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IV meds in my future

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Posted 8/5/2017 4:12 AM (GMT 0)
I've been using IM rocephin for about 5 weeks now. It has helped me so much. I have made more gains on that than anything else so far. But my butt it sore all the time and developing scar tissue on the injection sites so it's harder to inject and it keeps seeping out.
I had my phone appointment and my dr was encouraged by my improvements and wants to see about getting me started with IV rocephin and potentially switching my oral meds to IV. It may be that I absorb it better if it bypasses my digestive system. They are putting the call in to I think Walgreen's infusion service to see what my insurance will cover. So far insurance has covered all my meds except Alinia. Even all the rocephin.
I feel incredibly blessed by this, it is truly an answer to prayer. I know many here were not so lucky with their insurance. I guess I will see what comes next.
Once we sort out the meds we will see about a PICC or peripheral line.
Posted 8/5/2017 7:08 AM (GMT 0)
Chick - that is great that you're having improvements.

What is a peripheral line - vs a PICC line?
Posted 8/5/2017 12:35 PM (GMT 0)
Wow - so happy that you are improving! Did you have any improvements on previous meds? Hiw quickly did you notice improvement with rocephin?
Posted 8/5/2017 4:21 PM (GMT 0)
Girlie a peripheral line would be replaced each week. It's like if you are in the hospital and they just tape a normal IV line onto your arm for a few days. I know without a doubt that option would get painful very quickly. And I don't think I'd be able to enjoy my favorite hobby of knitting. Knitting is extremely important to my mental well being.

I had some improvements with my previous meds k07. Very small improvements. But I felt improvements after my first butt shot of rocephin. It even halts my migraines sometimes if I happen to have a migraine on shot day. I have way more energy since starting it. My good vs bad days are now about 40/60. Still more bad than good and lots of post exertional fatigue but before I was having like 10/90.
Posted 8/5/2017 4:25 PM (GMT 0)
Girlie, the PICC line goes into a vein in your arm, leg or neck. The tip of the catheter is positioned in a large vein that carries blood into the heart. The PICC line is used for long-term intravenous (IV) antibiotics, nutrition or medications, and for blood draws.

The periheral line is shorter and does not go as far as the PICC line. It just goes into the vein, usually a superficial vein in the arm, forehand and even foot. It too is used for IV antibiotics and can be used for blood draws. This one is not recommended for chemo.

I think the spelling is what threw you off.
Posted 8/5/2017 5:18 PM (GMT 0)

ChickNorris said...
Girlie a peripheral line would be replaced each week. It's like if you are in the hospital and they just tape a normal IV line onto your arm for a few days. I know without a doubt that option would get painful very quickly. And I don't think I'd be able to enjoy my favorite hobby of knitting. Knitting is extremely important to my mental well being.

I had some improvements with my previous meds k07. Very small improvements. But I felt improvements after my first butt shot of rocephin. It even halts my migraines sometimes if I happen to have a migraine on shot day. I have way more energy since starting it. My good vs bad days are now about 40/60. Still more bad than good and lots of post exertional fatigue but before I was having like 10/90.

I was thinking that may be the difference.
I can see why you wouldn't want a peripheral line if you're going to be doing this for several months - changing it each time...
Posted 8/5/2017 5:21 PM (GMT 0)

PeteZa said...
Girlie, the PICC line goes into a vein in your arm, leg or neck. The tip of the catheter is positioned in a large vein that carries blood into the heart. The PICC line is used for long-term intravenous (IV) antibiotics, nutrition or medications, and for blood draws.

The periheral line is shorter and does not go as far as the PICC line. It just goes into the vein, usually a superficial vein in the arm, forehand and even foot. It too is used for IV antibiotics and can be used for blood draws. This one is not recommended for chemo.

I think the spelling is what threw you off.

No, it isn't the spelling - was wondering what the difference was between the two.

BTW - you're missing the "p" in your periheral. LOL
Posted 8/5/2017 5:25 PM (GMT 0)

ChickNorris said...
Girlie a peripheral line would be replaced each week. It's like if you are in the hospital and they just tape a normal IV line onto your arm for a few days. I know without a doubt that option would get painful very quickly. And I don't think I'd be able to enjoy my favorite hobby of knitting. Knitting is extremely important to my mental well being.

I had some improvements with my previous meds k07. Very small improvements. But I felt improvements after my first butt shot of rocephin. It even halts my migraines sometimes if I happen to have a migraine on shot day. I have way more energy since starting it. My good vs bad days are now about 40/60. Still more bad than good and lots of post exertional fatigue but before I was having like 10/90.

Thanks for info. I was curious because I have not made much progress but have not tried rocephin. May be worth a trial of butt shots (-:
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