HealingWell
Search Close Search
☰

Should I Stop Minocycline?

Support Forums
>
Lyme Disease
✚ New Topic ✚ Reply
❬ ❬ Previous Thread |Next Thread ❭ ❭
Posted 9/18/2017 12:17 PM (GMT 0)
I have been taking minocycline 100mg twice daily for about two months now and haven't noticed any improvement. The entire time I have felt more dizzy than usual, more tired, and more brain fog. My heart seems to be having more palpitations again as well, but not as bad as it once was..

I am not sure if these are side effects from the minocycline or just a very long herx.. Does anyone recommend that I call my LLMD and switch things up to something like Flagyl or something else? Or just keep powering through?
Posted 9/18/2017 1:18 PM (GMT 0)
I'd give it a little longer. And make sure you are detoxing daily. Mino is a very good antibiotic. Mino is more highly lipid soluble than doxy and has outstanding CSF penetration. You may just be experiencing a lot of die off trapped in the brain. I have been on a combo of abx, one being mino. I am on my 2nd month and my balance seems even a bit worse than before I started. I need to get some pinella, which is supposed to be a great brain detox.

I'd definitely hit up your LLMD with your concerns though. But I'd give it a bit longer if I were you.
Posted 9/18/2017 1:21 PM (GMT 0)

Hoagie said...
I'd give it a little longer. And make sure you are detoxing daily. Mino is a very good antibiotic. Mino is more highly lipid soluble than doxy and has outstanding CSF penetration. You may just be experiencing a lot of die off trapped in the brain. I have been on a combo of abx, one being mino. I am on my 2nd month and my balance seems even a bit worse than before I started. I need to get some pinella, which is supposed to be a great brain detox.

I'd definitely hit up your LLMD with your concerns though. But I'd give it a bit longer if I were you.

Thanks for the advice! I am on Biaxan as well and Buhner herbs. I have been using Pinella/Burbur to detox the brain but it doesn't seem to help all that much. I try to detox a lot and not much seems to help. My balance is worse than when I started as well.
Posted 9/18/2017 1:48 PM (GMT 0)

NicHostetler said...

Hoagie said...
I'd give it a little longer. And make sure you are detoxing daily. Mino is a very good antibiotic. Mino is more highly lipid soluble than doxy and has outstanding CSF penetration. You may just be experiencing a lot of die off trapped in the brain. I have been on a combo of abx, one being mino. I am on my 2nd month and my balance seems even a bit worse than before I started. I need to get some pinella, which is supposed to be a great brain detox.

I'd definitely hit up your LLMD with your concerns though. But I'd give it a bit longer if I were you.

Thanks for the advice! I am on Biaxan as well and Buhner herbs. I have been using Pinella/Burbur to detox the brain but it doesn't seem to help all that much. I try to detox a lot and not much seems to help. My balance is worse than when I started as well.

Hmm... Sounds like we are in a similar situation. Let me know what your LLMD does please. Hope you turn a corner soon.
Posted 9/18/2017 1:58 PM (GMT 0)
When I was on mino and tini, I would feel the dizziness. It got better after 3-4 weeks though, so I would ask about it.
Posted 9/18/2017 7:43 PM (GMT 0)

Kat1000 said...
When I was on mino and tini, I would feel the dizziness. It got better after 3-4 weeks though, so I would ask about it.

Minocycline did the same for me. It's a well recognized side-effect.
Posted 9/18/2017 11:04 PM (GMT 0)

NicHostetler said...
I have been taking minocycline 100mg twice daily for about two months now and haven't noticed any improvement. The entire time I have felt more dizzy than usual, more tired, and more brain fog. My heart seems to be having more palpitations again as well, but not as bad as it once was..

I am not sure if these are side effects from the minocycline or just a very long herx.. Does anyone recommend that I call my LLMD and switch things up to something like Flagyl or something else? Or just keep powering through?

I wouldn't switch minocycline for Flagyl though.

I would maybe do Ceftin...and then add in Biaxin.

I would only do Flagyl or Tinidazole pulsed.

Is your LLMD only treating you with one antibiotic (instead of 2 at a time)
Posted 9/19/2017 2:54 AM (GMT 0)
Mino did nothing for me. I was on it with Biaxin and I was taking Crptolypsis and Houtanyia.
Posted 9/19/2017 12:10 PM (GMT 0)

Girlie said...

NicHostetler said...
I have been taking minocycline 100mg twice daily for about two months now and haven't noticed any improvement. The entire time I have felt more dizzy than usual, more tired, and more brain fog. My heart seems to be having more palpitations again as well, but not as bad as it once was..

I am not sure if these are side effects from the minocycline or just a very long herx.. Does anyone recommend that I call my LLMD and switch things up to something like Flagyl or something else? Or just keep powering through?

I wouldn't switch minocycline for Flagyl though.

I would maybe do Ceftin...and then add in Biaxin.

I would only do Flagyl or Tinidazole pulsed.

Is your LLMD only treating you with one antibiotic (instead of 2 at a time)

Right now I am taking Biaxin and Minocycline. I was origonally taking Bixain and Cefdinir and I did see some improvement. That is what I started on and I got to about 40% better after 3 months and then stopped seeing improvement. Now that I switched mino for cefdinir, I have not seen any improvement after two months.
Posted 9/19/2017 6:19 PM (GMT 0)
What about addressing a co-infection? Is it suspected you have Bartonella?

You could add Rifampin in.
Posted 9/19/2017 7:23 PM (GMT 0)

Girlie said...
What about addressing a co-infection? Is it suspected you have Bartonella?

You could add Rifampin in.

Good point!! Right now I am just targeting babesia with cryptolepis, but, I am not sure what coinfection my symptoms match up more with.. Babesia or Bartonella? what do you think based on the following main symptoms that I still have?

Extreme fatigue
Brain Fog
Light headedness
Heart palpitations
Tingling in face

Post Edited (NicHostetler) : 9/19/2017 1:29:18 PM (GMT-6)

Posted 9/19/2017 8:20 PM (GMT 0)
Could be either.


Maybe add in an herb that covers both B's.

Sida Acuta is for Bart and Babs.
Posted 9/19/2017 8:40 PM (GMT 0)

Girlie said...
Could be either.


Maybe add in an herb that covers both B's.

Sida Acuta is for Bart and Babs.

Okay! Should I just switch to CSA then?
Posted 9/19/2017 9:10 PM (GMT 0)
You could.

You've already taken Crypto...but you will be adding two new herbs at once - the Sida and the Alchornea cordifolia.


Just do it knowing if there's a reaction you won't know which one it is.

And...do start low and increase slowly.
✚ New Topic ✚ Reply