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Can Lyme cause heart murmur

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Posted 8/1/2017 10:20 PM (GMT 0)
So i went to my Dr today and she told me i have a heart murmur! I've never been told I had one before all this. I made an appt with a cardiologist in 2 weeks.

Is this common in Lyme?
Posted 8/1/2017 11:19 PM (GMT 0)
I've had all kinds of symptoms involving the heart and Lyme Disease - palpitations, arythmia (spelling?), feeling it beat when sleeping.

Also had a heart murmur long before Lyme, but I knew what it was and why.

As far as cardiologists, I would be surprised if he/she will even consider you have Lyme. That's the frustrating part about dealing with an ignorant medical system.
Posted 8/1/2017 11:19 PM (GMT 0)
I wouldn't say it's common...but yes Lyme can cause heart murmurs. I'm glad you have an appt. with a Cardiologist to have it checked out. Keep us posted!


/www.ncbi.nlm.nih.gov/pubmed/8964203

/www.hindawi.com/journals/cripe/2012/976961/


Here are a few forum threads on it:

www.healingwell.com/community/default.aspx?f=30&m=3580601

www.healingwell.com/community/default.aspx?f=30&m=3633302
Posted 8/1/2017 11:21 PM (GMT 0)
Hi I believe it can affect the heart. I had major palpitations for a year or more but it was checked out by cardiologist and nothing found. Then I was treated for Lyme and co and those symptoms went away.

Is it your llmd that said you had murmur?

Just make sure your cardiologist understands you have Lyme and co.

It is good you are having it checked out. I wish you the best, Take care, Jo
Posted 8/1/2017 11:24 PM (GMT 0)
Yeah my llmd told me I had one. I had heart palpitations really bad from march to June and it finally calmed down.

I think the cardiologist will be good. It's nice to just get a checkup regardless.

I've had so much anxiety today that I randomly cried 3 times. Ugh
Posted 8/1/2017 11:36 PM (GMT 0)
Do you literally have anxiety or are you upset about the heart murmur? Nothing surprises me with these diseases. Don't panic until you see a cardiologist. Take deep breaths. Big hugs.

Patty
Posted 8/2/2017 12:55 AM (GMT 0)
I've had anxiety since the start of Lyme. It all the sudden came on with panic attacks. Totally stinks
Posted 8/2/2017 1:47 AM (GMT 0)
I had the anxiety bad for awhile...now it's just here and there...but it's this physical thing - I can feel it welling up inside me in my torso...and then it hits my head...I know it doesn't make sense. And within a couple of minutes it's gone again...but I still HATE it.
Posted 8/2/2017 11:52 AM (GMT 0)
Girlie yessss!! I have that same feeling. It comes on a few times a day then after a few minutes it goes away. Weirdest thing!! When it happens, I get nervous which causes me to have a panic attack and cry
Posted 8/2/2017 1:07 PM (GMT 0)
I've had exactly what Girlie described, too. It's a physical panic feeling that comes on randomly. Now after 14 mos of treatment it doesn't happen as often but the first few months I was terrified to be alone.

I've also had cardiac symptoms to the point that I thought I was having a heart attack every time. I was in the ER twice and stayed in the hospital for 2 days on a heart monitor - all normal. Echo was normal. I followed up with a cardiologist and had a normal ekg while I was having strong symptoms. Crazy.

But I do have mitral valve prolapse that I didn't have before these infections.

Try to set up distractions if you can, Physedgirl. I couldn't watch any news or anything dramatic on tv - just light, sappy things.

It should get better with time xoxo
Posted 8/2/2017 1:08 PM (GMT 0)
Does it happen worse in morning when cortisol is up? Is it mixed with depression? Mine can come and go during day, but mornings are worst.
Posted 8/2/2017 1:30 PM (GMT 0)
I have had tons of heart issues while dealing with Lyme. I was in the ER twice and both times they sent me home saying nothing was wrong and that I just had bad tachycardia.

I was having thousands of palpitations a day so they sent me to a cardiologist who, believe it or not, agreed that Lyme can cause lots of cardiac issues and was glad I was treating with multiple antibiotics.

After about two months of treatment I have noticed they are getting better but still have palpitations every once in awhile.
Posted 8/2/2017 1:36 PM (GMT 0)
Running wild - I get it in the early morning - and it wakes me up.
(Around 6:00 a.m.) Difficult to get back to sleep after.
My LLND says it is a cortisol surge.


I do get milder ones a few times during the day/evening as well.


Even though I've had it for a few years and I know it's only going to last for a few minutes - I still feel messed up with it every time it happens.


I also instantly sweat when it happens.
Posted 8/2/2017 2:46 PM (GMT 0)
Yep I also get it in the mornings!! And sporadically throughout the day!!!

Girlie, even after 4 years of treatment u still get it? Same as before?
Posted 8/2/2017 4:45 PM (GMT 0)

physedgirl09 said...
Yep I also get it in the mornings!! And sporadically throughout the day!!!

Girlie, even after 4 years of treatment u still get it? Same as before?

Well 3 years of treatment.. lol

I used to get it in the middle of the night, too but not anymore.
And now some mornings aren't as bad.
Posted 8/2/2017 5:39 PM (GMT 0)
Oh ok. How long do u think ur gonna continue to treat for? Are u almost in remission?
Posted 8/2/2017 5:58 PM (GMT 0)

physedgirl09 said...
Oh ok. How long do u think ur gonna continue to treat for? Are u almost in remission?

I don't know. My LLND only treated me for lyme and finally did Bart treatment after a year later. (too long spent on lyme only IMO)
Then over a year and a half on bartonella... and now just kind of 'floating'.

Because I still have some symptoms left (have had close to 40 and am now down to less than 10) - I have decided to treat Babesia on my own.

My LLND doesn't think I have Babesia - but something is holding me back...and I do have the sweats and shivers (not sure if they're considered 'chills'), and dysautonmia, even had a dotted rash on the top of my foot a few times when treating babesia.

So, I am a few months into Babesia treatment - full on - and will continue for a few more months.
Unfortunately my foot pain (bartonella) has now flared...so will need to go back to bart for a bit.

sigh...

So, if you look at my symptoms - ones that have resolved - it looks like I'm 75% healed - but because a few of the ones I still have - are a couple of my worst ones - I still don't feel well enough to go back to work...and have a 'normal' life yet.
Posted 8/2/2017 6:31 PM (GMT 0)
Oh wow ok. Such crazy stuff. I have about 6 or 7 symptoms but man they are annoying symptoms.
Did u have brain fog? Did that go away and after how long?
Posted 8/2/2017 6:51 PM (GMT 0)
yes I had brain 'fog' - I had several brain things going on. short-term memory loss.
Would get overwhelmed easily - just doing the taxes was too much for me...I'd get confused just adding up receipts...and be close to tears.

Sometimes my husband would be talking to me and I'd be staring blankly at him...and then say "I don't know what you're talking about". It's funny now...but not then.

My brain is much better now...but still not where it used to be.

I got some improvement with lyme treatment...and more improved with bart treatment.
Posted 8/2/2017 7:55 PM (GMT 0)
Glad to hear your improving. I cry to my husband all the time cuz my head feels like someone is knocking on it (i can't explain it). Then the anxiety comes on and I have the brain fog, ear ringing, etc. It's a battle everyday

I Scared and discouraged
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