Really need help, LLMD in Southern Oregon

Hi,
3 years ago I had classic symptoms of lyme.
I went to the doctor, they ignored me and did not test.
Symptoms continued.
Last year I demanded a igenex test.
I was told that it was negative
Later this year, I went back, and my doctor said No, it tested POSITIVE not NEGATIVE. However, it tested positive for the anti-gen so "I did have it but I no longer have it"
At the time I believed him and continued on.
Symptoms continued
A skin rash that I continued to have for years (!) developed worse.
After a few visits, I was given anti-biotics for the skin rash -- not related to any conversation of lyme diease -- and took them for 10 days. The anti-biotics immediately started working on the skin rash.
For 10 days and about two weeks after that, the skin rash went away AND also other symptoms that I associated with lyme, also started to go away (fatigue being the major one).
I have been off the anti-biotics for the skin rash for about a few weeks. Since then, my symptoms have got worse. I had the thinking that maybe my skin rash might be because of lyme diease.
Then I find out -- that the igenex test is positive if I have the anti-gen? And that I may have had lyme the entire time? And my doctor is incorrect and I still have it?
He will give me the results of the test, but obviously he can't read it right. Where can I send this to have somebody look at this? The anti-biotics worked, what is the protocol for disinfection for 3 year infection? It looks like I am unable to find a doctor, I would like to buy the anti-biotics and do it myself -- against the wishes of my doctor but I will force the conversation with him and tell him I will be doing the protocol and sourcing the medicine myself but would like his supervision (should I do a blood test before and after of my liver and kidney of the antibiotics as a precaution?)

please help

p.s. I did NOT have a ring rash and yes I did read the New page thanks

Post Edited (oregonhay) : 7/22/2017 3:07:14 AM (GMT-6)

oh forgot, you can find an Lyme literate MD here by enabling your email and asking"Need an LLMD in your area"

You will get responses that way.

Welcome, oregonhay!

As goshawk said - if you type out your test results, we can look at them and help you figure out what they mean.

You can email me for LLMD names. I do have a couple that I think are in the south - Grant's Pass and Medford..plus more in other areas of Oregon.

Just click on the envelope below my screen name on the left.

I've seen previous posts that describe which bands are lyme specific. I'm relatively new here, but I would say your best bet is to make an appointment with an LLMD/ND.

I am on the west coast (Cali) and I had 58 show up on mine. I have not been to Europe so I assume a bird flew one heck of along way to bring my lyme.

41 is only what showed up on mine and I have Lyme and co infections.

Be careful of that, make sure you follow through and like girlie said consult with an llmd, I was clinically diagnosed since testing was negative and can be unreliable.

Symptoms don't lie.

Take care, Jo