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1st visit w/ LLMD & questions about ammonia and "de-toxing" before abx

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Posted 8/9/2017 5:32 PM (GMT 0)
Hello lovelies!

UPDATE ON LLMD VISiT:

I was diagnosed with late-stage Lyme last week by a LLMD (first visit) in light of my history of positive Lyme Western Blots and ongoing clinical symptoms.

I had 12 vials of blood drawn total, and the LLMD wants me to do a cortisol saliva test by Genova to evaluate insomnia.

My ammonia level came back today and it is normal. I'm wondering: how could my ammonia level be normal if I have neuro-Lyme? Does anyone have neuro-Lyme with normal ammonia level?

**
Anyways, at this visit, the doc prescribed:
-Neurontin
-supplements (Magnesium citrate, NAC, ALA, Melatonin)
-burbur & pinella herbal extract
-avoid blue light at night
-lithium orotate
-take levothyroxine in a.m. instead of p.m.
-temporarily stop taking B and D vitamins in case they're interfering with sleep
-Epsom salt baths & magnesium oil spray

She plans to start "Phase A antibiotics" at my next visit, once my sleep has improved and I've "de-toxed".

**
A lot of people have been asking me *skeptically* why my doctor didn't start antibiotics right away if I have Lyme disease.

How common is it for a doctor to wait before prescribing antibiotics? If they do wait, how long is typical...how long is ideal?


*****
UPDATE ON DENTIST VISIT:

My LLMD recommended that I see my dentist for evaluation of TMJ and getting a night guard.

I saw a dentist yesterday for cleaning and evaluation, but she would charge $1000 for a night guard. I am seeing a doctor who charges $600 tomorrow, instead...

*****

It has been a long journey to finally seeing a LLMD and getting a diagnosis that really explains all my multi-systemic symptoms.

Thank you so much for taking the time to respond and for the support.

Post Edited (Bex88) : 8/9/2017 1:21:31 PM (GMT-6)

Posted 8/9/2017 7:30 PM (GMT 0)
I've dealt with TMJ (I clinch) for over 20 years. My first guard was around $2000. This past spring, when I was clinching A LOT while stressing about trying to get a diagnosis for all of my new other symptoms, I decided it was time to update my night guard and am seeing a dentist who is a neuromuscular specialist. This guard cost $4200. This cost includes a year's worth of appointments as she makes fine adjustments to the guard. I'll have about 10 appointments when it's all said and done. So I think $1000 is a steal. What you had said about your dentist before you edited your post makes me think maybe not the best choice. But I'd also be concerned about a $600 night guard.

My dentist and I talk often about my bart. She wanted to make sure up front that I understood a night guard would not fix my neuro issues. Which is true. Also, a guard will not stop you from grinding, it will only offer some protection to your teeth and jaw; however, they also make it clear, you're still damaging your jaw, just not at such a fast pace. If they do it right, it will help with TMJ caused neck and head pain (and for me stopped my hands from falling asleep if I sleep on my back) and will stop teeth from cracking. I've been told the only thing that seems to stop clinching/grinding is hypnosis (this from my naturopath, not dentist).
Posted 8/9/2017 9:42 PM (GMT 0)
I appreciate your sharing the information that you've learned in what sounds like a long process in resolving your TMJ.

It sounds like the price of your most recent guard was high because you are seeing a neuromuscular specialist; for now, I am choosing to see a regular dentist, since I want to see if a relatively cheaper guard works before I try working with a specialist.

I do value your concern about the $600 guard and I inquired about whether the dentist I'm seeing tomorrow does free adjustments. The office was closing when I called, but they told me that they would call back tomorrow morning about the adjustments.

I did look online at "Consumer Information" at the average price of a night guard. I found this: http://health.costhelper.com/dental-night-guard.html

It says the average price of a custom-fit guard is $300-500. In your case, it would of course be more, because you are seeing a specialist.

Again, thanks so much for sharing your extensive experience.
Posted 8/9/2017 11:22 PM (GMT 0)
"My ammonia level came back today and it is normal. I'm wondering: how could my ammonia level be normal if I have neuro-Lyme? Does anyone have neuro-Lyme with normal ammonia level?"

I have never had my ammonia levels tested...so not sure what they are.

You can still have neuro-lyme and not have high ammonia.
When Bb dies off - it releases ammonia into the brain/body.


Your body can remove the ammonia through effective detoxing.


Some LLMD's want to take a month to stabilize the patient - make sure they're sleeping well, pain managed, detoxing...etc. before adding in the abx.
Take this time to get a good detox regimen going...this will help when the abx are introduced.
Posted 8/9/2017 11:28 PM (GMT 0)
Thank you so much for your support-It means a lot!

Actually, I feel a lot more confident/secure in my treatment choices based on what you said about timeline...I definitely feel more like I'm on the right track now.

(That's basically what my doctor said-she wants me to be sleeping, hormones more balanced, etc. before starting antibiotics.)

Thanks so much for sharing your knowledge with me!
Posted 8/9/2017 11:47 PM (GMT 0)
You're welcome!
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