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PK Protocol for neuro lyme

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Posted 5/18/2017 1:08 AM (GMT 0)
Has anyone here tried the PK Protocol? Have you had any success?

http://www.nourishbalancethrive.com/blog/2014/11/25/pk-protocol-chronic-lyme-disease/

My LLMD told me about it during my last visit.
Posted 5/18/2017 1:14 AM (GMT 0)
Yes.. it helped stop the twitching ...iv phosphatdylcholine and iv glutithione for nerves ..iv magnesium and iv curcumin for inflammation ...infection still need be addressed bit good for rebuilding. .. ..meyers meh ...lil pricey
Posted 5/18/2017 1:31 AM (GMT 0)
I've lost feeling in my left hand and it's crawling up my arm. I think I'm starting to lose feeling in my feet and other hand too. Was wondering if something like the PK protocol might help. Very scared I'll lose all feeling in extremities.
Posted 5/18/2017 3:55 AM (GMT 0)
It was pulsing bvt and roceph with bart drugs/herbs(rifampin,zith,hh2,sida,allicin) that gave me back my nerves ...the phoscola and vit ivs gave them some thing else to eat while i scrambled ..

i have been doing high dose royal jelly and spratic high dose biotin and collagen and lions mane ..

kill build kill is the name of the game .nerves can rebuild at 1nm a week but it is paramount to get the microbes off of them

i am also having pinching from my shoulder rolling foward and c5 c6 scoliosis..ozone injections and bvt is my direct assult

when i was having the wasting of my feet and hands i was sure it would make me a invalid ..scary crap ..whats a person if he cant walk or grasp..
Posted 5/18/2017 9:54 AM (GMT 0)
bluelyme, what is bvt? Were you taking rocephin as an IV or intramuscular?

I'm not familiar with zith, hh2, and allicin.

I'm assuming you were taking a tincture of sida acuta?

I'm also not familiar with royal jelly. What is that?

You felt that ozone really helped you? I was considering ozone therapy, but wasn't sure if it would do anything.

Yeah, I've never been scared about this disease until now. When you start losing feeling in your arms and legs and feet, that's what stuff starts getting real serious.
Posted 5/18/2017 10:25 AM (GMT 0)
I think all you can do is start trying stuff and stick with each one for a few months to see if one works. I take a good amount of what blue suggests. Buhner says sida for numbness. I didn't notice much on it. Wahl's type paleo diet and keep moving if you can!
Posted 5/18/2017 2:57 PM (GMT 0)
I have never been tempted by the PK protocol because it uses products made from soy, and I'm quite allergic to soy, soy oils and lecithin from soy- but phosphatidyl choline is also found in eggs (in the runny yolks), so I eat eggs daily and this does help.

For the nerves, I'm using Lion's mane and have seen some good results so far with my nerves healing - slowly of course, but it is happening. The myelin sheath is being damaged by the infections, and Lions mane has been shown to repair myelin sheath.
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