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Posted 10/9/2017 1:11 AM (GMT 0)

Evanston1 said...
Alyeska-

How high are your fevers? Is this one of your main symptoms? Do you have them daily?

There is a recent post I just read about that mentions Dr Zhangs discovery of a potent combo of Lyme which is doxy, ceftin, and a compound from oil of oregano. Spunds promising.... although I can't be on ceftin. Caused me c diff in April.

It's SO hard with kids, isn't it??


My fevers are not daily at the moment, and they're usually low if I have them. Just enough to make you feel yucky and want to curl up in bed with lots of liquids if that makes sense. My eyes sometimes feel hot too. I usually get one for a few days every other week or so. I used to feel that way daily, so I guess that's an improvement.

I'm allergic to oregano, so that's out. What is c diff? Sorry, I'm a total noob here and don't have a clue what people are talking about half the time!

Yes, it is hard with kids! Mine are all teenagers and are pretty understanding, but they still expect me to be able to do everything even when I'm sick. My youngest insisted that he needed help with an English paper today, and I had the worst brain fog ever. He got it done, but I had to take breaks and ended up having my husband proofread it too at the end. (He is NOT a proofreader! He knew something was very wrong when I asked him to proofread it too!)
Posted 10/9/2017 1:20 AM (GMT 0)

Lapis_29 said...

Alyeska said...

The Dude Abides said...

Alyeska said...
I've never really had anything wrong with my mouth except a few mercury filling replaced years ago, and my LLMD treated me for heavy metals just in case, but I guess it's worth looking into.

Alyeska:

I'm curious how your LLMD "treated" you for heavy metals.

1. How did your LLMD determine you had a heavy metal burden? Blood test? Hair analysis? Oral chelation? IV chelation?

2. What was the protocol your LLMD used to rid you of the heavy metals?

3. Did your LLMD follow-up with the same test (See #1) to confirm your body no longer had elevated levels?

Thanks for any feedback you can provide!

The Dude

First I took a supplement, but blood tests didn't really show much of a change, and then I did oral chelation for months and showed improvement. That was years ago. I haven't been treated for it in a long time. Do you think I could have somehow gotten elevated levels again? We have a water purifier, and I have no mercury fillings.

Oh, and yes, same blood test both times.

lyme bacteria store mercury in their biofilms, been proven. when the lyme bacteria are destroyed, the mercury (and other toxins) in the biofilm are released. so it is possible that yes you became more mercury toxic as you treated. but I dont know if that is your problem.

simple way to determine this - get some alpha lipoic acid, take 1 tablet every 2 - 3 hours every day for 3 days.

if no improvement, you are almost certainly not mercury toxic, if you do improve then graduate to taking DMSA

also check out my thread on DMSO, it is helping me tremendously

https://www.healingwell.com/community/default.aspx?f=30&m=3914807

For some reason I can't get to your thread. Is the DSMO you're talking about the same thing in DMSO cream? My dad used to swear by it, but when I tried it, I had a bad skin reaction. What are your thoughts on that? I'm pretty nervous about trying it again. Thanks for all of this info! I'll look into the alpha lipoic acid too.
Posted 10/9/2017 1:22 AM (GMT 0)
Alyeska - it's normal to get a redness and itching on the skin from the DMSO - I also got some burning sensations.
But it doesn't last.
Posted 10/9/2017 1:31 AM (GMT 0)

Girlie said...
Alyeska - it's normal to get a redness and itching on the skin from the DMSO - I also got some burning sensations.
But it doesn't last.

Oh! I have so many allergies that I just assumed it was that. I washed it off and gave the cream to Dad!
Posted 10/9/2017 1:44 AM (GMT 0)

Alyeska said...

Lapis_29 said...

Alyeska said...

The Dude Abides said...

Alyeska said...
I've never really had anything wrong with my mouth except a few mercury filling replaced years ago, and my LLMD treated me for heavy metals just in case, but I guess it's worth looking into.

Alyeska:

I'm curious how your LLMD "treated" you for heavy metals.

1. How did your LLMD determine you had a heavy metal burden? Blood test? Hair analysis? Oral chelation? IV chelation?

2. What was the protocol your LLMD used to rid you of the heavy metals?

3. Did your LLMD follow-up with the same test (See #1) to confirm your body no longer had elevated levels?

Thanks for any feedback you can provide!

The Dude

First I took a supplement, but blood tests didn't really show much of a change, and then I did oral chelation for months and showed improvement. That was years ago. I haven't been treated for it in a long time. Do you think I could have somehow gotten elevated levels again? We have a water purifier, and I have no mercury fillings.

Oh, and yes, same blood test both times.

lyme bacteria store mercury in their biofilms, been proven. when the lyme bacteria are destroyed, the mercury (and other toxins) in the biofilm are released. so it is possible that yes you became more mercury toxic as you treated. but I dont know if that is your problem.

simple way to determine this - get some alpha lipoic acid, take 1 tablet every 2 - 3 hours every day for 3 days.

if no improvement, you are almost certainly not mercury toxic, if you do improve then graduate to taking DMSA

also check out my thread on DMSO, it is helping me tremendously

https://www.healingwell.com/community/default.aspx?f=30&m=3914807

For some reason I can't get to your thread. Is the DSMO you're talking about the same thing in DMSO cream? My dad used to swear by it, but when I tried it, I had a bad skin reaction. What are your thoughts on that? I'm pretty nervous about trying it again. Thanks for all of this info! I'll look into the alpha lipoic acid too.

copy and paste this into your browser


https://www.healingwell.com/community/default.aspx?f=30&m=3914807

yes, redness and burning on the skin is normal. last maybe 30 minutes. sometimes skin gets dry after repeated uses, use vit E/aloe cream on it.

its truly amazing powerful stuff. saving my life essentially.

lipoic acid and DMSA are the ONLY true mercury chelators you can get w/o a prescription. thats it. cilantro and other things ARE NOT chelators, no matter what some 'experts' out there try to tell you.
Posted 10/9/2017 1:50 AM (GMT 0)

Jinna said...
Alyeska said: "Now I'm back to where I started or worse. He really tried to get my gut health back to normal, boost my immune system, and get me methylating before we did anything else like chelation."

I think your doctor feels like an open guy and guiding you well already.
Don't go back to abx, if you have all these fungal problems, allergies etc.
that's my advice, I'm not a doctor, just based on what I suffered all these years...

In my case, candida / fungus is the worst persistent infection I ever had (for about 30 years).
Lyme was easy to treat, in my CASE, compared to fungal infections.

Are you treating babesia and bart?

---------------------
As for chelation, it's not a punctual treatment that will eliminate the body burden.
It's a life long process.

Dr. K is in chelation since the 80s, much before most of us heard about lyme disease.
He never stopped taking things to clean heavy metals from himself, so you can imagine that chelation is not an easy business.
He's been doing that for 40 years for himself!

I myself have been rotate protocols for 12 years, and I swear that adding some substances will create incredible healing crisis that convince me I'm still full of heavy metals, despite all these years chelating...

Yesterday I heard an interview with Dr. K who said: the problem today is EM radiation, that breaks the ion pumps of cell walls by displacing calcium.

the consequence is that toxins have easy access inside and cannot come out.

He gives the patient chelators, mobilizers, then heavy metals are expelled, then again taken by cells due to EM radiation: there are scientific papers showing the mechanism of destruction of ion pumps.

Anyway, he said that one of the ways he's finding to raise cell voltage of patients who are exposed to EMFields (the great majority of us are), is to make them do ionic foot baths.

He is advertising one specific brand, but in the past, he was using another device.
So I just guess that any device would do the job reasonably well.
It takes 4 months to start seeing results.

once the patient goes on ionic foot baths 2x week, replenishing minerals, taking right binders, etc the patient can do then chelation with success.
Otherwise, he said, chelation does not work anymore efficiently.


I know my cell voltage was low, because the moment I used a small device that raises cell voltage, using high magnetism, I had a tremendous huge change in my energy levels.

A tremendous healing crisis, specially from nerves that started pushing toxins out.
Incredible pain all over my body, then days after, a relief.
I still use the device (that cost me 25 dollars), called Violet Ray.

I no longer have lyme, but i still fight candida, that also takes part of my energy away.

---------------------
The MOUTH treatment is a wise advice too.

I also treated my mouth, jaws, dead teeth, amalgams...

Everything is out, cavitation surgeries done...
A lot of time and money spent, but I guess, I would not have a chance to get well if I had not done that.

Every dead tooth I pulled had severe bone infections under.
Every single tooth.

Xrays showed nothing.
Only energy tests did (or Cavitat exams can do that too, but I trust my lyme doctor for energy testing me).
He rarely failed, when all dentists told him wrong.
He was right, dentists saw nothing bad.

7 times, 7 teeth, 7 severe infections.
It was unbelievable.

-------------------------------
So mouth is one thing to do, and gut is another (in my opinion).

Mouth is done for me, I think, but I'm still treating my gut.
It's a more complex puzzle than lyme.

why?

Because almost all lyme bacteria are in the gut too (if not all), + parasites, + nutrient absorption problems, + food allergies, + toxictiy + leaky gut + bad microbiome ...

so lyme is just one little part of the picture for the gut to heal.

But the good thing of this all: when you treat at least mouth and gut, you are treating your whole body's health too.

A lot of diseases can be prevented or treated just by treating these two parts of your body.

Not treating for babesia and Bart as far as I know unless the treatments I mentioned would help with them. I'll ask my doc.

I think you're right about the candida/fungus situation. I had problems with that WAY before I ever had Lyme symptoms. I think it was handled for a long time though, but with the recent abx, it's back worse than ever.
Posted 10/9/2017 2:22 AM (GMT 0)

Lapis_29 said...

Alyeska said...

Lapis_29 said...

Alyeska said...

The Dude Abides said...

Alyeska said...
I've never really had anything wrong with my mouth except a few mercury filling replaced years ago, and my LLMD treated me for heavy metals just in case, but I guess it's worth looking into.

Alyeska:

I'm curious how your LLMD "treated" you for heavy metals.

1. How did your LLMD determine you had a heavy metal burden? Blood test? Hair analysis? Oral chelation? IV chelation?

2. What was the protocol your LLMD used to rid you of the heavy metals?

3. Did your LLMD follow-up with the same test (See #1) to confirm your body no longer had elevated levels?

Thanks for any feedback you can provide!

The Dude

First I took a supplement, but blood tests didn't really show much of a change, and then I did oral chelation for months and showed improvement. That was years ago. I haven't been treated for it in a long time. Do you think I could have somehow gotten elevated levels again? We have a water purifier, and I have no mercury fillings.

Oh, and yes, same blood test both times.

lyme bacteria store mercury in their biofilms, been proven. when the lyme bacteria are destroyed, the mercury (and other toxins) in the biofilm are released. so it is possible that yes you became more mercury toxic as you treated. but I dont know if that is your problem.

simple way to determine this - get some alpha lipoic acid, take 1 tablet every 2 - 3 hours every day for 3 days.

if no improvement, you are almost certainly not mercury toxic, if you do improve then graduate to taking DMSA

also check out my thread on DMSO, it is helping me tremendously

https://www.healingwell.com/community/default.aspx?f=30&m=3914807

For some reason I can't get to your thread. Is the DSMO you're talking about the same thing in DMSO cream? My dad used to swear by it, but when I tried it, I had a bad skin reaction. What are your thoughts on that? I'm pretty nervous about trying it again. Thanks for all of this info! I'll look into the alpha lipoic acid too.

copy and paste this into your browser


https://www.healingwell.com/community/default.aspx?f=30&m=3914807

yes, redness and burning on the skin is normal. last maybe 30 minutes. sometimes skin gets dry after repeated uses, use vit E/aloe cream on it.

its truly amazing powerful stuff. saving my life essentially.

lipoic acid and DMSA are the ONLY true mercury chelators you can get w/o a prescription. thats it. cilantro and other things ARE NOT chelators, no matter what some 'experts' out there try to tell you.

I just read your "research dump" (lol!) on DMSO. Seriously fascinating! Do you think it's good to use if I don't have mercury problems? Whatever it was that my doc prescribed for chelation made me feel horrible and smell like sulfur. It was so long ago that I don't even remember what it was, and I can't find my notes on it at the moment. I think it worked though, so I'm not sure if mercury's the problem.
Posted 10/9/2017 2:31 AM (GMT 0)
I am learning so much from all of you. Thank you for taking your time to help me find answers and putting up with my cluelessness!
Posted 10/9/2017 3:58 PM (GMT 0)
Just heard back from St. Georg Klinik. The two week basic Lyme treatment costs about $18,000. If you want a friend or family member to stay in the room with you, it's approx. $80 a night for them.

"Since It has been scientifically proven that Lyme can be sexually transmitted" (their words,) they recommend that your "Lyme partner" (meaning sexual partner) get treated as well with a two day treatment, one day detox and one day hyperthermia treatment for approx. $4,000.

I'll have to see if they can tell me about long term results.

Unfortunately, I think I'll have to be much more desperate than I already am and have assurance of long term benefits before I'd be able to even contemplate spending that kind of money. Oh, to be rich!
Posted 10/9/2017 5:17 PM (GMT 0)

Alyeska said...

Lapis_29 said...

Alyeska said...

Lapis_29 said...

Alyeska said...

The Dude Abides said...

Alyeska said...
.

I just read your "research dump" (lol!) on DMSO. Seriously fascinating! Do you think it's good to use if I don't have mercury problems? Whatever it was that my doc prescribed for chelation made me feel horrible and smell like sulfur. It was so long ago that I don't even remember what it was, and I can't find my notes on it at the moment. I think it worked though, so I'm not sure if mercury's the problem.

I myself am mercury toxic and use DMSO everyday. I use lipoic acid and/or DMSA to deal with the mercury.
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