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Part of Lyme?

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Posted 4/16/2017 1:16 AM (GMT 0)
My mom (written about in previous posts) is having some more symptoms that I would like everyone's opinion on. Her most recent is swollen, hot, & red feet and knees. Has anyone ever experienced or heard about this? She has been having some more movement in her left arm &a wrist which is awesome news, but everything else is remaining the same so far. We're just wondering if the feet and knee thing means anything?

-Kari
Posted 4/16/2017 2:40 AM (GMT 0)
Yes, that sounds like more symptoms.

That is good news about her left arm and wrist movement.

I think the new symptoms - could be herxing. I would imagine it must be difficult having her effectively detox been in the nursing home. The massive die-off of toxins creates inflammation.

Is she in a lot of pain from this? Does it help if you put cool damp cloths on her knees and feet?


Remind me - what antibiotics is she currently on, and what doses?
Posted 4/16/2017 3:37 AM (GMT 0)
Did Mom finally find a Lyme Literate Medical Doctor?

Did she have a lyme test?

It has to be so difficult to see her hurt and be so uncomfortable. I would be a mess if it was my Mom.

If in fact she has lyme disease it is called the great imitator. It seems like most doctors can find anything else to call it, except lyme disease. Most doctor aren't very well schooled in lyme disease and that is why we recommend a lyme literate medical doctor.

For relief of her burning feet - I had an extra pillow on the side of my bed. It got really nice and cold and when my feet started burning in the middle of the night - I put that pillow on my feet.

Usually within 30 minutes my feet warmed up that pillow. I just put it again on the side of my bed and let it get cold again. Then I started the whole procedure again.

I tried all kinds of lotions. I could not find one that kept my feet cool. The cold pillow was the best I could do.
Posted 4/16/2017 3:44 AM (GMT 0)
Yes, PeteZa - she has been diagnosed and is being treated by a LLMD.
Posted 4/16/2017 6:59 AM (GMT 0)
Thanks everyone for the replies. I figured this was part of it but wanted to double check. Yes, she's in pain from it. Her ankle is also swollen and that has been hurting her a lot. Being in the nursing home definitely hinders the amount of detoxing she can do since everything has to go through here.

My mom is on malarone 250 mg and doxy 100mg twice/day. We had the phone conference with the LLMD and he didn't have much to say. Didn't give anymore of an indication to if he thinks this is actually Lyme disease. He said he wanted to keep her on the same antibiotics for another month and that she should start improving faster. That in itself made me kind of upset as I know this could take quite awhile before showing signs of improvement.

-Kari
Posted 4/16/2017 7:13 AM (GMT 0)
You're right, it could take longer for more improvements.

But she has improvements with her left arm - and that is significant.


I don't think people with "ALS" would have any improvements.

Hang in there, Kari. I know this must be a lot to deal with.
Posted 4/16/2017 12:16 PM (GMT 0)
Hang in there and try to think positive. Your mom is lucky to have you. I'm sure you are making this difficult time a bit easier for her because of your support.
Posted 4/16/2017 5:00 PM (GMT 0)
Agreeing with Girlie - any symptom improvements is significant, as someone with true ALS would not be seeing any symptom improvements.

I also agree that it's part of Lyme - it's well known to attack joints, particularly if they have injuries, or in your mom's case, just that much 'wear and tear' on her joints after making it this many years in life.

You can try using ice packs to lower the specific inflammation in the joints, or if that makes them more painful, try heat. For some, ice helps and other heat may help. I use both, depending on just what's going on.

Keep looking for ways to incorporate more detoxing in her schedule that you can manage while she's in the nursing home. Something that's not talked about a lot is Jernigan's detox tinctures. It's something else that does help many. There are three different types, but they are all called NeruoAntitox II. Just pick one to target detoxing in that area.
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