Holy Herx Batman!

You are a brave one girlie.tcb. i though babs was only succeptable when it was eXtracellular ?

bluelyme said...
You are a brave one girlie.tcb. i though babs was only succeptable when it was eXtracellular ?

...so when is it extracellular? Not sure what you mean, blue?

The Babs herxes have woken me up a few times now.

I don't recall the lyme or bart herxes doing that....


i read something a few days ago that Babs symptoms are worse at night...

So you're taking Malarone. I'm doing the liquid 'paint'...and it's starting to get to me. I may start gagging on it soon.

So you're almost at 4 months.

I think I'm at 2 1/2 months now...so I've got a ways to go.

I don't have muscle pain...but I do have nerve pain. Wanna trade?

I hope this proves to be the treatment that we turn the corner with, Loutucky!

I'm on similar medications and I have similar episodes where I wake up in the middle of the night all sweaty and heart just racing.

Girlie, do you find yourself dreaming more than normal?
Have any difficulty falling asleep?
Any new abnormalities in your blood labs?

I added Mino today, starter dose. Zithro is on deck after I come off the Augmentin and complete a couple weeks of Tini.

On my final cycle of Albendazole.

I guess the pinches of Epsom salts is contra Mino so I just have Flax seed to attempt to maintain lower inflammation.

Will know soon which was making the most difference.

Hey Girlie , I am sorry youre feeling bad and hope you get better soon. Why did you stop the Zithro afer a month?

Mustard Seed said...
I'm on similar medications and I have similar episodes where I wake up in the middle of the night all sweaty and heart just racing.

Girlie, do you find yourself dreaming more than normal?
Have any difficulty falling asleep?
Any new abnormalities in your blood labs?

I've always been a dreamer...but that stopped for a couple of years...and came back prior to this babs treatment.

No, don't have trouble falling asleep...except when I wake up sweating, and heart racing..then yes...

My last labs were over a month ago...and my liver function had risen somewhat - but not quite out of range.
WBC was a little low (as it has been)

ChickenArise said...
I added Mino today, starter dose. Zithro is on deck after I come off the Augmentin and complete a couple weeks of Tini.

On my final cycle of Albendazole.

I guess the pinches of Epsom salts is contra Mino so I just have Flax seed to attempt to maintain lower inflammation.

Will know soon which was making the most difference.

Hey Girlie , I am sorry youre feeling bad and hope you get better soon. Why did you stop the Zithro afer a month?

Chicken - you taking epsom orally? How much mag in the 'pinch'? I was told that a little bit of mag with mino is okay...but I guess it's best not to chance lowering the mino concentration in your blood.

My LLND prescribes me two meds - Rifampin and a second one..that has changed during the past year (my request) I also saw a different LLND a couple of times a year ago.

So, now I'm doing a pulsed approach and like to incorporate a third med. I had some (not much) of zithro, biaxin, and now bactrim leftover...so am using those 'extras'.

I am getting ready to place an order...but not easy finding a good pharmacy that a) ships to Canada and b) doesn't require a script.

i did some investigating...and didn't make notes...and can't remember the details on 4 pharmacies I have listed.
So starting back at Square 1 again.

3 months with mino/plaq, 2 1/2 with rif, 4 wks bactrim. I talk to my doc mid june so that will be almost 8 wks. If response has not changed I either want to go all herbal or do a babs challenge for 2 months (with sun-friendly abx). He does not suspect babs but when I read about symptoms it definitely sounds like a possibility. Maybe it would explain why the only abx I felt a good shift on was azith/plaq. I stopped bc i got some weird ear stuff (hard to explain but deafening silence is the only way i can put into words). This was with prior doc. BUT, i realized they had me taking it 2x a day which it normally is dosed 1x. So maybe that is why I had the ear stuff.

Girlie said...

Chicken - you taking epsom orally? How much mag in the 'pinch'? I was told that a little bit of mag with mino is okay...but I guess it's best not to chance lowering the mino concentration in your blood.

Yes I was. I had to tweak the dose lower several times but after a week I was experiencing the least amount of inflammation I have experienced in a long time.

By pinch I mean maybe 1/10 of a gram of a in a liter of water flavored with a splash of grape juice and sweetened with Xylitol. I consume about 4 liters in a day.

I know some doctors standpoint on this is transdermal is better than oral but I had little improvement from transdermal. It could be because it was my homemade concoction that I was spraying on myself, or I didn't give it enough time.

I look at it this way. If the buggers don't have their favorite minerals to eat, they are going to move on to their second favorite, and so on.

I am not worried about feeding them, as that is what the abx and xylitol is for. I am worried about not getting enough.

Mineral depletion is at the root of a host of chronic problems. Let them eat as long as I am getting some. Hopefully they are munching on some Xylitol also or preferring it.

I am going to be paying special attention to the inflammation this week since I will be removing the Epsom salts but I will still be taking a couple iron free mineral tablets (Country Life) which has about 300mg mixed Magnesium in it as well as 1mg of Manganese. Adding extra zinc along with the 6g of Flax seed oil.

We will see how it goes but I really think the Epsom Salts had the most impact on my inflammation and likely at a slightly higher dose than the current one.

Good to know if the side effect of Mino gets crazy that I can bind it with Magnesium.

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