lyme dementia

Oh my gosh, I hope I never know the answer to this.

PeteZa said...
Oh my gosh, I hope I never know the answer to this.

Maybe you knew the answer - but forgot? LOL

1000Daisies said...
I would guess it varies just like so many of our symptoms.

FWIW - this doesn't answer your question directly, but I posted this on another thread:
I actually heard an older woman speak at a lyme's group, and she had severe dementia and was written off by her doctors. Her dementia was very bad. Her husband was VERY devoted and did not accept this diagnosis. He finally found a doctor who diagnosed and treated her for lyme/etc. She recovered (still has some minor lingering effects - but no longer labeled with dementia!) and spoke to the group. Her story was very inspirational (I won't forget it!). It also speaks highly of her husband for being her advocate. Think of how many people who get lost in the illness because they don't have an advocate like her husband.

How long did it take her to recover?

If not remembering what you were doing from a moment to the next is already dementia, I guess most neuro lyme patients have dementia?

I went out, did not know where I was going.
When I remembered, I forgot the way to go.
When I remembered and reached the place, I had to go back because I had forgotten my wallet so could not do what I wanted.

I met people that kept saying hello to me, calling my name, and I had no idea who they were.

I tried to read just a short article in a newspaper. No matter how many times I read, I understood the words, but not the connection between them.

The article made no sense at all! I could not understand what the author was talking about.
Maybe because I forgot the beginning of it? I don't know the reason anymore.

It was very frustrating. After trying 4, 5 times, I gave it up.

That was my lyme brain back in 2005.

I could speak 5 languages before that, defended my PhD in a foreign country in two languages that were not mine.

During lyme I didn't even know how to calculate simple sums of money anymore.

All my languages disappeared except for basic words from my mother tongue and English (that I learned as a child too).

With lyme treatment, a HOLISTIC treatment, I think I got all my brain abilities back.

The moment lyme went dormant in 2009, and after almost losing my life for it, I knew how thin was the thread that linked my body to life.

And how easy it is to have a wrecked brain that can barely pronounce words.

So I immediately started learning classic piano. I always wanted to do that but never did, as I kept postponing it.

I was 40+ then. Lyme remission, then bought a piano, then took lessons with a Russian professional player.

7 years after, I'm able to play Bach, even a Fugue. Without a normal functioning brain, that would not be possible (due to coordination, memorization, speed of the composition, complexity of polyphonies).

I'm far from being a professional, I do make mistakes when the fugue is too long, but I know my brain is back. I'm 50 now!

So keep going, treat lyme, and get your brain back!! It's possible, I think, if permanent damage did not occur yet.

Post Edited (Jinna) : 7/21/2017 4:09:25 AM (GMT-6)

Jinna, what protocol did you use and did you use antibiotics in the beginning of your treatment?

Patty

Hi all! Been very busy but I happened to glance at the forum this morning.

From my research there is a fine line between dementia and AD (Alzheimer's Disease). That said lyme toxins release ammonia which causes brain fog, dementia-like symptoms, etc. Everyone has ammonia in their body but when levels become to high it's not good. High ammonia levels cause not only the dementia symptoms but joint pains, neuro problems of all kinds, etc. I believe there is a blood test to test for one's levels of ammonia.

I have a good friend who was a teacher and she couldn't put words together, couldn't post on the forum (her husband posted for her), etc. Her doctor first treated her high levels of ammonia (he used supplements to bind up the ammonia so the ammonia could be purged out of her body and brain) before he treated lyme and she became well again.

Below is an interesting article about AD and ammonia:

www.sciencedirect.com/science/article/pii/S0197018602000414

Ammonia is able to affect the characteristic functions of microglia, such as endocytosis, and cytokine production. Based on these facts, an ammonia hypothesis of AD has first been suggested in 1993. In the present review old and new observations are discussed, which are in support of the notion that ammonia is a factor able to produce symptoms of AD and to affect the progression of the disease.

Bind up the ammonia (there are different supplements that do this) and detox like crazy...

Hope this helps,
Denise

You may want to google a study from 2014 from a doc named bredensen on dementia and alzheimers-cured 9 out of 10

Deejavu said...
Hi all! Been very busy but I happened to glance at the forum this morning.

From my research there is a fine line between dementia and AD (Alzheimer's Disease). That said lyme toxins release ammonia which causes brain fog, dementia-like symptoms, etc. Everyone has ammonia in their body but when levels become to high it's not good. High ammonia levels cause not only the dementia symptoms but joint pains, neuro problems of all kinds, etc. I believe there is a blood test to test for one's levels of ammonia.

I have a good friend who was a teacher and she couldn't put words together, couldn't post on the forum (her husband posted for her), etc. Her doctor first treated her high levels of ammonia (he used supplements to bind up the ammonia so the ammonia could be purged out of her body and brain) before he treated lyme and she became well again.

Below is an interesting article about AD and ammonia:

www.sciencedirect.com/science/article/pii/S0197018602000414

Ammonia is able to affect the characteristic functions of microglia, such as endocytosis, and cytokine production. Based on these facts, an ammonia hypothesis of AD has first been suggested in 1993. In the present review old and new observations are discussed, which are in support of the notion that ammonia is a factor able to produce symptoms of AD and to affect the progression of the disease.

Bind up the ammonia (there are different supplements that do this) and detox like crazy...

Hope this helps,
Denise

What is a "normal" ammonia level? Shouldn't ammonia levels be pretty low?

A supplement called Arginine Ornithine. There are capsules and powders.