Unnatural scraping and grinding at base of skull, unnatural movement of skull

Hi,
I recently received a diagnosis of Lyme disease and so did my brother. I am almost positive my really ill sister has it as well but she has no money to see a LLMD for diagnosis or treatment and is too far gone cognitively speaking to even consider Lyme. She has many common symptoms especially neurolyme. She is resistant to believing she could have this disease because one of her main symptoms is her debilitating neck pain. She has had neck surgery for crushed vertebrae (she is not sure how they were even crushed) and has to constantly be in traction (she uses a towel) or she will throw up from the pain. She has been to the ER more times than I can count and had MRI's where her doctors see no problem and basically tell her she is fine. She insists on finding an upright MRI believing her doctors are missing something in the lay down type but there are none in our entire state.

My question to everyone is this, does anyone out there with confirmed Lyme, have severe neck issues where the base of the skull/neck make an unnatural scraping or grinding noise? She thinks something isn't attached in there thus it causing unnatural noises, movement and pain, she believes her spine could be severed at any moment and she could die (there is a name for this condition but I can't remember it). We can all agree that Lyme can destroy anything, especially previous injuries but I am wanting to hear specifically from people that have this same phenomenon.

Yes, I, too, have experienced it. It is better now. Lyme tends to gravitate to prior injuries. I hope she can find a way to test for for Lyme disease.

Patty

I have it also, sounds like rice krispies every time I turn my head.

It sounded to me like I had ball bearings that needed lubing. I went to a chiropractor thinking I was out of adjustment.

Nope, it was all a lyme symptom. Treatment and the gnashing of bones quit.... thank the Lord. It was a very annoying sound.

I watched this YouTube video recently, an interview with Dr. Jemsek in DC

https://www.youtube.com/watch?v=WDe0L-5yKvI&t=1s

He was very specific about the spine areas where he always sees Borreliosis problems.

He was saying that the spine, especially the upper back, shoulders and neck (he even named the vertebrae) are where these bacteria like to go, and this leads to wasting and degradation. My neck where it meets the back of my head cracks loudly and often and I can't swivel my head from side to side without hearing this inner gristly sound. I had some flirtations with spinal cord injuries from athletic activities when I was younger, surfing in shallow waters for instance that had twisted my spine and made my tongue go numb inside my head, so yeah Borreliosis digs into past trauma areas I believe. I have sleep apnea now and fear deeper neuro issues, have air hunger and experience a nerve block when I try to swallow sometimes. It's alarming, part of me wants to do a heavy abx dose, the other part fears a life threatening herx (or just the feeling like I'm dying during it is dreadful.)

Anyway, stiff neck, cracking neck (unusually and often) is another classic Lyme symptom.

Yes.

My joints in knees are also making the same sound. It seems to be loss of cartlidge.

Stat memos need to be sent out to every ortho/neuro doc in the world about these presentations. BTW - the inflammatory processes do show up in bone scans, in case anyone wondered. It's like you can see where the infection set up shop.

Post Edited (Joyous) : 6/22/2017 9:39:08 PM (GMT-6)

Joyous said...
Stat memos need to be sent out to every ortho/neuro doc in the world about these presentations. BTW - the inflammatory processes do show up in bone scans, in case anyone wondered. It's like you can see where the infection set up shop.

I second this. These myopic specialist doctors, not sure who said it (AB MacDonald regarding Syphilis?) need to zoom out and see the big picture. A famous doctor said something like "to understand Syphilis is to understand every branch of medicine."

Translation: Borreliosis presents itself as a multi-systemic ailment unique to every individual. Horowitz is spot on with his MSIDS approach.

Over and out, my troubled friends!

Do you all have crushing pain with it?

There are lots of newbies here, so maybe I wont sound like a broken record to all:

In addition to killing the little buggers, you need continuous muscle release of the neck, shoulders upper back, upper arms to get circulation going, they are all conected - this is actually muscle detox. Then apply magnesium oil or cream afterward. This actually works when repeated enough, you can do this yours self after a while too. Doing nothing usually results in nothing.

My neck is a lot better 90% of the time. It used to be stuck daily. Chiro did minimal, muscle release did a lot - new nutrients to heal. Muscle tension on joint will tighten joints to make it seam like a joint problem. I had the minimal joint material (forgot the term) per X rays too - many people have this and it doesn't matter much in most cases.

It does take time though, sooner you start the better.

Lyme does seem to tighten up many peoples muscles. Although killing the critters is important, manually loosening (releasing) muscle tension is important and not done enough.

Things to goggle and watch on you tube: : trigger point release, Active Release Technique, myofacial release- all methods to relax (release) chronic muscle tension. Regular massage just wont be very effective.