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scoliosis and Lyme?

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Posted 9/30/2017 6:14 PM (GMT 0)
Ok, so in the years leading up to my final diagnosis of Lyme & co. I was told I had a heart murmur and slight scoliosis developing. This was not an issue when I was youger. Is there a possible correlation, and that that the damage that Lyme & Co is doing to my muscle and joints is causing the scoliosis? It seem like most everything that is going on has the root cause of Lyme & Co. Has anyone experienced this or has heard if it is another thing affected by the Lyme & Co.
Posted 9/30/2017 6:40 PM (GMT 0)
I have mild scoliosis in my thoracic spine now. It curves to the right.

When I first got lyme symptoms - it had affected the nerves on my left side of back (thoracic) and left arm.
My left arm was pretty much paralyzed - I couldn't move it...it was limp and numb the night it happened.

Ended up with frozen shoulder. The muscles on my left side - thoracic - around the shoulder blade atrophied very quickly.

Then I noticed my thoracic spine curving to the right (not a lot, but noticeable).

4 physios I went to said it was cervical issues....ignored my shoulder blade area completely.
Finally a year and a half ago...I found another physio who looked at my back...and said my shoulder blade (left) was stuck to my ribs. No one else would even listen to me.

We are slowly getting things back. And guess what...strange as it seems...my curve is getting better with the strengthening of my left side.

In my case it was total, sudden nerve issues on my left side...basically rendering that side useless for many months.
Posted 9/30/2017 8:38 PM (GMT 0)
I have a slight S curve, and used to have major back spasms, sometimes at night.
Posted 10/1/2017 3:41 AM (GMT 0)
Very interesting. It's was just a thought that popped inmy head today when I was getting a massage since my neck and upper back muscles are hard as rocks. I have heard it may be due to the Lyme feasting on the necessary manganese that's in our muscles and tendons. Is any one on Manganese supplementation ?
Posted 10/1/2017 4:02 PM (GMT 0)
Maganese or magnesium? Its easy to get them confused.

I supplement magnesium, as many do, and feel better with it, less muscle tension.

There is manganese in my multi, but not much, and I cant tell any difference if I skip my multi vit..

Upper back muscles- lay/roll around on floor on top of a golf ball or LaCross ball. Cruchy? Do this in morning and befoer bed. Can go up to sides of spine, not on it though.
Posted 10/1/2017 5:41 PM (GMT 0)

astroman said...
Maganese or magnesium? Its easy to get them confused.

I supplement magnesium, as many do, and feel better with it, less muscle tension.

There is manganese in my multi, but not much, and I cant tell any difference if I skip my multi vit..

Upper back muscles- lay/roll around on floor on top of a golf ball or LaCross ball. Cruchy? Do this in morning and befoer bed. Can go up to sides of spine, not on it though.

I've read a few times that lyme likes Manganese...sometimes people get it confused with Magnesium
Posted 10/1/2017 5:49 PM (GMT 0)
I think the idea is that since the lyme uses the Manganese from our bodies that we would be low on it. supplementing manganese would in theory replace what the lyme is taking from us. Another thought is that if it causes the bacteria to replicate more that would make any antibiotics more effective. antibiotics work on bacteria that is replicating and the problem with borrelia is that it replicates slowly.
Posted 10/1/2017 6:13 PM (GMT 0)
I am already doing Magnesium supplements but don't noticing it helping any. It was the Manganese that I was referring to. Wonder if supplementing with the Manganese would draw them out more and make it more feasible for our other herbs, medicines, treatments to destroy at least some of them? I have heard that the lyme & Co feast on Manganese which is essential to our muscle and when we get low it weakens weak areas even further. So basically the curvature and frozen muscles/ joints we are experiencing "might not" have occurred if it were for the infection.
Posted 10/1/2017 6:32 PM (GMT 0)

Girlie said...

astroman said...
Maganese or magnesium? Its easy to get them confused.

I supplement magnesium, as many do, and feel better with it, less muscle tension.

There is manganese in my multi, but not much, and I cant tell any difference if I skip my multi vit..

Upper back muscles- lay/roll around on floor on top of a golf ball or LaCross ball. Cruchy? Do this in morning and befoer bed. Can go up to sides of spine, not on it though.

I've read a few times that lyme likes Manganese...sometimes people get it confused with Magnesium

Its been said and quoted right here many times, I think the whole online health community gets these two confused quite often.

For those taking magnesium, remember it needs to end in "ate" for it magnesium be absorbed. Magnesium "oxide" will not help with muscles or nervous system.

I know nothing about the forms of manganese- its seldom mentioned. The Pure encapsulations multi I take has 2 mg of manganese citrate. I might try more just separate mang citrate, but my spectrocell innercellular blood test ($400) show good levels with this multi vit in me.
Posted 10/1/2017 10:13 PM (GMT 0)
I just found this information fellow Lymies:

"Recent study came out that Lyme is the only living organism that lives off manganese rather than iron. In order for the bacterium to survive in our bodies it consumes manganese. So, what are consequences of having a low level of manganese in the body:
Infertility
Impaired glucose metabolism
Diseases of the skeletal structure, and impaired growth
Pancreatic dysfunction
Elevated blood pressure
Atherosclerosis
Reduced protein metabolism
Reduced immune function
Ataxia
Selenium deficiency
Depressed activity of mammary glands in nursing mothers
Mitochondrial abnormalities

Scoliosis can be caused by nutritional imbalances; such as a lack of manganese."

So it appears the loss of manganese due to Lyme affects multiple areas. I thought this was really interesting information. Most of the list is not a surprise. Will have to explore this further.
Posted 10/1/2017 10:32 PM (GMT 0)
More like , what does lyme NOT do to the body.

Funny people dont supplement with it more. I know unlike magnessium, manganese in high levels is not good, so just dont over do it.

Might be wise to ones levels for reference.
Posted 10/1/2017 10:35 PM (GMT 0)
I have a few of those racket balls that my Chiro recommended I use to roll on. And this great long solid foam tube it does wonders too. Not sure, perhaps the info above could have been mixed up with Magnesium. Hard for those to get to my neck. Will have to check this out more and what I can find to help.
Posted 10/2/2017 4:25 PM (GMT 0)
Thanks for the Info fellow Lymies. We are like green snow flakes. No two of us are alike!
Posted 4/20/2018 2:10 PM (GMT 0)
I had an appointment with my massage therapist this week who told me to look up scoliosis and essential oils as she had heard that it could be caused by a virus. One search led to another and then I ended up here and saw the comment about heart murmur and slight scoliosis. Wow is all that I can say. My Lyme & Co. story involves a heart murmur and slight scoliosis as well - both diagnosed around age 12-ish. I'm 50 now. Just diagnosed 5 years ago. No prior doctor had ever heard my heart murmur until then. I never put all of this together. The pieces of the puzzle...amazing.
Posted 4/20/2018 5:36 PM (GMT 0)
How is your treatment going notafanofbugs?


You had mentioned going on a Maintenance protocol...is that where you're at now?

EDIT: I don't think you've been back to your LLMD since you talked about going on the Mtce protocol.


I wonder how the LLMD determines what is active infection vs time to heal needed.
Posted 4/20/2018 7:16 PM (GMT 0)
Hi Girlie -

I made the decision to totally pull myself off of antibiotic treatment.

Having been on abx for nearly five years, my body has had enough. I've just had extensive BW (far beyond my monthly safety labs) done by a local practitioner to get a "new" picture I've been on Cymbalta for two weeks now and I am seeing much relief in lower back and torso pain. I am doing okay, but only time will tell. I am much better physically and mentally without the side effects from the antibiotics. I'm staying off abx unless something drastic resurfaces. (At least that is my plan now).

Trying to keep gut health happy and will continue with my supplements.

I question what you stated as well - how do they know what is active...it seems like it is just a guessing game since symptoms are sporadic. I'm just going to gamble and see what happens. Not schedule to go see LLMD until summer. May change - push out date to give me more time.

Hope you are doing well!
Posted 5/31/2018 3:13 PM (GMT 0)
Interesting thread. I went to a chiropractor yesterday and found out I have scoliosis and more nerve damage than I realized. Girlie, I could have written a lot of your post at the top of this thread, left side damage and all -- just to a lesser degree.

So you go to physical therapy for treatment? Wondering if chiropractor or PT is the way to go.
Posted 5/31/2018 5:19 PM (GMT 0)
I see an upper cervical chiro - have for many years (prelyme)

I don’t particularly get any relief from the adjustments - but I go every couple months to keep things aligned.

My current PT is wonderful - she is the fifth one (or is it 6th?) I’ve been to.
She acknowledged the left side atrophy and shoulder blade dysfunction and each appt she works on my trouble spots.
I’ve been to several who just gave me exercises to do - and I didn’t improve at all.

I stopped going last year - went through a low time and was feeling sorry for myself - I really should start going again.

(I burst into tears once while there and was so embarrassed - I thought it might happen again when I was feeling “low” so just kept putting it off)
Posted 6/10/2018 8:31 PM (GMT 0)
Enzymes and egosque method of spinal care
Posted 11/24/2018 6:54 PM (GMT 0)
This post got me curious. Sorry for joining late this conversation, I didn't have energy to join the forum but I've been reading the posts for quite some time.
I was bit by a tick when I was 9 and developed almost all typical symptoms, flue in summer, heart palpitations, later knee pain and shooting pains in the upper right part of the body. By age of 11 I had sever scoliosis, sticking out right shoulder blade and severe weakness in right arm, had to use left hand. After two years of aggressive physical therapy I got better but still need to exercise on regular bases to keep scoliosis in check. A couple years ago I took prednisone for back pain and all the symptoms from 45 years ago returned. Again I couldn't lift and use my right arm. This made me think that my sudden development of scoliosis wasn't so coincident. When I googled Lyme and scoliosis I found this post.
This is quite interesting. What do you think about this?
Posted 11/24/2018 7:14 PM (GMT 0)

Duza said...
This post got me curious. Sorry for joining late this conversation, I didn't have energy to join the forum but I've been reading the posts for quite some time.
I was bit by a tick when I was 9 and developed almost all typical symptoms, flue in summer, heart palpitations, later knee pain and shooting pains in the upper right part of the body. By age of 11 I had sever scoliosis, sticking out right shoulder blade and severe weakness in right arm, had to use left hand. After two years of aggressive physical therapy I got better but still need to exercise on regular bases to keep scoliosis in check. A couple years ago I took prednisone for back pain and all the symptoms from 45 years ago returned. Again I couldn't lift and use my right arm. This made me think that my sudden development of scoliosis wasn't so coincident. When I googled Lyme and scoliosis I found this post.
This is quite interesting. What do you think about this?

It sounds like the prednisone squashed your immune function and the lyme flourished.
Taking steroid medications are generally contraindicated when treating a lyme infection...as they work by suppressing your immune system.

Have you recovered since?
Posted 11/24/2018 7:27 PM (GMT 0)
Thanks Girlie for responding, you keep this forum going!
Prednisone led to Lyme diagnosis. I was diagnosed clinically this summer. I am on herbal antiviral and antimicrobial herbal medications, EBV subsided and most other symptoms but I am having problems with tachycardia and extremely low blood pressure. I went to cardiologist, I have leaky valve and I've been wearing heart monitor for 3 weeks. On Tuesday I am going to LLND to start the antibiotic treatment. I will see cardiologist on Monday. I am afraid to start real antibiotic treatment but I guess I have, I am positive for Bartonella ana Ehrlichia.
Posted 11/24/2018 9:29 PM (GMT 0)

Duza said...
Thanks Girlie for responding, you keep this forum going!
Prednisone led to Lyme diagnosis. I was diagnosed clinically this summer. I am on herbal antiviral and antimicrobial herbal medications, EBV subsided and most other symptoms but I am having problems with tachycardia and extremely low blood pressure. I went to cardiologist, I have leaky valve and I've been wearing heart monitor for 3 weeks. On Tuesday I am going to LLND to start the antibiotic treatment. I will see cardiologist on Monday. I am afraid to start real antibiotic treatment but I guess I have, I am positive for Bartonella ana Ehrlichia.

thank you!

Sorry to hear about your heart problems... glad you're seeing a cardiologist.

Let us know what protocol the LLND starts you on.
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