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Posted 7/5/2017 3:26 PM (GMT 0)
Hi - I'm really struggling right now. I started a new antibiotic, Tinidazole, two days ago. Every time I have to add a pharmaceutical, I get antsy because I just feel I'm poisoning myself. I used to work in healthcare, and I've seen that drugs can heal, but I've also seen the flip side that they can do harm. My anxiety is thru the roof today, and I'm no where near the Tinidazole dosage that folks normally take. I only took 125 mg yesterday. I'm also on 300mg of Zithromax and 100 x 2 of Mino.

I've met several people that have opted for herbal treatment, and they're happy with their choice. I've met others that believe that they would not have healed without abx. So overwhelming to make a choice.

I would love to have a discussion with my current LLMD about my feelings, but she's very much a "take these, you'll herx, and I'll see you in six weeks" kind of practitioner. I'm not sure that she would react well to me trying to express my concerns about her treatment plan.

I feel so alone in all this. My husband just wants me to take whatever they tell me and roll the dice. My mother thinks I need IV abx, and after repeated attempts to tell her that IV isn't the typical starting point for someone in my condition, she still continues to bring it up.

My LLMD is functionally medicine trained, so maybe I should start a discussion. I just don't want her to send me packing because then I really will be on my own.

Positive thoughts to all of you, To those of you that have been treating for years, you're my heroes!

Peace,
Denver1
Posted 7/5/2017 3:35 PM (GMT 0)
Denver1, it is so lonely when no one around you knows what you are going through. I was extremely fortunate to have a compassionate husband. He has seen me in some very dire situations, so when he saw me with lyme, he knew I was sick. Heck, I could not talk to him. I could not get words out of my head and then I would forget what I was going to say.

I don't know what to tell you, but to keep on treating. Go with your gut feelings on how you want to treat and learn to believe in yourself.

My answer to all my medical working family members was - "hey, I am doing this now and if it doesn't work out, I will try that." I got tired of defending my lyme treatment.

I got tired of lyme period. It wears on you and you wonder if you will ever get well.

I was the one that wanted to paint the word PATIENCE on my living room wall. I was not a patient person at all. I was horrible at being a sick person. All I could do was cry because I was frustrated and not getting well as fast as I do with everything else.

Hang in there. I know where you are coming from and it is so hard to be strong when you are so ill.

I will say some prayers for you and your support group. <3
Posted 7/5/2017 3:38 PM (GMT 0)
Denver, maybe we can be of help in you either finding a treatment you are comfortable with, or helping you to become more comfortable with using the abx?

Since you are in health care, you also know what to do to protect your GI tract from the effects of the abx, and you know the warning signs when something is not going as planned as well - right? So you would be able to know right away that something is not right and can make moves to correct it. Don't forget about detoxing though!

We can be of help as you go through this too, to know what's commonly experienced and what should be a warning sign for you.

What about just telling her you would like to discuss these concerns and waiting to see what her reaction is before you actually have the discussion?

If you do wish to use other options for treatment, would your doctor be open to them do you think?
Posted 7/5/2017 5:05 PM (GMT 0)
Thank you for the kind words, PeteZa and Traveler!

I wish I knew if my doc would be open to changing courses a bit. During my very second visit, i was given info about long term abx usage, and I was too sick to have a discussion at the time.

I know I should have probably asked about her approaches before going to see her, but when you're desperate and sick, you're flying by the seat of your pants, and the Lyme fog doesn't help.

I've been researching, and there seems to be natural cyst busters like teasel. Am I right?

Thank you for responding!
Posted 7/5/2017 5:58 PM (GMT 0)
I wish I had answers for you, but I think we are sailing on the same ship. I started abx in Feb, and I'm still not up to the full dose. Close but not there. I have weeks of feeling pretty darn good and thinking I'm on the right track, and then weeks of feeling like I've made no progress at all.

I know my doctor would be willing to switch me to something else, but I don't want to start all over again. I seriously don't think I could do that. I also want to get to the full dose and see if it will work. I have been feeling a little hopeless lately.
Posted 7/5/2017 6:03 PM (GMT 0)
I've not seen anything on Teasel being a cyst buster. Here is what I commonly find on the use of Teasel for these infections: www.lyme-disease-research-database.com/lyme_disease_blog_files/mathew-wood.html

www.tiredoflyme.com/teasel-root.html

Matthew Wood is one of the top herbalists (in general medicine, but seems to know about Lyme as well) and I do trust his information quite a bit.
Posted 7/5/2017 6:25 PM (GMT 0)
Traveler - what does Buhner say about cyst and biofilm busting?

Can the cysts and biofilm survive forever if no intervention is used?

Thanks for the tassel root info!
Posted 7/5/2017 6:55 PM (GMT 0)
I think the bacteria that are in cyst and biofilm can later emerge and become active if not treated.

If you are having trouble tolerating Tinidazole, Grapefruit Seed Extract is also a cyst buster. It can be pretty powerful as well, so like with anything, go slowly if you try it.
Posted 7/5/2017 7:04 PM (GMT 0)
mm - Thank you for the grapefruit seed extract info! I'm sorry you're having a rough go with treatment. I'll be thinking of you!
Posted 7/6/2017 12:17 AM (GMT 0)
Denver1 - Understand how you feel. Never thought I would get feeling better and totally functional. Everyday was a challenge.

I did get better, though there were times I did not think I would. Unfortunately, heart surgery put down my immune system, and I'm back working through symptoms I so enjoyed be rid of.

Now I go through each day trying to keep my head into it and believing. As Traveler mentioned, your gut is critical. I believe that is my biggest problem getting back.

Now working on getting the gut better functioning. Diet and many other aids can help in that. Perhaps Google leaky gut for ways to handle those potential issues.
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