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My symptoms scare me

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Posted 6/28/2017 12:15 AM (GMT 0)
Hey guys. So throughout this whole ordeal, my symptoms that scares me the most is the constant shaking and twitching. Like when I smile, my lips actually quiver! When I open my hands, my ring fingers literally move back and forth on their own really really fast. My face feels like there are ants constantly crawling on it and my right eyelid and inner eye twitch like crazy. I swear all this makes me think something else is wrong with me like MS or something. Ugh!! Has anyone ever experienced these symptoms who can ease my mind a litt!e because I'm a mess. I've been on omnicef for 5 days and see no change, I'm still the same thanx everyone e
Posted 6/28/2017 12:24 AM (GMT 0)
Yes, those are fairly common symptoms, although there are variances between people.

Are you taking any magnesium? That generally helps with the twitching.

Are you detoxing? That should also help with all of your symptoms.

The feeling like ants are walking on you is likely from your nerves that are being affected by these infections. Detoxing should help, but if not there is an herb you can take (Lion's mane) that has helped me with my nerve issues/healing.

One of my misdiagnoses was actually MS, so I know that my nerves have been heavily impacted - besides the nerve symptoms I get as well. I have healed though (although I also got reinfected), so I know that these things can heal.
Posted 6/28/2017 1:47 AM (GMT 0)
Hi physedgirl09,
Yes, I have had eye twitching, muscle twitching and intense crawling sensations.

It is scary to have these weird symptoms. It also is normal to wonder if you have something else. I went through that too.

After all the questioning and misdiagnosis, I was clinically diagnosed with Lyme and Co.

What I can confirm for you, is that with proper treatment with ABX and Buhner protocols for 8 months now, I have made it to about 90 % improvement (gaining a bit more progress every week). It does take time and dedication to heal.

My worst , scariest , and down right depressing symptoms are gone. I am still battling low level symptoms but there are only a few left out of around 40 that I had before.

I still have a ways to go.... but what I want to tell you, is that you have to find the right treatment/path for you to get rid of your worst symptoms first.

Getting rid of the worst symptoms can restore joy and instill some sense of hope in us.

Buhners herbal suggestions for specific targeted symptoms enabled me to get this far.

Always do your own research and don't give up, there can and will be better days ahead for you.

Wishing you the best of healing, Take care, Jo
Posted 6/28/2017 1:49 AM (GMT 0)
Thanx so much traveler. I'm going to look into the lions mane. How much should I take per day? Also what brand?

Post Edited (physedgirl09) : 6/27/2017 7:52:28 PM (GMT-6)

Posted 6/28/2017 1:51 AM (GMT 0)
Goshawk, u did buhners protocol? Along with antibiotics? Like I can do both at the same time?
Posted 6/28/2017 2:36 AM (GMT 0)
Yes, I have been doing both ABX and Buhner.

I would highly recommend his book, "Healing Lyme" the 2nd edition. It has very good information on Lyme and herbals.

There are also many other herbal protocols that others use with success(Cowden, Beyond Balance, Jerringan etc)

I choose Buhner and herbal tinctures because I could start of slow and see how I reacted to each herb.

I also used his book as a guide to target specific symptoms.

Make sure you keep asking questions here and always check for any contradictions or side effects of any herb you might decide to use.

I am not an expert and can only tell you how I reacted to them and my experience.

Take care, Jo
Posted 6/28/2017 3:12 AM (GMT 0)
Physed girl - I have had a lot of nerve related issues too.

Tremors, Twitching, vibrations, shivers, nerve pain

I hate them the most. They scared me too.

My tremors are gone and my twitching is gone except for a day here and there - often comes back when I herx,

Vibrations are finally getting better - but my shivering with or without chills has ramped up since Babesia treatment.

Hang in there - it will get better with continued treatment.
Posted 6/28/2017 4:00 AM (GMT 0)
My twitching didnt stop until i addressed bartonella and the nerve damage borrelia caused ...months of iv rocephin ,bvt and yes magnesium and chinese cats claw stopped my micheal j foxes
Posted 6/28/2017 5:12 AM (GMT 0)
Get on treatment if your not. It will help.
I was totally freaked ....
still get freaked at the new weird symptoms that pop up...
I'm doing bruhners - helps with twitching. Chinese cats claw and chineses skullcap seems to help with my neuro shaking/ vibrations... Although my right inner eye is still going after like six weeks... think it's about time to address coinfections.
Posted 6/28/2017 10:47 AM (GMT 0)
Good morning wonderful people! I'm going to buy buhners book now on my kindle. In ur opinion, is the pills, powders or tincture best to use? I think I'd like to use the tincture cuz they are drops and would work better? I'm assuming I can buy this stuff at my local health food store? Last question, what are some side effects i should look out for!? Thank you all for helping me get thru this

Oh one more thing. I'm looking at the 2nd addition and it says it only addresses certain co infections, Healing Lyme: Natural Healing of Lyme Borreliosis and the Coinfections Chlamydia and Spotted Fever Rickettsiosis, 2nd Edition ... Does it also address all the others in the book?

Post Edited (physedgirl09) : 6/28/2017 4:50:20 AM (GMT-6)

Posted 6/28/2017 3:16 PM (GMT 0)
It's highly individual as to what to use. Yes, the tinctures are the easiest to start with, as you can start at very low doses, then when you get up to higher doses, you can switch to the powders, capsules or pills for convenience.

The main side effects are herxing and allergic reactions. Not many have allergic reactions, but they can be serious, so you do need to keep an eye open for them. Herxing is lowered by detoxing - and for some that means lots of detoxing, and going very slow on increasing the doses.

He has 3 main books that deal with these infections. One of the others is dealing with Bartonella and Mycoplasma, and the other one deals with Babesia, Anaplasmosis and Ehrlichia. I think you can get all of them on a kindle(?).

As for the Lions mane - start off on very small doses (like with all things). I've been herxing on just 1/16th of a tsp! The full dose is 3 - 8 grams of the powder daily or 1 tsp tincture 3 - 4 times daily. Buhner lists other things that may be of help as well though.

Since you have the "Healing Lyme" though - go to page 219 for things you can add in for tremors. Page 221 for the information on Lion's mane.
Posted 6/28/2017 5:22 PM (GMT 0)
You asked about where to buy the herbs.

The health food stores don't always have the herbs we need.

You can get them online- I like to use sources on Buhners recommended list.
I have bought from Woodland Essence and Sage Woman Herbs.

Note: I ran out of hawthorn once and went to my local health food store and bought a bottle of tincture there and when I took a dose - I knew right away it wasn't quality. The hawthorn has a distinct taste - kind of fruity - actually tastes good BUT not the one from my health food store!!
Posted 6/28/2017 6:57 PM (GMT 0)
Oh wow ok so im assuming the book will reference the websites? Also, do u take the tinctures straight in ur mouth or do u mix them in something? I called my drs office today to see if my co infections bloodwork came back and they didn't. I'm gonna call back Friday
Posted 6/28/2017 7:28 PM (GMT 0)
www.woodlandessence.com


www.sagewomanherbs.com

Those are the two that I ordered from for my tinctures.

Yes, his books do have his list of recommended sources. (Well the Bart one does)

I put my tinctures in about 1/4 cup of water. You can put them all in that one cup.
Posted 6/28/2017 8:04 PM (GMT 0)
If the doctor used Igenix for testing it can take up to 3 weeks to get the results.

Patty
Posted 6/28/2017 10:34 PM (GMT 0)
I don't think he used iginex cuz I didn't have to pay for the test
Posted 6/29/2017 4:11 PM (GMT 0)
The alcohol in the tinctures can burn, so add them to water, or Buhner suggests pomegranate juice. It has a strong enough flavor to cover some of the taste of the herbs.
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