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New lyme dx - tx question

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Posted 10/14/2017 6:18 AM (GMT 0)
I had a positive western blot test 3 months ago with 6 bands that showed up. I have had symptoms for almost 4 years and went doc to doc with no answers until now. I've been doing a ton of research and am still trying to choose a tx path. I started seeing a naturopath and she did bio-feedback testing on me. I tested pos for lyme with her but neg for all co infections and parasites. She said my nervous system is the mpst affected followed by my liver. Im taking vitamins that i am low in and also a pill and tuncture called spiro lipto. My symps started during a very stressful time with twitching muscles and tingling 4 yrs ago. My lower back spasms about once a year and i have a lot of lower back pain so i can't work out or even give my kids a bath some days. I have a small disc buldge at my L5 but the docs make it seem like i shouldnt be having this much pain. My hands tremble from time to time. I have dry eyes and my ocular nerve has thinned. All western med docs havent helped me even now that i finally have a answer they dont think my symps are lyme. It blows my mind. I just wanted to know if you all thought a naturopath is enough for now. My symps are annoying but not debilitating. My back is the one symp that does interfere with daily life but i can normally live a decent functioning life. I have so much anciety about what the lyme is going to do to me. Im 32 with a 5 and 1 year old. I am trying to take it day by day and am thankful im still functioning and have happiness evwn when i dont feel like my notmal self. Thanks for reading. By the way i live in long beach ca if anyone has any doc recommendations. Thanks so much!
Posted 10/14/2017 6:38 AM (GMT 0)
Hi Colie2 - welcome to our community!

Many people choose ND's to treat them...BUT, make sure you have a Lyme Literate ND.

I am skeptical that she diagnosed you with lyme, but no coinfections, as Lyme rarely travels alone (if ever).

You've had symptom for 4 years? And you have a 1 year old....how is he/she doing? Reason I ask is lyme can be passed on in utero.

If you'd like recommendations from members for LLND's or LLMD's, I suggest you start a new thread titled: "Looking for LLMD in/near Long Beach, CA"
Then enable your email (through 'my profile') so members can send you names privately. We don't post the names of the LL Docs on here - for privacy reasons.

We encourage our new members to read through the information in the thread at the top of the page: "New to Lyme?..Start Here!"
It's packed full of useful information.

Even though your symptoms aren't debilitating...you want to get a lyme literate Dr. and be treated appropriately.
Posted 10/14/2017 6:57 AM (GMT 0)
Thank you! I have been reading it can be passed in utero ans i may have had it when i was pregnant with my 5 year old but it just didnt come out strongly until she was 1.5. Both kids are happy and healthy so far and haven't had any medical issues. The one year old is hapoy all the time. Thank goodness they aren't showing signs. I am curious about the ND saying i didn't test positive for co-infections as well. She said she will test everytime to make sure but as of now she doesnt think i have them. I've called envita in AZ and they charge 30k-80k. Not doing that. Im reading unlockong lyme now and am leaning towards not using ax for now. I dis do 28 days of doxy and i know that was pretty pointless after researching. I will create another post and also look at the info you suggested.
Posted 10/14/2017 4:03 PM (GMT 0)
Colie2,

Hi and welcome!

I'm so sorry you're going through this and that it took so long to find out what was wrong. It took me 7.5 years to find out I had Lyme and more.

Unlocking Lyme is a great book. Stephen Buhner's books a very helpful too, but they are much more technical. I decided to treat with herbs on my own after a bad experience with antibiotics and a huge lack of trust in the doctor. It's really sad that we often have to be our own doctor, scientist, researcher, and investigator in order to help ourselves get well. The learning curve is huge. Dr Rawls' book is clear and easy to follow, and he offers real, common sense advice.

I agree with Girlie. Co-infections need to be addressed, too. Bartonella and babesia are 2 of the most common. Stephen Buhner has books on those, too, as well as herbal treatment protocols. Buhner also suggests lots of other herbs and supplements for different symptoms.

The more you know, the better decisions you can make, but don't feel like you have to understand it all before you can start. You could start with Japanese knotweed and cat's claw while you're reading and planning how to approach this. Just start with tiny doses and sloooowly increase. Start with one herb at a time to see how your body reacts

Hope this helps. Keep asking questions and reading. There's a lot of very knowledgeable and kind people on this forum.
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