1000Daisies said...
I don't have words of wisdom, but I wanted to say I'm so sorry you are suffering.
I know how hard it is to miss things for the kids (whatever the ages). I wasn't functioning yesterday, and I was in bed for nearly all afternoon (which is unusual for me). I WANT to do things, but my body wasn't working. I'm better today so far.
Also, Kid#1 had some very dark years - many dark days that were beyond horrible. But he's very functioning now (still has issues but is so much better). He was very difficult to treat. So, I'm sharing this because there is HOPE - even during those dark days when you think there isn't any hope!
I know it's not exactly the same as yours (yours sounded horrible!). But just know that you are not alone.
There is always the hope, for me at least, that tomorrow will be a better day!
{{{HUGS}}} your way!
Thank you for your kind words. Unfortunately, I'm not much better. My symptoms seem to be getting more neuro, which is really scary. I'm afraid to take anything because I don't know if it's a herx or a true allergic reaction. How did your son (#1) end up being treated? I seriously can't tolerate anything. I know my LLMD is very good, but it's like I can't even explain how horrible this feeling is. It's so scary. I'm depressive and anxious almost to the point of being manic. It's never been that bad before. I get a flushed feeling like a wave over my body and feel like I'm going to pass out. This is what started happening right after taking abx (within 15 minutes). Not at first, but it seems like I build up to a certain level and then I hit a tipping point. I'm so tired that it hurts. For the last 2-3 days, I've had absolutely no appetite. I've forced myself to have a few green smoothies, but that's it. I've already lost a ton of weight since this all started; I don't need to lose any more. I tried to eat some brussel sprouts yesterday. Tasted one and felt like I was going to throw up.
I haven't taken any abx since Friday. Going to call my LLMD tomorrow and see if he can squeeze me in.