Stopped ALL Antibiotics; Relapse? Input Needed

I have been on oral antibiotics since march of 2016 and IV antibiotics since August of 2016 stopping all of them March 5th 2017. So, various combos of orals hitting Lyme, Babesia, Bart, Mycoplasma for close to a year and IV rocephin for 7 months.

After stopping all of them back in March, whilst still taking my vitamins and minerals as well as Japanese Knotweed and various mushroom extract supplements I felt better. My small fiber neuropathy cleared up or was lessened considerably as was my joint pain. After two weeks some concerning symptoms started to return. It may be placebo but back when I had neuroborreliosis it was such a subtle come-up that you could never really judge whether your current head space was normal or not. Of course once I got on IV it was like night and day.

So, after two weeks muscle twitching started to occur. Stiff neck, slight fatigue; nothing too bad. I was able to run about and do things but something happened by the middle of the third week.

I fell sort of lost; like spacey, disconnected, dream like head space that doesn't feel nice at all. This is a lot scarier than all the physical joint and muscle pain I have. It's so subtle but makes me feel alienated. I had sort of a similar symptoms with neuroborreliosis but I can't really remember because it was kind of a blur and my memory was terrible.

Birthday suit,

Not a lot to add since I don't hold a ton of understanding about the abx. but so sorry you are going through this. It must feel like a big let down.

Any chance immunity has to be built up and that's what is going on?

Hugs to you.

I was thinking as I was reading your post that you had been herxing for quite a while, which is why the small fiber neuropathy eased up as well as the other things - but once you had been off of treatments for long enough, the symptoms started returning because you weren't in treatment long enough. I would ask the same questions as Girlie, so no need to post them twice.

Huddie said...
Deejavu,

One of the most fascinating articles I have EVER read. Thank you very, very much.

Hope you are well.

She's our detox guru, don't you know!!!!

LOL! It does!!!! There is sooo much information that it takes a lot of people to get all the information posted!!

Deejavu was the one that taught me not only the importance of detoxing (and literally saved my life), but taught me how to get started detoxing when the body is screaming out for help and too sensitive to really handle it. She was able to help me even though my brain refused to work!!!

She's definitely one of those "Lyme angels"!!!! She sticks around still (even after being healed for 11 years!!!!) helping out when she has time in her busy schedule!!!

Traveler said...
She's definitely one of those "Lyme angels"!!!! She sticks around still (even after being healed for 11 years!!!!) helping out when she has time in her busy schedule!!!

This is INVALUABLE and a main reason why people are healing from this horrific condition, despite the medical industry's neglect.

birthday suit -

I agree that you probably have some more healing to do and that also includes detoxing. We have to detox at the same pace as we are killing and reducing infection loads or the sx remain/return/confuse, etc…

If you haven't already, it's important with the gut-brain blood vessel connection that your gut is healthy and regularly detoxed, so please use a good binder - lots of info online about that. And your brain could use some support detoxing with Nutrimedix Pinella and Burbur. Also try some anti-inflammatory support like turmeric, etc. And make sure you're not suffering yeast/fungal overgrowth - so many sx overlap w/ Lyme & Co - it's confusing.

I also think switching up the antimicrobial protocol is usually beneficial. I'd get a stellar detox protocol in place and then re-introduce an herbal protocol to see how far that gets you. If you still have trouble you can try adding in abx. I think most of us are having success with a hybrid approach.

-p

Post Edited (Pirouette) : 4/15/2017 10:52:54 AM (GMT-6)

If I were you - i would return to the protocol you were using when you were symptom free and stopped treatment.

I wouldn't mess around and try something new...do what you know works.

You can add more herbs to that protocol ...and then wean off the abx ...but maintain the herbs longer....stasy on them.

Now's not the time to 'mess around' with protocols...you want to get back to symptom free sooner than later - IMO

But - make sure you have a really good detox plan in place..to get rid of those toxins.