Lyme disease causing central sleep apnea???

Has anyone heard that Lyme can cause Central sleep apnea? I have lyme but am suspecting my cousin may have it as well. She has had a long history of hormonal imbalance, emotional/psychiatric issues, anxiety depression w/ history of suicidal ideation), weight fluctuation,. was told she had a form of arthritis that is genetic but no one on either side of the famly has tested positive for that gene . Most often does not tolerate medication well, has digestive issues and a host of many other things. Has had years of dental /gum problems that resulted in gum grafts. She also somewhat recently has been told she has central sleep apnea . She may be getting only 2-3 hrs a sleep at night for years. What's odd is during that day she is ready to go and doesn't feel on the verge of collapsing from fatigue. Does any of this sound familiar to anyone?

Thanks Girlie!
That's what I have been saying to her! In my gut I have always thought for years the host of issues have a physical cause. I have recommended she get labs done with IGenex to test for Lyme & co infections. At least to rule it out. She has had a sleep study and tried a CPap machine but it really didn't help her. Doctors are stumped with her. They are saying it will shorten her life. I think I have finally convinced her to do it earlier today. Again thanks so much

I believe her sleep study showed Central which is harder to treat if not impossible from what they told her. I recommended she get the Igenex labs soon.

During the time when my air hunger was really bad I had difficulty to sleep. I probably had a combination of viruses and lyme (and still have but it is better now) and in that time I couldn't even sleep in horizontal position. I had to sit like in a chair to sleep or I could not breath. Few times when I was sleeping in horizontal position I would suddenly woke up breathless and had problem to take a breath again.
Still sometimes when I lay down to sleep (and while I'm still awake) I feel like my breathing stops for a moment, then I wake up myself to get back to normal. That usually happens if I'm really tired.
So yes, that is one of worst symptoms I had. Actually worst think was when doctors would say that I had "panic attack" in my sleep. I would really like to go back to those doctors now and ask them how's that that my "panic attacks" now stopped without antidepresives since I feel better physically?

Post Edited (nonames) : 9/27/2017 1:31:09 PM (GMT-6)

WBF - yes, interesting to read others' having same issues.

I remember laying down in bed...and trying to swallow the thick phlegm that was sitting at the bottom of my throat...but it wouldn't budge..


horrible times for sure!

Yes.yes,yes.central apnea caused 5th heart attack.stopped breathing too long when awakened,huge amounts of adrenaline caused heart to afib.
Other attacks were from drops of alcohol or lifting.Dysautonomia with baroflex failure will cause all these.antibiotics help but have to be for life as maintence.
Reblooms of bacteria ,especially in winter. Fall. Are common and dangerous.
Result of suspected two bouts of meningitis from Lyme,decades apart.
Long and short channel blockers keep vessels open after years of constrictions and sudden heart attacks.sun in eye imperative,though not as good in winter.through pineal gland calms vegal nerve,the cause of all these.
Unless you have a genius doctor.good luck.there is no help.
Only well known doctors in ct. And Rhode Island ,New Jersey,mass. They know about all these symptoms.by law they are allowed to give lifetime abx.in those states only.they know the blood test is useless.ins.has to pay with clinical( no test) diagnosis.im in Midwest. No one is trained in Lyme disautonomia .many many people have it.ive read the symptoms on here.they get no help.
It will be decades before help catches up.not enough research,until it's revealed how many die from heart attacks and Lyme.

There may be some that know it.ive had POTS as well for decades.
Treadmill test can easily spot it.
Point is ,did a doctor help you.it can be greatly eradicated with hormones,antiinflammatorrys and abx.without treatment it does not go away.once again,POTS is just another vegal nerve effect.
But,bacteria ,permenently will be in brain stem.doctors in other states will never prescribe the needed abx for life that are needed.the research and doctors,that says otherwise are wrong,wrong,those people will only get worse without continuos maintence.flair ups left unguarded don't always get fixed to original state,with spot treatment .my son has Lyme,caught through pregnancy when Lyme meningitis treated incorrectly. Only weeks later conceived.shingles,psoriasis young age.
daughter had suspected meningitis when 4 ,not treated properly for Lyme either.not known from tick at time.developed pots, roseacea on back,psoriasis, and when getting norovirus recently, decades later,got big bullseye that come out .just to remind her,it's always there.
We've all been treated incorrectly and pathetically , by the best doctors at mayo clinic and northwestern.dozens of them for me.
Useless and Ill trained in all.do not recognize the unlimited scope of Lyme, to heart, voice,thyroid,digestion,stopping of all hormone production for things to function.baro receptors telling your vessels to contrict continuously .,all from nervouse system shut down.they can't help without proper training and laws that allow it.what they think now is archaic and dangerous.

Expert Lyme specialists know this.that is why they got the law changed on the east coast.to not use useless Lyme test,,and require unlimited use of Abx.it takes years to get marked improvement.then vigilance .
It should extent everywhere.theres seems to be no power to do it in the rest of the country.

Central apnea can greatly improve with abx and antiinflammatorys,when mine flairs,biaxin will stop in tracks,also hormones taken within hours of episode,stos from occurring for weeks.narcolepsy comes with it,so when I feel an unnatural sleepiness I force to stay up and treat immediately.the e excessive adrenaline that zaps you( I have been awake in Er,stopped breathing while awake,then got zapped in chest fom my adrenal) . Sometie you can have adrenal pain next to spine from waking you up over and over.
It is chronicled in medical journals about estrogen/ progestin success in treating central even in normal non lyme women.can be found online.birth control Pills have help keep in check though ,lyme kill all hormones if regressed enough in brain stem.even taking hormones at higher levels when measured barely detectable at 9 . Without it it here are no hormones detectable.recenly after 3 years of treating all,I think my hormone switch for thyroid and females,has slightly switched on.digestion has improved slightly,gastroparesis is common with no working vegal nerve.it turns on to zap heart,and constrict vessels when agrivated,stress,med,winter,no un in eye,or forget abx for few days,always big mistake..even bladder pain can return.( needs hormones kept up too)
As one gets older its harder and harder to hold back the push of lyme.must be vigilant with all meds.mine is worse then most.even tylenol can give me afib and put me on floor in few minutes.there is trace alcohol in coating.Vegal nerve can't have,only little salt ,no alcohol even trace,no narcotics,( go into mast cell shock) no novacaine product ,lidacaine cream( these constrict blood vessels immediately to body heart brain) my baroreceptors in vessels are messages wrong by vegal..
I had bad dizziness thanksgiving from missing few days abx.a bloom can constrict blood o brain get very dizzy .i ve had spontaneous lung clots from this as well( pulmonary hypertention) .on blood thinners,high platelet count ,afib ,clots demands it,but have aneurism so keep low.
These are only part of awful symptoms of lyme meningitis can do.i had twice,both 105 temp fast in 1 hour,labor like pain back of head,that's what lyme can do.this disease will always progress if allowed unchecked to grow.but,this is neuro lyme,not everyone has this form.though the bacteria brakes disks in back too,in spinal fluid,had sciatic infection that can return if not customized treated.back is degenerative all over.but each persons issues can very.i have them all,mainly following the vegal in body ,bladder,stomach,heart,diaphram,voice ear,eyes ( constant infection if not on meds) thyroid,if they could fix a vegal nerve I'd be normal.
But,I ride horses,garden furiously carry rock for walls around property every year,carry large dirt bags,give one on one care to all my chickens,who are beloved pets, etc., i will not succumb to this awful thing easily.summer is great with suns taming of bacteria level and calming of vegal through pinael gland.( sun in eyes) I live for march - August.symptoms appear in late August from weakening sun.
This is much knowledge for any layman to take in ,however, if you want to win,study endlessly ,knowledge is power.only the best experts know all of these things .it does take a mechanical mind,a scientific detective to figure it all out.worth it.had to help myself,and it worked.
I have two kids both with it,so what I reap they can benefit later in life.to bad our love of the outdoors got us all here..( though son got from me pregnancy shortly after meningitis,bacteria was still rampant,only treated briefly in 1990 .
Maybe ,someday all this will be common knowledge ,and all will be recognized and helped.id say many decades.