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When doxy doesn't work

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Posted 8/13/2017 11:29 PM (GMT 0)
Hi all:

I've been on doxy (100mg/2x day) for about a month and a half now. My symptoms are facial and head tingling, joint pain at my elbows, little pit of testicular pain (fun), neck pain, cognition issues (constantly typing the wrong word and having short term memory issues). I had positive bands 43 and 21.

The doxy was working for awhile, but I notice the facial and head tingling seems to be ramping up again and some of these other symptoms I mentioned earlier also feel like they're getting worse. I'm seeing my non-LLMD primary this Thursday to bring this all up to him, but am concerned he doesn't have the background in Lyme to address a different med. The closest LLMD is quite far from where I live.

Does this happen often with doxy? Do we see symptoms eventually coming back even while on it? I haven't started a detox yet, but am hoping to do so shortly. Are there other medications that I should be pro-actively discussing with my doctor?

Thanks !
Posted 8/13/2017 11:36 PM (GMT 0)
AZez15,

is there any chance you can see an llmd? I believe the doses you were on are too low. Also since you have continued to have symptoms you most likely will need more than one abx to tackle these infections.

Others should be along soon , take care, Jo
Posted 8/13/2017 11:38 PM (GMT 0)
Sounds (from your symptoms) that you have chronic lyme.

Doxy alone isn't going to be enough. You need a second antibiotic...or even a third.

The dose of doxy should be 200 mg twice daily.

I think you need to travel to see a LLMD unless you're going to switch to herbals.

Do you mean bands 41 and 23?

You most likely need to treat a co-infection or two.
Posted 8/13/2017 11:41 PM (GMT 0)
Thanks- yes bands 41 and 23. I guess I could take a day and look after myself and drive to an LLMD. It's not close, but do-able.
Posted 8/14/2017 12:00 AM (GMT 0)
I was on Doxy, the same dosage as you, for almost 5 months and had most of the same symptoms as you prior to starting. Most of the symptoms, except for joint pain, disappeared almost immediately. about a month ago while still on the Doxy the tingling, buzzing, facial numbness, etc. returned off and on for a couple of days and then went away again.

How long has it been since the symptoms returned? Hopefully they will only be around for a short time like mine were.

I am now on Amoxicillin and Biaxin for less than a week. Still have the joint pain, vision issues, and ear ringing, but the rest are still gone.
Posted 8/14/2017 12:10 AM (GMT 0)
Thanks, Mareish. I was on doxy for 2 weeks, then 2 weeks off until I convinced my doctor for a longer dosage. He gave me a script for 28 days worth. After those 28 days, the symptoms came back while off doxy for a couple of days. Then, he gave me an additional 2 weeks to last until my next visit with him. So perhaps its the start and stop that's contributing.
Posted 8/14/2017 1:00 PM (GMT 0)
After my flareup in May...doxy DID NOT work at all for me !!! After 3 weeks I went to Ceftin which seemed to help but in addition I went on antiviral supplements and oil of oregano! After 3 weeks I stopped Ceftin and its been 3 weeks off and I feel good. However my gut is messed up and chronic constipation is back and abdominal pain,

I feel I am just immune to Doxy.
Posted 8/14/2017 2:42 PM (GMT 0)
I think you should begin detoxing right away. Otherwise the addition of more meds could make your feel even worse due to herxing.

www.tiredoflyme.com/detox-methods.html

Possibly the reason you are feeling worse is that you are killing bacteria, that is making toxins, and your body is not eliminating them.

If you are herxing on this amount of doxy, surely you will have a hard time if the doctor orders more meds. Start detoxing now! Not everything at once. Go slow and easy but you must detox.

Then call and make that appointment with the LLMD. When you make the appt. ask if they can give you a script for am antibiotic while you wait for the appointment. Then detox daily before the appointment so you are ready to take those meds.
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