Thoughts on my recommended lyme treatment?

I don't know enough about the abx to comment on them, but I do know that if you have had symptoms for about 2 years, 6 weeks of treatment is not enough. So I hope that your doctor has a plan to continue treatments after that, otherwise, insist on continuing treatment for 2 months past the resolution of all symptoms.

Looks very comprehensive. Antibiotics with o2 therapies makes sense.
I would add get checked by a biological dds. Many times that is the missing piece
and you don't want to go through years of therapy and not get better because dental is holding you back.

I'm sure you already are doing this but a clean diet-zero sugar and a sauna once in a while would also help.

We've "talked" through email already, but this is the same protocol I am using (we are seeing the same doctor). It has worked well for me so far, and I have some big improvements.

For the record, he will keep you on abx for longer than 6 weeks; he just probably wants to re-evaluate to see if you should change things up a little bit.

He has also suggested ozone and UVL to me, but I haven't done them yet. I do think they have a place in treatment, but I am going to give the abx a chance to do their job first. And for now at least, my insurance company is still paying for them. He is also big on colloidal silver, which I will probably add in once I get all the abx under my belt.

As I mentioned, GO SLOWLY. His schedule for ramping up is a suggestion. But if it is too much, slow it down. I went way too quickly in the beginning. Now I have learned what my body will tolerate and what it won't, and I tailor my med changes and increases accordingly. He if fine with that. Even his paperwork says in big, bold letters to take antibiotics as your body tolerates them, and even goes on to explain that cutting back or stopping them to give your body time is OK.

When I did Herx big, I would go in and get some Myers Cocktails (vitamin infusions). They helped A LOT. His infusion nurse is great, and can usually get you in the same day. He will customize the drips for you and add things he thinks will help you personally. I have done Myers Cocktails at other places that were less expensive, and noticed a huge difference. They weren't nearly as effective as the ones I get in his office. I think ingredients in his are of a much higher quality.

Also wanted to add that he is also getting an infrared sauna. It's already been ordered, but I don't know when he'll have it up and running. His infusion nurse told me it should be relatively inexpensive too.

atxlyme said...
I recently tested positive for lyme(Borrelia burgdorferi F7 and Bartonella henselae) and my doctor recommended the following:

Ceftin: 250mg two, twice daily (build up to it)
Doxycycline: 100mg 1x for 4 days, then one 2x/day.
Tinadazole: 500mg one 2x/day for 3 days, then 4 days off
Probiotic-3(AOR) one 2x/day in between meals

He wants me on for 6 weeks. (I've noticed symptoms for about 2 years, was really bad, had gotten better through diet, but still have a lot of fatigue, some dizzyness/brain fog)

EWOT and ozone therapy were also recommended.

I'm just learning about lyme, and would love any insights into the protocol he suggests for treating it.

Hi atxlyme - you've been given some great information and help from the members.

Generally doxycycline is given in higher dosages (200 mg twice daily)...but given the fact that it's combined with the Ceftin...and pulsing Tinidazole - maybe it's enough? Or, your LLMD is starting you off low...and will increase later.
Ceftin is a good med for lyme. i found them to be difficult on the throat. Mine were 'soft' and seemed to start dissolving on the back of my tongue. I had to eat right after taking it.

Good to see that your LLMD has you starting off low...and increasing the antibiotics...that will help make them more tolerable.
I doubt he thinks 6 weeks will be enough - I'm thinking he just wants to evaluate how you're doing after 6 weeks?

Girlie said...
Generally doxycycline is given in higher dosages (200 mg twice daily)...but given the fact that it's combined with the Ceftin...and pulsing Tinidazole - maybe it's enough? Or, your LLMD is starting you off low...and will increase later.
Ceftin is a good med for lyme. i found them to be difficult on the throat. Mine were 'soft' and seemed to start dissolving on the back of my tongue. I had to eat right after taking it.

I read the 37 page document by Dr. B and he recommends not staring with Ceftin. Any insights on this?:

"Cefuroxime axetil (Ceftin), a second generation agent, is also effective against staph and thus is useful in treating atypical erythema migrans that may represent a mixed infection that contains some of the more common skin pathogens in addition to Bb. Because this agent’s G.I. side effects and high cost, it is not often used as first line drug."

Girlie said...
I doubt he thinks 6 weeks will be enough - I'm thinking he just wants to evaluate how you're doing after 6 weeks?

I scheduled a follow up visit with him this week

Girlie said...
So, he's saying it's going to give you G.I. side effects and you'll pay dearly for them! lol.

?

I'm not worried about the cost, but the side effects. This is the document I'm referring to:

http://www.lymenet.org/BurrGuide200810.pdf

atxlyme said...
I recently tested positive for lyme(Borrelia burgdorferi F7 and Bartonella henselae) and my doctor recommended the following:

Ceftin: 250mg two, twice daily (build up to it)
Doxycycline: 100mg 1x for 4 days, then one 2x/day.
Tinadazole: 500mg one 2x/day for 3 days, then 4 days off
Probiotic-3(AOR) one 2x/day in between meals

He wants me on for 6 weeks. (I've noticed symptoms for about 2 years, was really bad, had gotten better through diet, but still have a lot of fatigue, some dizzyness/brain fog)

EWOT and ozone therapy were also recommended.

I'm just learning about lyme, and would love any insights into the protocol he suggests for treating it.

Very good to start off slowly on the antibiotics. Once you have your 6 week follow-up with the doc I would suggest the following:

-Increase doxy to 200mg 2x/day
-Add rifampin for your bartonella at anywhere from 300 - 600mg 2x/day (make sure to watch your liver enzymes)
-Continue tindazole at same dosage
-Pulse ceftin and increase dosage to 500mg 2x/day (Ask doctor for preferred pulsing schedule)
-Add in biofilm busting agent: nattokinase, stevia extract (from nutramedix), serrapeptase, or xylitol. Ask doctor which they prefer.

Ramp up slowly if you do go this route! Rifampin and biofilm busters could cause a herx.

Post Edited (Sheeks175) : 5/15/2017 6:04:43 PM (GMT-6)