Lyme Depersonalization and Derealization

Can't find a recent thread on Lyme disease depersonalization and derealization, and I know how new approaches and new studies are produced every day:

I stumbled across this emotional state found in Lymies, and I am so relieved to know where to file this thing! Have been in chronic pain for over a decade and contracted Lyme (& Babesia & Bartonella & EBV & HHv 6 & I-don't-know-what-else) in 2012 while weighing 98 lbs from hospitalizations, so it makes sense that I would find some coping mechanism for everything that ails me...

My question is; does anyone know of a way, any type of way, to cope with this disconect from my body? I have always thought I had 'Pain Amnesia' but maybe this is also D. & R.?

There comes a time, I think for most of us in chronic distress, when we have to come to the table and sign that contract with ourselves that commits to believing that "Yes, I will survive this, and I will do everything I can to actively fight for my life" - and among all of the confusion as to is-this-a-herx or is-this-the-disease or is-this a leftover from my car accident or am I simply dying, this Depersonalization and Derealization state is truly whipping me the most...and I can't sign that contract yet.

So, anyone know how to deal with this? Please?

thanks Girlie - Have a LLMD who teaches other LLMD's on how to treat the difficult to treat Lymies, and I'm on tinctures because I also have Cyclic Vomiting Syndrome and cannot take antibiotics. I also have the MTHFR mutation and a serotonin re-uptake gene mutation and have been in a downward spiral with herxing (genetically engineered with trouble detoxing) for over a week now - at least, I think it's herxing - and I've stopped tinctures for now because I'm approaching a 10 out of 10 bedbound pain level - sorry, I know I'm whining...

I do think you are right about finding better ways to help my body detox, but even Burbur gives me a herx - and I'm afraid to tell my LLMD that every intuitive cell in my body is telling me not to start the malaria script my LLMD wants me to (I will tell him though)...uh oh, whining again...

Anyway, I'm wondering and researching what detox method might not hurt me because I have a big-hearted rescued dog who depends on me and won't trust anyone else...so I have to come out of this unending spiral!

I'm very allergic to sulfur, so I don't quite trust Epsom Salts. I'm attracted to the idea of home-made foot soaks, but I'm wide open to hearing what has helped you most?

Much thanks, and sorry for being so verbose.

Some other detox ideas:

adding fresh lemon juice to some of your daily glasses of water.

Taking a binder (Activated charcoal is one example)

Dry brushing your skin before you bathe or shower.

Are you on a liver support supplement? That's important.

What about probiotics?

So are you currently not treating yet? But are planning to start Babesia treatment? You shouldn't start that treatment until you are detoxing effectively..

What about warm baths without the epsom salts? I add lavender EO in my epsom baths...
Also Hydrogen peroxide can be added to a warm bath.

Oh - you also get a flare late afternoon/early evening?

I have right from the beginning....it's crazy...


Hope you can get some relief from the baths. That is one of my best detoxes.

I have to say though, at first - they didn't help...I remember sitting in the tub crying...
it took a long time I guess for the toxins I had built up in me to flush out.

So, make sure you stick with the detoxing...slowly adding in new ones...

How would you go about detoxing in the bath tub?

Owensboro said...
How would you go about detoxing in the bath tub?

The temperature of the bath should be about 98 degrees. You don't want it to be hot - as that can make you feel worse.

So fill up the tub - add in the epsom salts and hydrogen peroxide if you're also using that. Dry brush your skin and hop in.

You might want to limit your time to about 5 minutes the first time...see how you feel.

You can increase the heat once you test out the temperature...and raise it the next time if you like.

Thanks for the details - this Depersonalization and Derealization thing is horrible. I'm still struggling with it, maybe because I'm a writer and I can't access control of my emotions-body-daily tasks. It's like when most people's arms go to sleep and then there's this horrible pins and needles pain when the feeling comes back (I have Thoracic Outlet Syndrome from car accident - pain/neurons don't do this in arms any more) and when I'm coming out of these episodes (they last so long recently) the emotional pins and needles are Lyme panic and anxiety and I just cannot function!

Do you think this is possibly related to herxing - has anyone experienced this after extreme stress and herxing? I have sedatives from my Dr. but nothing chemical works on my body during an episode and is not enough after an episode (don't want to get back to post car accident meds anyway)...so, I'll try the bath suggestions because I think I'm finally able to get out of the house to the grocer (sometimes a week before I can walk out the door), but this is not fear of public because I'm always better in public!

Anyway, thanks - this is absolutely worse than any pain I've had before and I am including when my spinal wore off while I was still on the op table during my Cesarean!