads could kill me faster than the average person without these genes. This IS why some alcoholics live and some die. Luckily I never craved alcohol/hard drinking, I'd be dead by now.

If one uses the "Sterling App" of Mthfr Support website ($50) for decoding 23andme raw data you will get this info, two pages for it out of the 37 in the report.. The free ones dont have this.

Thank you for the info. So, if you have trouble detoxing, how did/do you handle treatment? Alcohol has never been an issue for me, and I certainly haven't touched a drink since I got sick. So I don't know that I an use that as a barometer at all.

I didn't take any abx or Silver today, just support supplements (probiotics, etc.). Probably won't take any tomorrow either, since I'm still feeling pretty horrible. Have a feeling it's going to be a long night.

When I'm back to feeling well, I will start abx again slowly, one pill at a time until I get where I was. Then I'll add in the silver but start slow. It's a spray. Full dose is 6 sprays (3, twice a day). I started with 3 sprays once a day. I will start with just one spray and build from there.

I have a follow-up with my LLMD in a month. I'll ask him about the gene testing. I also want to talk about the grapefruit seed extract. I bought the brand he recommended, but the capsules are 250mg each. One pill will send me into a tailspin. Going to ask him for drops, so I can literally start with one drop and go from there.

mm-I may have missed this from a previous post but imo the most important detox is pushing fluids. The meds are killing toxins which is great BUT you have to help your body flush them out or they make you feel a lot worse. I know it's really tough to push fluids when you are nauseous but it will help.