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confused about lyme/meningitis

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Posted 5/21/2017 10:09 PM (GMT 0)
hi everyone,

just an overview, last year I was experiencing weird symptoms Numb face, sharp hand pain and chills. and did a bartonella test through ontario public health that came out positive which furthered me to get the igenex test which came back negative with these bands:
23-25 : I
31: I
34: I
41: +
58: +

Igg:
39: I.
41: +++

the doctors then declared me negative for lyme even tho i had been on a rif+doxy combo for a month. I saw and infectious disease specialist who said the positive bartonella is present due to any past exposure to cats and me feeling better after treatment was a placebo affect.

I was feeling better for about 4 months until i developed a sudden fever days after dermal filler (docs say unrelated) the fever came with an excruciating headache and stiffness i was sent to the hospital for suspected Meningitis.. after recieving fluid the ER doctor did not feel it was worth the risk of a spinal tap for meningitis and to return if the symptoms worsen or a rash is present. I had good weeks and bad weeks since some weeks nausea and dizziness others just general fatigue. still not as worse as my original symptoms last year.

its been 2 months since my hospital visit, i have become a hypocondriac since my heavy symptoms i got last year and still have the dizziness and drowsiness and as of yesterday got some bright red flat spots. one on my chest the other on my neck.. looking similar to a meningitis rash or babesia spots..

I am at a loss because i declared negative for lyme by the doctors here in ontario and am anxious about meningitis due to its fetal and debilitating symptoms. all I know is im not in the same healthy state as i used to be 2 years ago. I'm curious as to what you guys think of this?
was in remission from my 1 month antibx and am now experiencing a flare up or its just back? is this meningitis?
where do i go from here?
Posted 5/21/2017 10:54 PM (GMT 0)
Hi Msloray -

First, I'm glad you found us and sorry you are here though. I think we can help you with some good info.

I'm glad you got to the MD and had a few things checked out and got tested for TBD - the IGeneX, in particular. Bands 23, 31, 34, 39 are all Lyme-specific bands, meaning the immune system has responded to parts of the Lyme (borellia) microbe or its DNA. So, you can't react to something that isn't there. That is a positive reaction to the presence of the microbe that causes Lyme disease. That's step 1. Step 2 is determining if the microbe has manifested into disease symptoms and yes, it has.

There are many reasons the WB test results are falsely negative like yours- mostly due to the fact that they were developed for vector surveillance purposes - so they are overly strict in their interpretation of the bands (which is why they require a specific number of specific bands for a positive result). Even the CDC states they are not to be used solely for diagnosis but the entire process is unnecessarily confusing and most MDs are clueless.

I am very sorry for the news but you were smart to get tested and the good thing is IGeneX is the superior test and it has shown valuable info for you. Your instincts were right on target.

Also - please take a photo of your rashes and document any changes, mark the edges w/a marker and re-photograph if the grow.

Next you'll need to find a Lyme specialist to partner with. Please make a new post with "Looking for LLMD in Ontario" in the subject line. Also, please email our moderator Girlie who is also Canadian and can help you more specifically.

-p

Post Edited (Pirouette) : 5/21/2017 4:58:34 PM (GMT-6)

Posted 5/21/2017 11:13 PM (GMT 0)
There aren't any LLMD's in Ontario, but there are LLND's that can treat herbally.


Lyme patients who want to pursue abx have a couple of choices: Drive over the border and see a LLMD there (I have contact info on a LLMD who many Canadians go to) or travel to BC and see one of several LLND's who are licensed to prescribe antibiotics.

There is at least one LLND who will - after an initial consult do follow up appointments over the phone.

Shoot me an email and I will send you information.
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