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Diagnosed in July..need advice.

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Lyme Disease
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Posted 9/19/2017 12:03 PM (GMT 0)
Hi everyone. I started having symptoms at the end of June. I got my positive diagnosed July 7th. My pcp rx 21 days of doxycycline. I felt great for 3-4 weeks following treatment. Then symptoms came back and were slightly different from the first time. I had the symptoms for a few days before she recommended another round of doxy. On my 7th day I started having crazy side effects shaking,brain fog etc which I think now were HERX? Anyway DR stopped the doxy. I'm worse than ever now, I can't even work. The nighttime is horrible..can't sleep, anxiety through the roof. I'm not on anything right now, waiting for co infection tests to come back. She did give me an rx For amoxicillin...500 mg tid for 21 days. Should I take it? Does amox even work? My gut is a mess already. I want to get ahold of this now as I haven't had lyme for very long... I need advice please.
Posted 9/19/2017 12:21 PM (GMT 0)
Sorry for that, Ashley...

It looks like it is still lyme. Lyme does change, the way you describe, specially after you start antimicrobials such as doxy.

I hope you have a good doctor, but I would not wait to continue treatment. Lyme is usually clinically diagnosed. Serology will only support the diagnosis...

Most people are infected with the 3 Bs: bartonella, babesia and borrelia. Treating them would be a good start, in my opinion.

Anxiety is extremely common. Too common with infections and with lyme.

I would start on binders, such as MSM, chlolestyramine, chlorella, apple pectin, stuff like that, to help you lower toxins (or nightmares and night terrors may increase...).

amoxy works a bit for Bb, but I think it works for no coinfection (I can't remember any coinfection that reacts to amoxi)...

If your gut is a mess, go for probiotics and enzyme treatments, plus L-glutamine (I'm trying this last item recently, it feels wonderful).

If you are newly bitten, antibiotics may give you some positive outcomes (short term antibiotics).

but if you are long term infected, they won't probably work, according to dr. K (who treats lyme since a very long time; he has been working with lyme since he left the university, it seems, back in the end of 70s, beginning of 80s)

but there are so many other alternatives to treat lyme, such as herbs, microcurrents, rife devices, bee venom, biophotons, laser, EAV type of treatments, etc...

I hope you find your way out soon. Buy Buhner's books, they are quite inexpensive, and are very much worth for empowerment.
Posted 9/19/2017 6:25 PM (GMT 0)
Ashley - I did get your email...and replied - sent you a list of LLMD's

Amoxy is a good antibiotic for lyme....but 500 mg 3X daily is half of the minimum dose required.


It's best you seek out a LLMD and schedule an appointment. Maybe you can get in within a couple of weeks.

you could take the amoxy, but I would take 1000 mg 3X daily for 10 days instead of 500 mg 3X daily for 21 days.
Posted 9/20/2017 8:32 PM (GMT 0)
You need a LLMD! You'll probably need several different antibiotics combined. Were you bit recently?
Posted 9/20/2017 9:52 PM (GMT 0)
I hope you can find an LLMD, my friend.

And try your very best to detox as you kill off the little buggers. If you have a bunch of dead toxic spirochetes in your body, you can quickly become that much more anxious/foggy. Those are my two biggest symptoms when I haven't detoxed enough.

I use Bulk Herb Store's "Journey Back to Health" kit which has a lot of detox items in it including sodium bentonite clay for detox baths, apple pectin/charcoal powder mix for internal detox and many more teas and tinctures. It has in NO way cured me, but it is a HUGE part of supporting my body.

I also swear by Alka Seltzer GOLD, epsom salt baths, Burbur Pinella detox, Liposomal Vitamin C, Turmeric, and Pekana tinctures: Itires, Renelix, and Apo-Hepat for DETOX and elimination of toxins in the organs/lymph.

The only "killing" agent I take is a natural antibiotic that is SUPER strong, A-L complex from Byron White. I mostly focus on draining all those dead bugs, not killing everything at once. I have tried that from IV antibiotics and it only made me psycho, bed ridden, and unable to eat.

Also, CBD oil mixed with Passionflower tincture really helps my CHRONIC anxiety. We're talking, can't get out from under the covers anxiety.

I sincerely wish you healing.
Posted 9/21/2017 12:45 AM (GMT 0)
Hi guys! Thanks for the replay. I found an integrative medical clinic that I'm feeling hopeful about. I'm on a combo of antibiotics along with 5 supplements and 2 different probiotics.
HERES my issue.... after only 1 1/2 days on the treatment GI issues! Sorry tmi. They told me stop the abx, up my probiotics by 2 pills tonight and try 1/2 dose antibiotic tm morning. I see a lot of people here have been on long term antibiotics... did ya'll get GI issues too? The nurse was worried about me developing c diff...which is why she cut me back for now.
Yes, recently bit. Symptoms end of June, diagnosed July 7th doxy 21 days. Felt 100% better then relapse 4 weeks later.
Posted 9/21/2017 12:48 AM (GMT 0)
Oh! And I'm on a supplement for HERX. Along with suggested alka seltzer gold, epsom baths. My muscle twitches drive me crazy!😡 Upper back only so far with the spasms.
Posted 9/21/2017 1:00 AM (GMT 0)
"Yes, recently bit. Symptoms end of June, diagnosed July 7th doxy 21 days. Felt 100% better then relapse 4 weeks later. "

Unfortunately that was not enough treatment - even for an acute infection.

6 weeks is minimum for an EM and non - disseminated infection.
Posted 9/21/2017 1:01 AM (GMT 0)
Yeah...I know that now sad My original DR was clueless.
Posted 9/21/2017 1:07 AM (GMT 0)

Ashleyann82587 said...
Yeah...I know that now sad My original DR was clueless.

The good news is you still haven't had it very long...
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